Behan Strong
@BehanStrong
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Join our movement to raise funds and awareness for Bucknell Alum and former SJC DC boys bball head coach Pat Behan ( @CoachBehanSJC ) in his fight against ALS
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Pinned Tweet
May is
#ALSAwarenessMonth
. This month also marks two years since Patrick was diagnosed with ALS. Patrick’s symptoms started in February 2022 and after weeks of tests, he was diagnosed with ALS on May 6th, 2022. Patrick continues to fight ALS with everything he’s got.
#BehanStrong
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Patrick is a fighter! He is currently recovering at the hospital after making the personal choice to get a tracheostomy and continue to fight against ALS.
For months he had been using a mask 24/7 to help with his breathing. After talking to the medical team for weeks, Patrick
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We would like to give an update: While Pat remains in the George Washington ICU, yesterday he was taken off the ventilator and has returned to bi-pap assistance. The hope is that he can return home on the bi-pap alone without more invasive breathing assistance.
He continues to
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Here is the reality: Pat is currently in the
@GWHospital
ICU, fighting for his life.
He has pneumonia and is on full ventilation, a blood clot in his lungs, his stomach is in knots, among other things.
ALS is unforgiving. It does not affect the mind, but it does. It does not
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Patrick is home and doing well! He was discharged on Friday after spending 18 days at the hospital. In addition to getting the tracheostomy, he battled two pneumonia infections. Patrick continues to show resilience through it all.
#EndALS
#BehanStrong
Thank you to everyone that
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Mr. and Mrs. Behan. 🤍
Patrick and Nataly got married August 28th, 2023. Their love for each other overcame the hardest time in their lives.
#BehanStrong
#StrongerTogether
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Update: The incredibly hard working staff at GW has found a solution for Pat’s bi-pap issue. It is effective enough that Pat has been DISCHARGED!
Medical efforts certainly play a huge piece, but the support he has had from those that contribute in any way they can has been a
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Update: Fortunately Pat is no longer dealing with pneumonia and the blood clot in his lungs is gone. These were two crucial ailments that have now been overcome.
However, Pat continues to have severe gastric discomfort, which has been attributed to the air pressure from the
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Recently Pat was admitted to George Washington University Hospital. Aside from the many struggles that he faces daily, he is currently dealing with several other complications.
Thank you to all the staff at the hospital who have been providing excellent care. There’s no quit in
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Patrick was switched to his home ventilator yesterday and has completed the 24-hour trial. This trial is important because it mimics the home setting where only Nataly and the caregivers can respond to his needs and take care of him. If at some point he needed to be switched back
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Update: Patrick continues to recover at the hospital and has responded well to the antibiotics. He will be switched to his home ventilator tomorrow. Nataly and one of his caregivers will learn how to respond to the ventilator alarms and do a 24-hour care trial alongside a
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Update: Patrick has pneumonia again and the ICU team is working hard to get rid of the infection. Your support helps Patrick continue to be strong. He is very thankful for the kind messages.
Pat will be watching the Behan Strong Exhibition game organized by
@Bucknell_MBB
and
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Patrick Behan is currently the head boys basketball coach at St. John’s College HS DC. In May ‘22, he was diagnosed with ALS. We need your help to fight this disease.
•
#ALS
#PunchBack4Pat
#ALSawareness
#whateverittakes
#icebucketchallenge
#challengeALS
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Pat had a nice visit by some of his former players last night. They watched some of the SJC game together. Thank you guys for visiting
@CoachBehanSJC
! 🤍
#CadetFamily
#BehanStrong
#EndALS
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Congratulations to
@SJCBoysHoops
for a great win last night! It was Pat’s first time back at the SJC gym this season. 🏀
#PunchBack4Pat
#EndALS
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Today is Pat’s birthday! 🎂 To celebrate his birthday, we are hosting a flash fundraiser. Please help us wish Pat a happy birthday by sharing his story and/or donating!
#PunchBack4Pat
#EndALS
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Wishing Pat safe travels as he heads back up to Boston for his 10th treatment of Tofersen.
#PunchBack4Pat
#EndALS
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Patrick’s feeding tube was fully clogged for 24 hours until this morning. He was not able to get any feedings or medications during that time. This caused him to be awake throughout the night as he can’t fall asleep on his own.
