CURE Epilepsy
@CureEpilepsy
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CURE Epilepsy is the leading nongovernmental funder of epilepsy research, with over 300 grants funded in 18 countries to date.
Chicago, IL
Joined March 2011
Our community makes it possible to unlock the doors holding back progress. We find and fund innovative scientists and projects - ones looking beyond the status quo and rethink what is possible in the world of epilepsy research. (Video made possible by Whitten-Newman Foundation.)
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This weekend at #IEC2025, our CSO Dr. Laura Lubbers joined Dr. Dan Lowenstein for the Presidential Symposium on inclusive, patient-centered epilepsy care. She also shared updates on SUDEP Common Data Elements led by CURE Epilepsy. #ILAE #SUDEP #epilepsyresearch
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You can now find us on Bluesky! Follow us at https://t.co/FsT1QhPnmI to stay up-to-date on epilepsy research and key updates. https://t.co/bA3fd0Z46p
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Thank you so much to our Night of Discovery Platinum and Diamond Sponsors! We are so grateful for their generosity and commitment to finding cures for epilepsy. There's still time to join us as a sponsor of this year's Night of Discovery! Learn more here: https://t.co/0pB9fbMeyu
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Standardized preclinical Common Data Elements and Case Report Forms may transform SUDEP research. Aligning how variables are recorded improves reproducibility, cross-study comparisons, and discovery of biomarkers and targeted interventions. Read more:
cureepilepsy.org
The develop of SUDEP Common Data Elements (CDEs) and Case Report Forms to enable standardization and translation of preclinical SUDEP data.
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Parents and caregivers of children with #epilepsy can face new challenges and may feel uncertainty during the transition from youth to adulthood. Learn more from @CureEpilepsy about transitioning from pediatric epilepsy care to adult epilepsy care here: https://t.co/kYKnQlXVj0
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Fostering a community is different than just raising dollars. That's why we support groups like @CureEpilepsy @YAWECoast. -- Do you regularly contribute to an epilepsy nonprofit? #NationalNonProfitDay #EpilepsyAwareness
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ICYMI: From #lab discovery to #clinicaltrial in just 3 years — an FDA-approved drug for one disease is now giving hope to kids with rare epilepsies like SLC6A1 and STXBP1. Read more: https://t.co/AlDNNLQJ88
#epilepsy #raredisease #epilepsytreatment #fdaapproved
cureepilepsy.org
Repurposing currently FDA-approved drugs fast-tracks treatments for epilepsy, including the treatment of rare forms of epilepsy.
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💡 “If the funding stops, that’s only going to impede things in progress.” @UWMadison’s Barry Gidal discusses how #genetics, #neurotech & #CBD are reshaping treatment and why #research funding is critical. 🔗 https://t.co/spBKToRyco
#researchfunding #uwmadison #clinicalstudies
wpr.org
According to a Wisconsin clinical pharmacist, advancements in epilepsy treatment research include genetics, medical devices and prescription CBD.
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Panayiotopoulos Syndrome is a rare #epilepsy affecting young children, often misunderstood. Journalist Scarlette Whyte shares her family's dual diagnosis experience on Seizing Life. 🔗 Tune in: https://t.co/pktDPd6IQ7
@TvScar #pediatricneurology #epilepsyresearch #neurology
cureepilepsy.org
This week on Seizing Life®, journalist, television executive, and mother Scarlette Whyte joins us to share her family’s experience with Panayiotopoulos Syndrome, a type of early childhood epilepsy...
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Why can dogs detect seizures before they happen? 🐕 Join us September 4 at 5 PM CT for a webinar “Epilepsy Service Dogs: The Science Behind the Sniff" to learn more. Register: https://t.co/zE4DCDqmz0
#epilepsyresearch #servicedogs #neuroscience #servicedogawarenessmonth
cureepilepsy-784.my.webex.com
Simple, modern video meetings for everyone on the world's most popular and trusted collaboration platform.
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🧬🔬💊 A hopeful discovery: phenylbutyrate, an existing FDA-approved drug, may help reduce #seizures in rare #genetic epilepsies like #SLC6A1 and #SYNGAP1. This could speed up treatment timelines for families urgently seeking options. https://t.co/TbvQKmxeJs
cureepilepsy.org
Repurposing currently FDA-approved drugs fast-tracks treatments for epilepsy, including the treatment of rare forms of epilepsy.
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Join us 9/20 for Night of Discovery! Our annual Chicago Benefit is an evening of cocktails, dinner, and dancing, where we celebrate our collective achievements, hear stories from people impacted by epilepsy, and raise critical funds for epilepsy research. https://t.co/vYFuwpPAfo
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July epilepsy research news: 🤰High blood pressure in pregnancy linked to increased risk of seizure in children: https://t.co/TmwAgQQdxj 🧬Comprehensive Study Maps Genetic Mutations in SLC13A5 Linked to Epilepsy: https://t.co/NlmcEP9x7y Subscribe today: https://t.co/tRBDFMgtUl
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New research links high blood pressure during #pregnancy to an increased risk of #seizures in children. Maternal health may play a critical role in long-term #neurological outcomes. 🔗 Read more: https://t.co/TmwAgQQdxj
#EpilepsyResearch #MaternalHealth #SeizurePrevention
cureepilepsy.org
A new study has revealed a significant association between high blood pressure during pregnancy (gestational hypertension) and an increased risk of seizures in children.
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Since 1950, @NIH_NINDS has led breakthroughs in brain science. CURE Epilepsy is incredibly grateful for the progress toward treatments and cures that their funding helps drive. Here's to continued discoveries! #NINDS #epilepsyresearch #neurology #research #stroke
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In this Epilepsy Explained video, Dr. Perry breaks down what #MEG is, how it works, and why it matters for people living with #epilepsy. He answers some of the most frequently asked questions about its #clinical use and potential benefits. 🔗 Learn more:
cureepilepsy.org
Dr. M Scott Perry, Head of Neurosciences at the Jane and John Justin Institute for Mind Health at Cook Children’s Hospital, answers your questions about MEG, or magnetoencephalography.
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Brain #insulin resistance may link #Alzheimer’s and #epilepsy — new research supports the "type 3 diabetes" hypothesis and its role in both memory loss and #seizures. A promising step toward better understanding and #treatment. 🧠✨ Learn more:
cureepilepsy.org
New research has shown that the process of insulin resistance in the brain affects both Alzheimer's disease and epilepsy and may be a linking factor between the two diseases.
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In a video with @CureEpilepsy, Dr. John Stern answers questions and discusses the use of #epilepsy rescue medications. Be sure to click below to watch the video! 👇 https://t.co/nmHpqlRxSj
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Researchers at St. Jude used CURE Epilepsy-funded support to create the first organoid model of rare UBA5 encephalopathy. Boosting a partially functional gene reversed effects—hinting at a potential therapy. Huge step for rare epilepsy. 🔗 Learn more:
cureepilepsy.org
Scientists at St. Jude Children’s Research Hospital developed a cortical organoid model for UBA5-associated encephalopathy, revealing a new way to possibly address developmental defects.
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💊 This month on Epilepsy Explained, Dr. John Stern of @UCLA breaks down the vital role of rescue medications in seizure action plans. Learn how these treatments can make a difference when seconds matter. #EpilepsyAwareness #Neurology 🔗 Learn more: https://t.co/R2GjNkc2UB
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