Donations have been made, £350 to the CF Trust and £350 to Leeds Hospital Charity. Again, thank you all so much for supporting and donating on behalf of Rufus. From, Alix, Ben, Henry and Rufus! @cftrust @LDShospcharity

Always honoured to work with @cftrust to raise awareness of the realities of #cysticfibrosis and support the important work they do in helping the community and funding research! Also, Rufus' recent cough swab was clear again, so antibiotics are working🎉 https://t.co/B8O4Lq39jw

Back on the nebuliser, but thanks to help from his CF physio, he's a lot more tolerating of doing this. Previously it was not a fun experience for anyone, lots of crying and screaming from Rufus bless him. Now he'll stand/sit relatively calmly and breath, begrudgingly of course!

So we've had an eventful half term! Photoshoot for the @cftrust Halloween at our favourite play cafe Then a trip to Dinostar and Little Astronauts Rufus' cough swab was clear, but now we've got the side effects of the strong antibiotics to content with! Both boys soldier on!

We are so thankful for all of the support we have had from friends and family and the advice we've had from other parents of children with CF. This has been a stark reminder of how devastating CF can be. Rufus, as always, has shown just how much of a fighter he will be!

It is felt that IV antibiotics would be too strong an approach right now and we are hopeful this bacteria can be eradicated at home, especially as Rufus feels completely well and he is on Kaftrio.

This would have been for 2 weeks of IV antibiotics as some types of this bacteria are extremely damaging to the lungs. Rufus' consultant phoned to say the type identified was environmental. Although this needs removing, it could likely be done with oral and nebulized antibiotics.

After a follow up procedure the bacteria was still there but unfortunately we didn't know the exact type of this bacteria group as it can take many weeks to grow in the lab in London. He was started on antibiotics but was also getting ready for him to be admitted into hospital.

We've had quite the scare with Rufus' cystic fibrosis over the last couple of weeks. A routine cough swab showed a form of bacteria in his lungs that can be incredibly dangerous...

Rufus had a sweat test yesterday, we skipped this when he was born as his cystic fibrosis was confirmed via a genetic test. His result yesterday? 10! For context levels of 60+ means CF is likely, 30-59 CF is possible, 29 or less is CF unlikely. Kaftrio has really been a miracle

Oh, the picture... The boys wanted to spin me in the chair, after I had given them turns of the same 🤣

Rufus' annual review today at clinic. He's 75th centile, plus, for height and weight, which is a massive bonus now he's been off creon that's he's growing so well! We also got his yearly chest x-ray, "it's the same as a none-cfer chest x-ray", no scarring, no fluids, just air!

Hey @AldiUK any reason why you dont offer a fork, or even a spoon, with your pre-packed salads? Even @marksandspencer offer these 👀 Plenty of recyclable options these days you know! 🤔

It's been a busy two weeks, @CBeebiesLand stay last week. Then parks, play cafes, play groups and even their first full train ride (actual train to go somehwere). And we're not even half way through the summer holidays (when's the parents holiday/rest again 🤣)

WE'RE BACK-TO-BACK EUROPEAN CHAMPIONS!! 🏆

Rufus turned three over the weekend! Softplay, family, meals, beach, park and of course presents! Three years since this cheeky chappy joined us and showed us the true meaning of determination and strength. 3 years since Henry grew up overnight and owned the big brother role.

Yesterday was Rufus' birthday party (his birthday being in a few weeks) and he and Henry had such a great time at our favourite play cafe. They went all out and made it such a great party, and of course, it had to be bluey themed!

Nothing much has been happening of late, boys are doing well, we're able to spend time taking them places and making memories as a family. Life all feels a bit normal, which is a bit strange for us, but in a good way. So here's a beach trip we took at the weekend...

Day 20, just about to start! Will share this week's activity data on the fundraising page. We've raised over £650 so far, splitting between two great charities @cftrust @LDShospcharity Thank you so much to those who have donated! One last time; https://t.co/whOZyv3VFo

It’s CF Awareness Week Wear Yellow Day! I’m in yellow to support CF warrior Rufus! He’s almost three-years-old and already his life has been made better through research to treat - and one day cure - CF. @BenOxlade1 #wearyellow #CFAwarenessWeek #CFTrust #leedshospitalcharity