After many attempts to unclog it, his primary care
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Congrats to the St. John’s Cadets on winning the 2023 WCAC Championship 65-63 over Paul VI!
#punchback4pat
#behanstrong
#ALS
#ALSawareness
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We want to congratulate Pat on being named the WCAC Coach of the Year! During his battle with ALS he has continued to love and coach his team with the same passion that he always has. Tonight St. John’s will play Gonzaga in the WCAC Semifinals at 6:15pm at American University!
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On May 6, 2022, Pat received his official diagnosis. Three months later he informed his team at St. John’s. He then went on to help lead them to a WCAC championship in an epic final game against Paul VI.
Over the last 13 months there have been highs and lows. But there
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Pat currently remains in the George Washington University Hospital ICU. His mind remains sharp and his spirits high large in-part to the outpouring support, but these latest complications are taking a physical toll. However, the physical pain and mental
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Feeling good in the neighborhood. Pat was able to get some much needed fresh air. It’s been two months between the extensive hospital stay and multiple bouts with infections at home.
#BehanStrong
#EndALS
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Pat and Matt want to thank St. John’s, guests, sponsors, donors, vendors and the Behan Strong family for the love that was brought to the Party at Pat’s. Last night 177k was raised for Pat and Matt’s medical costs. Keep
#punchback4pat
and thank you for a night to remember!
#ALS
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Thank you to Coach McKay for stopping by yesterday as he and
@ClemsonMBB
arrived in DC for the ACC Tournament 🏀
#BehanStrong
#EndALS
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Congratulations to Pat’s former player Mekhi Long on the big win tonight!
#BehanStrong
#EndALS
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Thank you to everyone who has donated! In our first week, we have been able to fundraise $29,484 to help
#punchback4pat
in his fight against ALS. Today, Pat received treatment at Mass General Hospital in Boston. He thanks you for all the support!
#ALS
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Here is a message from Pat to everyone that has been supporting him throughout his fight against
#ALS
.
#punchback4pat
@PeteThamel
@momfrates
@iamalsorg
@lexybb
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The world got to see Pat’s story this morning on ESPN! We want to thank the amazing team behind Pat: his coaches, players, caregivers, doctors, therapists, administration, friends and family.
#endALS
In cased you missed it, check it out this evening on the 11pm SportsCenter!
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If you are thinking about helping a cause today, please consider helping
@CoachBehanSJC
. Pat has dedicated his life to giving back to the community as a basketball coach and mentor of many young men. Pat is now in need of the community to support him in his fight against ALS.
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Last evening
@CoachBehanSJC
took in a
@RedSox
victory at Nationals Park, with an awesome view from behind home plate. The
@Nationals
put forth an appreciated gesture, recognizing Pat and his battle during the game. This was met with a very supportive applause from the crowd.
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Thank you
@AdamKilgoreWP
for writing, ‘I’m still your coach’. See how you can help Pat fight ALS today, by visiting the website in bio.
@alsassociation
@iamalsorg
@CoachBehanSJC
@lexybb
@nbcwashington
@washingtonpost
@PeteThamel
@PeteFrates3
@momfrates
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A message from Pat’s favorite basketball player. Thank you
@ReggieMillerTNT
for the sweet message to
@CoachBehanSJC
and for joining the fight! 🏀🧡
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Check out SportsCenter Sunday morning for a special feature on Pat & St. John’s!
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The 2nd Annual Fun(d) Fest was a huge success! Just over $41,000 was raised to help
#PunchBack4Pat
.
Pat and the Behan Strong team cannot thank everyone enough that attended, volunteered or donated. The outpouring of support was truly amazing.
Here is a shot of Pat from the
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Thank you to everyone who attended the Behan Strong Invitational last night. Thank you to SJC for hosting this event and to all the schools that participated, to all the volunteers, and to our sponsors who donated their time to make this event possible.
#BehanStrong
#EndALS
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Wishing Pat a successful and productive trip to Boston as he continues his treatments. Also, a very big thank you to the director of Pat’s operations Ryan Gifford and the staff of the Healey Center for ALS at
@MassGenBrigham
. Ryan and many others at MGH continue to
#PunchBack4Pat
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This week Pat travels to the Healey Center at Massachusetts General Hospital in Boston for Qalsody and clinic.
