CJD Foundation
@CJDFoundation
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Our mission is to support families and loved ones touched by CJD.
Joined February 2014
Kicking off day 2 of the family conference with the Keynote Address in Honor of Dr. Pierluigi Gambetti by Glenn Telling, PhD, Director, Prion Research Center @ColoradoStateU #CJDFoundation
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Join us today, Monday, June 9 at 7PM Eastern for an important meeting about the Fiscal Year 2026 budget and the new proposal to eliminate funding for the National Prion Disease Pathology Surveillance Center. To register email help@cjdfoundation.org or call (800) 659-1991.
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Join us tomorrow, Monday, June 9 at 7PM Eastern for an important meeting about the Fiscal Year 2026 budget and the new proposal to eliminate funding for the National Prion Disease Pathology Surveillance Center. To register email help@cjdfoundation.org or call (800) 659-1991.
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Join us Monday, June 9 at 7PM Eastern for an important meeting about the Fiscal Year 2026 budget and the new proposal to eliminate funding for the National Prion Disease Pathology Surveillance Center. To register email help@cjdfoundation.org or call (800) 659-1991.
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If you would like to learn more about #priondisease, please join a Q&A webinar led by Dr. Appleby, Medical Director, CJD Foundation, & Director, National Prion Disease Pathology Surveillance Center. To register, please call 800-659-1991 or email help@cjdfoundation.org.
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We've got an inspiring and educational weekend planned for this year's Family Conference. Register by this Friday, May 23 to lock in the early bird rate.
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We are pleased to announce a Call for New Grant Applications for research projects relating to human prion diseases. The deadline for receipt of Letters of Intent is July 17, 2025. Learn more at: #cureCJD #priondisease #cjdresearch
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Lock in the lowest registration price for the 2025 Family Conference by registering by Friday, May 23.
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This month's Genetic Prion Disease Virtual Support Group will be on the topic of Complicated Grief with special guest speaker, Kirsten McGinnis. Register for the session on April 29 by contacting our Helpline at 800-659-1991 or emailing help@cjdfoundation.org.
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Lock in the lowest registration price for the 2025 Family Conference by registering by Friday, May 23. We're bringing the Conference to Chicago this year and hope you can join the CJD community for a weekend of learning, healing and connection.
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Registration for #Strides4CJD is now open! Join us to pay tribute to your loved one & contribute to a cause that matters. We’re paving the way for progress. Making every stride count. We're not just walking; we're making history!
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All US families affected by prion disease, past or present, are welcome to attend the Western Region virtual support group. We will meet virtually on Tuesday, April 22 at 6PM Pacific. To register, email help@cjdfoundation.org.
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If you are currently caring for a loved one with CJD/Prion Disease, please join us for a Virtual Caregiver Support Group on April 15 at 7PM Eastern. To register, please contact our Helpline at 800-659-1991.
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We are pleased to announce that, with your help, the CJD Foundation has awarded over $800,000 in new #researchgrants and #fellowships to Prion Disease research! #cureCJD
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Don't miss these April Virtual Support Groups!. To register, call 800-659-1991 or email help@cjdfoundation.org with your name, your loved one’s name, and the teleconference you are registering for.
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The Seattle Area Family Workshop is next week on March 27. Attending this event will provide a network of support from other families, education from the NPDPSC & CJD Foundation, and the opportunity for open dialogue. To register please email help@cjdfoundation.org.
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If you are a family affected by Genetic Prion Disease, please join us for a Peer-Led Virtual Support Group on March 19. This group is designed to provide support & the opportunity for open dialogue. To register, please call 800-659-1991 or email help@cjdfoundation.org.
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All US families affected by prion disease, past or present, are welcome to attend this virtual support group on March 18 at 6 pm Pacific. To register, email help@cjdfoundation.org.
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Join the Current Caregiver Virtual Support Group on March 11 at 7PM Eastern, led by several family members who have cared for a loved one in the past. Participants can share their questions and concerns. To register, please contact our Helpline at 800-659-1991.
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The CJD community gathered in Washington, DC this week to meet with legislators and raise awareness of CJD. Thanks to all who were able to attend! #cureCJD #CJDAdvocacyDay
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