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The National Brain Appeal Profile
The National Brain Appeal

@BrainAppeal

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Transforming treatments and changing lives for people with brain conditions. Supporting The National Hospital and The UCL Institute of Neurology @UCLIoN

Queen Square, London
Joined February 2009
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@UCL_QS_CNMD
UCL_QS_CNMD
7 days
Congrats to Peter Finnigan, Highly Specialist Neuromuscular Physio from NHNN’s Highly Specialist McArdle & Related Disorders Service, on his Small Acorns grant @BrainAppeal of £5,691.60 to establish normative strength profiles and quantify sarcopenia risk in McArdle disease
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@UCLBrainScience
UCL Brain Sciences
9 days
🎶 Can music help heal the brain after injury? This #WorldStrokeDay we speak to Dr @sara_ajina about her pioneering trial at @uclh with @nordoffrobbins and @BrainAppeal to find out the impact of music therapy. https://t.co/mtEzkFTKeE
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@RareDementia
RareDementiaSupport
15 days
Earlier this year, Rare Dementia Support began working with partners in Japan to help build awareness, connection and support for people affected by rare dementias. 💜 Watch the video to see more about our team’s recent visit. Full story: https://t.co/mDLKHIXdUb
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@RareDementia
RareDementiaSupport
1 month
As #WorldAlzheimersMonth comes to an end, @ucl and @BrainAppeal are delighted to announce that a world-first centre for people impacted by rare dementias is to be named in honour of visionary philanthropists Hilary and Galen Weston. https://t.co/HX9va3x10x
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@UCLGiving
Giving at UCL
1 month
As #WorldAlzheimersMonth comes to an end, UCL and @BrainAppeal are delighted to announce that a world-first centre for people impacted by rare dementias is to be named in honour of visionary philanthropists Hilary and Galen Weston.
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ucl.ac.uk
A world-leading centre, which will offer critical services for around 10,000 visitors (including individuals and family members across the UK impacted by rare dementias), is to be named in memory of
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@BrainAppeal
The National Brain Appeal
3 months
Huge congratulations to Hani Marcus on his well-deserved promotion to Professor of Neurosurgery! A trustee of The National Brain Appeal, Hani’s pioneering work in robotic brain surgery continues to inspire and we’re proud to have supported it through our Innovation Fund.
@hani_marcus
Hani J Marcus
3 months
It’s a real honour to be promoted to full Professor, and I’m deeply grateful to the many mentors, colleagues, and students who’ve made this possible. I feel especially fortunate, within the @TEQ_Neurosurg group, to work at the interface of surgery, neurology, and engineering –
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@RareDementia
RareDementiaSupport
3 months
We’ve been in Spain with @actiu & @castfurnitureuk shaping the future Rare Dementia Support Centre — selecting sustainable, dementia-friendly furniture with lived experience at the heart. Opening 2026. 🌿🪑
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@Siobhain_Mc
Siobhain McDonagh
4 months
In memory of my sister Margaret, we launched a Glioblastoma drug trial. Now, Margaret’s Trial is open on the NHS - and offering real hope. Ben, diagnosed with a Glioblastoma in 2022, saw his tumour vanish. His story helped make this happen. Watch here:
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@RareDementia
RareDementiaSupport
4 months
We’ve been shortlisted for a @ThirdSector Award! Our partnership with @BrainAppeal has been recognised in the Charity Partnership of the Year category for our work in creating the world’s first Rare Dementia Support Centre. Thank you to all our funders, partners and supporters!
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@MikeHanna18
Prof Michael Hanna
4 months
Well done to our amazing centre for Neuromuscular Diseases team- all made it despite the heat! Thank you everyone for being a really a great research and clinical team! Not too late to sponsor!! https://t.co/iNSbRDGf8a @uclh @UCLBrainScience @UCLIoN @BrainAppeal
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@RareDementia