What does it take for Pat and other ALS patients to travel for treatment? It takes patience, support and love to navigate the many hardships that ALS brings—many of
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The Behan Strong family would like to wish a Happy Easter and Passover to all those that observe. We hope you have the opportunity to enjoy the holidays with your loved ones.
#endALS
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Pat will now be co-authoring a
@CaringBridge
account. Along with our existing Behan Strong media accounts, Pat’s new journal will give you more insight into his daily life and emphasize the reality of his ALS battle. Leave a message of support, help
#PunchBack4Pat
with a
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Congratulations to
@CaseyMorsell
and
@PackMensBball
on an amazing run to win the ACC Tournament Championship and secure a trip to the Big Dance. Pat watched every game proudly. 🏀
#BehanStrong
#EndALS
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SportsCenter Feature | Nothing Else Matters
A story of Coach Pat Behan & the boys basketball team at St. John’s College High School in Washington, DC
__________________
A big thanks to
@PeteThamel
&
@snacksnolen
with ESPN!
#endALS
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Pat is still receiving Physical Therapy multiple times a week. PT is only one cost of the many accrued throughout his battle. The financial burden will continue to grow.
The 2nd Annual Fun(d) Fest on September 16th is one of Behan Strong’s biggest fundraisers of the year. Every
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Behan Strong Community, we want to update you that Pat has started his Radicava treatment. We want to thank the team
@synapticure
and
@MassGeneralMDs
for their unwavering support in assisting Pat to obtain Radicava!
#punchback4pat
#ALS
#alsawareness
@SJCBoysHoops
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A big congratulations to Pat as he was honored at the Wizards game last night as the DMV coach of the year!
#punchback4pat
#ALSawareness
#ALS
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Join us for a fundraising event on September 17th! Bounce house, family friendly games, college football streaming, silent auction, adult corn-hole tournament & food trucks! RSVP:
•
#ALS
#PunchBack4Pat
#ALSawareness
#whateverittakes
#icebucketchallenge
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We want to start the week by thanking everyone that has supported Pat and has made him feel loved.
Pat’s birthday is October 6, and in order to continue to help
#PunchBack4Pat
we will be hosting a flash fundraiser on the date.
Each day leading up to Pat’s birthday, we will
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Today, Pat and others with ALS were honored by the Washington Nationals. Pat was joined by two friends from the BehanStrong team. They got the chance to meet with others impacted by ALS. It was a great reminder that the community backing those with ALS is passionate and deep.
#ALS
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We want to wish Coach O’Connor
@oconnor_pat
and the SJC Boys Basketball Team
@SJCBoysHoops
good luck as their season begins today. We also want to remember Coach Artie Bryant who was a dear friend to Pat. He is greatly missed.
#CadetsFamily
#BehanStrong
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A big thank you to
@Bucknell_MBB
for hosting Behan Strong night at their home game vs Niagara! Over $1,000 was raised at the game yesterday.
#punchback4pat
#ALSawareness
#ALS
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This past season the St. John’s basketball team and Pat have had their journey followed by ESPN. This Sunday, March 26th ESPN will air their story for the world to see. Stay tuned for more details later this week!
#behanstrong
#punchback4pat
#als
#alsawareness
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Thank you
@JohnGriffinIII
for always supporting
@CoachBehanSJC
! Congratulations on the win!
#BehanStrong
#EndALS
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The Behan Strong Invitational had 3 fantastic games with the nightcap being an outstanding win for St. John's over IMG Academy 80-73 in OT. Pat and the Cadets have moved up to
#8
in the national rankings.
The event raised over 23,000 for Pat's fight against ALS!
#punchback4pat
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We want to thank Coach Davis and the Sherwood community for hosting today’s Behan Strong Baseball Game. This weekend the Sherwood community raised $2,076 for Pat in his fight against ALS. The players and staff were honored to have Pat in attendance at today’s game!
#endALS
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Did you know in Pat’s junior year with the Bison he started in all 30 games averaging 13.8 points per game and 6.8 rebounds per game? Help
#punchbackforpat
by donating or purchasing merchandise from the link in bio. All proceeds go directly to Pat in his fight against ALS.
#ALS
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The yearly cost of care for people living with ALS is estimated to be $250,000.
