Betsy Pilon
@BetsyPilon
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You can find me less often here, and most often 🦋🦋🦋 under the same name.
West Bloomfield, Michigan
Joined May 2022
Birthdays in your 40s are wild. Apparently you have blood pressure check competitions. 😆😆😆
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My to-do list is long. Summers are short. Experiencing childhood with my kids is even shorter. Friday afternoons are for heading down the street and jumping off the dock.
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RT @NewbornBrains: Two incredible leaders on our #NBS Board, @MolloyElesean and @piawintermark, joined The Incubator to unpack a big year i….
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RT @DoctorDaphnaMd: Support H. Res. 236 - NICU Baby's Bill of Rights . This is the EASIEST way to support the NICU….
votervoice.net
Your Voice Matters – Tell Congress to Support the ‘NICU Baby’s Bill of Rights’!Every year, more than 370,000 babies are born prematurely in the U.S., and thousands of full-term infants face life-th...
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RT @HopeforHIE: Save the date for #HopeforHIE’s August virtual #support group sessions! For more details and registration links, visit our….
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Margie is one of the most incredible parents I've met in this HIE world. She shared such a beautiful perspective and reflection recently and asked to have it shared widely. it highlights the importance of longitudinal support!.
“With HIE, things go well…until they don’t.” As much as I wish I’d never heard of HIE, I’m forever grateful to have stumbled upon Hope for HIE’s parent support Facebook group one late and lonely night in 2013. 🫶In the aftermath of Katie and Caroline’s birth I turned to Hope for
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Mom win? Max has only ever said he wanted to be a NBA player 🏀. Now he’s saying he wants to be either a science teacher or scientist.
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RT @HopeforHIE: "The Missing Voices in Neonatal Drug Development: Harnessing Patient Advocacy for Impact" session -- 4/4 patient advocates….
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RT @HopeforHIE: 🎙️ Listen up! Three recent episodes to check out AND we will have new episodes of @justsayhie soon! . 🎙️ Baby Tribe podcast….
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RT @HonTonyCoelho: People serving under Biden, Obama, Bush, Reagan, & Carter, ALL voiced concerns regarding future of special education, ur….
k12dive.com
Officials from Republican and Democratic administrations told Congress of concerns about moving the programs and consolidating their funding.
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That's enough interneting for one day for me. Back to digging out my inbox.
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RT @FccTaskforce: We're looking to support #NICU families across the country! California is seeking to create family leave reform. Share yo….
change.org
Support NICU Family Leave Reform in California
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RT @disabilityscoop: Prosecutors accuse the co-founder of one of the country's largest special needs trust administrators of orchestrating….
disabilityscoop.com
Prosecutors accuse the co-founder of one of the country's largest special needs trust administrators of orchestrating an elaborate scheme to embezzle $100 million and they suggest he did not act...
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RT @FccTaskforce: Next #FCC webinar is this week!.Don't miss it!.And a reminder that we have webinars every other month. You can also check….
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I find it very interesting that my "for you" on this app for the longest time before Elon and Donald's break up was far far right political stuff. Now, it's back to more evidence-based info. Anyone else?.
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His baby with HIE was saved by #NICU doctors after a homebirth gone wrong (he has shared publicly). Sleep, Sun, Movement, Real food didn't do that. NIH funding for therapeutic hypothermia did. Pushing pseudoscience as an MD is WILD & disappointing (but incredibly profitable).
Doctors aren’t trained to heal. They’re trained to treat symptoms. The real cure? Sleep. Sun. Movement. Real food.
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This stopped me in my tracks at my appt today. Huge poster on #SeizureFirstAid at @HenryFordHealth in the main area across from the elevators. @MIepilepsy .🧠🎉
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What drives me forward (and crazy):.Parents reaching out to us today who were never told about their child's cause of death being HIE from a severe shoulder dystocia after a week in the #NICU. Not one person helped them. They found it in their MyChart after she died and Googled.
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