RareDementiaSupport
4 months
This week, our team & RDS members were invited to Castalla, Spain, to collaborate with @actiu and @castfurnitureuk on designing the future Rare Dementia Support Centre. Together, we’re exploring how thoughtfully designed environments can support people living with rare dementia.
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@UCL_QS_CNMD
UCL_QS_CNMD
5 months
Professor Mike Hanna will be leading the CNMD Team in fundraining for @BrainAppeal in the Saucony London 10K race on July 13, 2025. Please donate what you can! https://t.co/P8wtW6AJ4m Please repost/share
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@BrainAppeal
The National Brain Appeal
6 months
🚴‍♂️ This #DementiaActionWeek, Bernard Bunting is taking action in a big way. He’s cycling 4,200 miles around the coast of Britain to raise £1m for the world’s first @RareDementia Centre – and has already raised over £10,000! 💜 Show your support 👉 https://t.co/qeQeqJKgC2
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@BrainAppeal
The National Brain Appeal
6 months
💜 This #DementiaActionWeek, help us make this centre a beacon of hope. More than 7,500 people already benefit from Rare Dementia Support – but many more need it. Please donate to help us reach them: https://t.co/CT9aZjvYUM
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nationalbrainappeal.org
The The National Brain Appeal's Rare Dementia Support appeal raises money to support people living with rare forms of dementia.
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@BrainAppeal
The National Brain Appeal
6 months
Construction is now underway on the world’s first Rare Dementia Support Centre, opening in 2026 at Woburn Square, London. This significant milestone was celebrated with teams from UCL, @RareDementia, @BrainAppeal, @ark_build_plc & @AECOM. Read more: https://t.co/5wQsX9m8hg
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@BrainAppeal
The National Brain Appeal
7 months
Did Helen’s performance move you? You can now download her original composition ‘Out of the Box’ from our online shop with all proceeds going to @RareDementia - a support service that we proudly fund 💜
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shop.nationalbrainappeal.org
Out of the Box is a heartfelt original piano piece composed by Helen Moffatt, a primary school music teacher and member of Rare Dementia Support, who lives with primary progressive aphasia (PPA) - a...
@ThePianoUK
The Piano
7 months
When you have no words, the piano can say so much. Helen's 'Out Of The Box'. #ThePiano
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@volkmer_anna
Dr Anna Volkmer
7 months
Today, 4 April 2025, is the 1st ever Primary Progressive Aphasia (PPA) awareness day! Free UK webinar today: https://t.co/Nd2Uwmas12 Missed it? A recording will be on our website: https://t.co/Nd2Uwmas12 @RosemaryTowns15 @RCSLT @RareDementia
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@LDNMedicalOrch
London Medical Orchestra
8 months
Sneak preview of projections from our concert. Tickets: https://t.co/v40N33wXg1
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@BrainAppeal
The National Brain Appeal
8 months
The London Medical Orchestra is back this Sunday, bringing you a stunning Spring Concert raising funds for @RareDementia – a service proudly funded by The National Brain Appeal. Get your tickets here:
@LDNMedicalOrch
London Medical Orchestra
9 months
Tickets (cheaper in advance) are available for our Spring Concert here: https://t.co/v40N33wXg1 #Mozart #Rachmaninoff
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@BrainAppeal
The National Brain Appeal
9 months
Huge thanks to @wolfsonfdn for awarding £750k to our Rare Dementia Support (RDS) Centre appeal. The gift will help to provide a hub of expert support for people living with rare forms of dementia, and their families ➡️ https://t.co/diul4mJcff. For info, see
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nationalbrainappeal.org
Help us fund the world's first Rare Dementia Support Centre. The centre will exemplify how best to support those living with a rare form of dementia.
@wolfsonfdn
Wolfson Foundation
9 months
We are delighted to announce our latest round of grants, with nearly 80 organisations across the UK receiving a share of over £17 million for capital projects. A huge congratulations to our new grant holders! 🧵 https://t.co/hF15OEubSJ
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