@CoachBehanSJC
caregiving costs are about $25,000/month. Donation funds are running low and he needs your help. Please consider donating or purchasing items from his Amazon list to help him continue
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A successful trip to the zoo for Pat’s birthday. Thanks to
@ComCareALS
for taking care of the transportation and making this trip possible! Please consider donating to Pat so he can continue fighting against ALS. 🤍
#EndALS
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Where is your pumpkin Wednesday! Tag us in your pumpkin picking posts so Pat can see them! 🎃
#Pumpkins4Pat
#EndALS
Thank you to everyone who donated and/or shared his story during Pat’s birthday weekend. Pat enjoyed his birthday with a visit to the zoo and the grocery store,
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Congratulations to
@CoachBehanSJC
as the Washington Post All Met coach of the year along with Donnie Freeman & Malik Mack getting first team honors!
#endALS
#washingtonpost
Winter 2022-23 All-Mets
BOYS’ BASKETBALL
Player of the Year: DeShawn Harris-Smith of
@PVIHoops
See the First Team, Second Team, Third Team, Fourth Team and Honorable Mention:
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The 2nd Annual Fun(d) Fest will have something for everyone, highlighted by our cornhole tournament during the day and concert in the evening.
Cornhole per person is a $50 entry ($100 per team). $25 will get you into the show in the evening, with a $60 VIP option that includes
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We have big news coming soon in regards to an awesome Behan Strong event that will take place in Olney, MD on Saturday, September 16th 2023.
Proceeds raised will go to Pat’s battle against ALS. Stay tuned!
#PunchBackforPat
#EndALS
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We want to finish the year with a big congratulations to Pat and the St. John’s basketball team for winning the 2022 Holiday Classic at Torrey Pines!
Thank you the Behan Strong family in less than 5 months we have had over 800 donations and over $210,000 raised! Happy New Year!
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Update!
-SJC boys basketball team is off to a 5-0 start after playing in the National Hoop Fest & are
#18
in country in the Fab50 rankings
-Pat traveled to Boston this week for treatments of Toferson. He has completed his 2nd round of Radicava & is on his 2nd month of Relyvrio
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Aside from Pat’s love of sports, he also loves animals! His favorite animals are manatees and beavers but prefers to have dogs as pets! 🐶
Pat grew up having dogs throughout his childhood and adopted his dog Murph, a few years back! Pat and Murph were inseparable. Murph was his
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Reminder that at about 3:30pm be sure to tune for “Nothing Else Matters” on ESPN’s College GameDay. If there any updates we will post to our social media platforms.
#endALS
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Patrick’s ALS journey has touched the lives of many. We have received messages from former students, parents, friends, and people that have just learned about him. They all have one thing in common, that Patrick has impacted their lives in one way or another and that they have
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Today we want to extend our thoughts and prayers to the family of Stephen Wilson, St. John’s ‘14. Today at 2pm there will be a Celebration of Life service in the Fitzpatrick Library at St. John’s. Stephen was a valued member of the SJC basketball community as both a player and
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The basketball community continues to show amazing support for Pat. Last night, Pat enjoyed a night of friendship, talking life, hoops and more with some of his closest friends and terrific coaches in the game. Thank you to those who planned and organized the dinner!
#ALSawareness
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In case you missed it, congratulations to
@CoachBehanSJC
and
@SJCBoysHoops
on their resiliency in winning the WCAC Championship! As we continue to celebrate this championship, get your tickets for the Party at Pat’s! See link in bio for 🎟️
Photos
@hugoshots
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“SC Featured” Producer Alexandra Nolen Reflects On Bond She Built With Coach Patrick Behan
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The
@WashWizards
will be wearing Behan Strong warm up shirts tomorrow 1/20. These shirts will be auctioned with all proceeds going to Compassionate Care ALS (CCALS).
#EndALS
Link to bid:
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Behan Strong weekend hosted by St. John’s College High School was a huge success. Over $10,000 was raised in support in Pat’s fight against ALS. Thank you SJC for the continued support!
#ALS
#punchback4pat
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Pat and Behan Strong would like to thank Alfred Macatuno, the General Manager of Mobility Works in Alexandria, VA, for arranging transportation services last week.
It was because of Alfred, and Pat’s driver, Dwight, that he was able to get to the ALS Clinic at Georgetown
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Aside from the physical and mental toll, the financial costs of a battle with ALS are unrelenting. Right now, Pat’s bare needs surpass $10,000 a week.
