BreathofhopeRI
@BreathofHopeRI
Followers
20
Following
86
Media
20
Statuses
33
Bringing hope and awareness to IPH. Join us in our journey to find a cure! IPH-rare but real! Venmo @Breath-of-Hope-RI
Rhode Island, USA
Joined July 2024
We are so grateful to Lisa Walsh & Wakefield Books for hosting such a beautiful book signing in support of local charities — including Breath of Hope RI. Thank you to everyone who came out, purchased Creepy Crawlers, and helped with support for the rare disease community
0
2
2
Local author Lisa Walsh will be hosting an in-store book signing for her children’s book Creepy Crawlers at Wakefield Books on Sat., January 10 from 10am–12pm. A story rooted in honesty, bravery, and kindness — with proceeds supporting Rhode Island charities, including BOHRI!
0
1
1
GREAT NEWS TO SHARE ! 💙 Landon had his CT scan today, and the results were everything we hoped for. Decreased inflammation and no signs of blood in his lungs! We are so grateful for your continued thoughts, prayers, and love.
0
1
1
We hope you can carve out time 😉 to help us out on Giving Tuesday December 3rd! #IPH IPH-Rare but Real
0
1
1
The FBI probe into illegal gambling is getting bigger. NBA Star and Coach arrested this am by the FBI - meanwhile here is a good read as @LAmag developing story on bust comes together Mob, the Mansion, and “Agent Zero”: How Gilbert Arenas Got Dealt In
lamag.com
Feds allege Gilbert Arenas hosted an Israeli mob-run poker ring in his Encino mansion filled with sex, drugs, and high-stakes danger.
2
2
16
Congrats to Kyle Gagnon for winning the raffle basket at the Breath of Hope RI Glowball tournament hosted by Warwick Country Club! #IPH
0
1
1
Dr Eveline Wu from UNC Children’s Hospital Research explains IPH at BOHRI Golf Tournament. https://t.co/K6YTuG7oUb
#IPH
0
2
2