Congenital Cardiac Research Collaborative
@CCRCresearch
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CCRC seeks to improve outcomes for patients with congenital heart disease through research and innovation.
Joined October 2018
CCRC is proud to announce Dr. Jeffery J. Meadows has been recognized as the inaugural recipient of the CCRC Leadership Award. Read more on page 8 of the Aug issue of CCT: https://t.co/vzUGxGdiiH
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CCRC Fellow @jwongsiegel will present her talk on risks and outcomes on stenting small neonates with DDPBF as she receives the Andrew King Award at the @colinskids awards on 11/19 at 4:30 PM
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The CCRC Fall Conference at @ChildrensPg brought together clinicians, imagers, surgeons & data champions to advance CHD research. See you next time in NYC May 2026! ❤️🩺
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Excited to share CCRC Fellow @jwongsiegel 's new paper which is the first to map organ-level radiation doses in neonatal TOF caths. Important insights for QI & clinical decision-making in CHD care.
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PDA stenting is gaining ground for infants with ductal-dependent CHD, but it’s complex and anatomy-specific. In this new review led by @DowningTacy, we share best practices and technical guidance—advancing CCRC’s mission to improve outcomes in CHD care. https://t.co/BCQWv0qRJA
link.springer.com
Pediatric Cardiology - Patent ductus arteriosus (PDA) stenting is rapidly emerging as an initial palliative option for infants with cyanotic congenital heart disease and ductal-dependent pulmonary...
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Congratulations to CCRC's @JoannaNelsonMD for receiving the Komansky Award for Research in Fellowship for her important work on the impact of genetic diagnosis on outcomes in neonates with TOF.
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Congratulations to our biostatistician Dr. Yun Zhang on this incredibly funding opportunity from @TheCHF
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❤️ Support a Cause Close to the Heart! Lady Josephine Foundation is in the final days of their Pulmonary Vein Stenosis (PVS) Fundraiser! Join us in supporting this cause that brings hope to children born with PVS. Every contribution counts – big or small. https://t.co/SdnQafl6Gz
givebutter.com
Heart Month PVS
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CCRC's Dr. Chris Petit lead a panel of experts including Dr. Bryan Goldstein, @AndyGlatz , @dnykanenmd and Dr. Audrey Marshall at Cardiology 2025 last week. They had an illuminating discussion on the ever-changing landscape and the future of innovation in managing CHD care.
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Have you visited the new CCRC website? We summarize our latest publications in our News & Update sections for families and supporters with links to the full article. Check it out! https://t.co/ajnHK5stju
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Spotted: CCRC in the wild! UPMC's Dr. Bryan Goldstein is at the CHOP conference in Orlando this week and presented his predictions for catheter-based therapies in CHD in the next ten years. @HeartCare4Kids @ChildrensPgh #cardiology2025
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Be sure to stop by our Cardiac Center and @CHOPFetalCenter booths during the break today to meet our team, find resources for referring providers and learn more about our breakthroughs. #Cardiology2025
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This CHD Awareness Week, we honor the strength of children & families facing CHD. Research is essential to improving care, outcomes, & hope. CCRC is committed to advancing science & innovation to give every heart its best chance. Visit https://t.co/bHfzrlzz5K to learn more.
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A huge thank you to everyone who contributed to our shared successes. We look forward to building on this momentum in 2025! #YearInReview #Healthcare #Research #PediatricCardiology #Milestones #CelebratingSuccess #MakingAnImpact 9/9
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🧡 Rebranding: As CCRC grows and evolves, so does our identity. This year, we introduced a new logo and website to better represent our changing organization. We’re excited to share the results and invite you to explore our newly launched site: https://t.co/1FozMlBPVw 8/9
ccrcresearch.org
The Congenital Cardiac Research Collaborative focuses on research and quality in children and adults with congenital heart disease.
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🧡 Research: We celebrated five publications this year in journals such as JACC Advances, Journal of Pediatrics, and Pediatric Cardiology. Additionally, five more research manuscripts have been submitted or are in the final stages of submission. 7/9
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🧡 Growth: We welcomed University of Texas-Southwest and the University of Minnesota to our growing list of full-member CCRC sites. 6/9
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🧡 Pulmonary Vein Stenosis Registry: Behind the scenes, we are preparing to launch a new initiative to better understand this rare disease and improve outcomes for children with PVS. 5/9
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