Please join us at the Olney Boy’s and Girl’s Club in Olney, MD on Saturday, September 16, to help offset some of these costs as
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St. John’s and Pat roll into tonights Semifinal matchup as the
#1
seed in the DCSAA playoffs. They will play Jackson-Reed at 9 pm in McDonough Gym on the campus of Georgetown University. Good luck to Pat and the Cadets as they hunt another championship.
Photo credit
@alineimgs
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We want to thank the coaches, managers, and players of the 2023 Girls WCAC Champions, St. John’s Cadets, for their generous purchase of a sponsorship for the Party at Pat’s!
#punchback4pat
#ALSawareness
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Congratulations to Pat and the St. John’s Cadets on an incredible season. The Cadets finish 32-4, WCAC Champs, Cadet Classic Champs and Torrey Pines Holiday Classic Champs.
We have a small amount of tickets left for the Party at Pat’s. Get yours today with link in bio!
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Yesterday was the last day of ALS Awareness Month but ALS never stops for the people living with it and their families. Please join us in saying thank you to everyone who has shared their ALS story and to Pat for letting us support him on this journey. We love you.
#ENDALS
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Check out ESPN2 this Sunday @ 7pm!
Last year,
@CoachBehanSJC
was diagnosed w/ALS & given a year to live
Sunday, in honor of
#ALSAwarenessMonth
,
#SCFeatured
shares his quest to win in the country's most competitive high school basketball league
🏀 Nothing Else Matters | 7p ET | ESPN2
🔗
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Pat enjoyed his weekend trip to Columbus as he took in the action from the Horseshoe in Ohio State’s season opening win against Notre Dame!
#punchback4pat
#ALSawareness
#ALS
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Help Pat celebrate is 35th birthday today by donating $35! Link in bio.
#ALSawareness
#ALS
•
0
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Patrick looks forward to picking the best looking pumpkin every Fall. His favorite place to pick them is at the grocery store. However, he has had to compromise and go to a pumpkin patch before!
Keeping the tradition going, this year we will take a trip to the grocery store,
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Thank you to the
@warriors
&
@StephenCurry30
for donating a signed framed photograph for the silent auction! We really appreciate the support. Who will be at OBGC Park on September 17th to help
#punchback4pat
? See bio more info!
•
#ALS
#ALSawareness
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Patrick’s love for writing and sports developed at a very young age. This led Patrick to develop a passion for sportswriting and to major in English.
Pat spent his junior and senior year at Bucknell writing a behind the scenes blog for the New York Times. He also covered John
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Thank you
@Cuse_MBB
for supporting
@CoachBehanSJC
! To help Pat in his fight against ALS please donate, share his story, or purchase items from his Amazon list for his daily care.
#EndALS
GoFund:
Amazon list:
We are proud to support Coach Pat Behan in his battle with ALS. To learn more about Pat's story and how you can support, please visit .
#PunchBack4Pat
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@SJCBoysHoops
is playing at
@PVIHoops
and both teams are wearing Behan Strong shirts in honor of
@CoachBehanSJC
. Thank you to both teams for the support and to Coach Farello for asking the crowd to wave at the camera for Pat to see. Two great teams. One big basketball family. 🏀
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Today we want to highlight one of our ALS Warriors, Matt Kurkjian. Matt has been fighting ALS for two years. Saturday night, his brother, Tim Kurkjian, gave a powerful speech on Matt and the impact that he continues to make in this world.
#als
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Happy Father’s Day to all the dads out there, as well as those that are no longer with us.
Today we remember Jerry Behan, Pat’s father, who passed from ALS in 2020. ALS has ravaged the Behan family-Pat, who carries the fast progressing SOD1 gene, is the tenth known family
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Although Pat’s mobility has been challenging, he is still working on being active. Thank you to coach
@cupham21
for his help!
#ALS
#ALSawareness
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**Update**
ESPN Feature may go on air closer to 10:30am vs 8:00am
May '22,
@CoachBehanSJC
was diagnosed with ALS & given a year to live
Sunday,
#SCFeatured
shares his story as he looks to win his 1st championship in the country's most competitive high school basketball league
'Nothing Else Matters' | 8a ET
@SportsCenter
| ESPN
@SJCAthletics
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