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Autoimmune Chat

@AutoimmuneChat

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Following
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A patient led initiative bringing autoimmune patients together to share experiences, support and raise disease awareness. Join our #autoimmunechat community

Joined February 2022
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@mssociety
National MS Society
1 year
A cure for MS is synonymous with infinite possibility — whether it means increased mobility, an end to MS anxiety, or simply waking up in the morning pain-free. What does a cure mean to you?
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@MSawarenessIndy
@msawarenessindy ♿️ ♻️🎗️
1 year
Chronic Illness #TopicOfTheDay - OBESITY -
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@LupusEurope
Lupus Europe
1 year
🌍 More than 200,000 people live with #lupus in Europe. 🚨 Some #SLE patients have physical disabilities due to the impact of symptoms like fatigue, joint pain, & organ involvement, that could make daily life and work challenging. #WorldDisabilityDay #IDPWD
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@GetYourBellyOut
#GetYourBellyOut
1 year
ABOUT CROHN'S DISEASE & ULCERATIVE COLITIS #Crohns Disease & Ulcerative #Colitis are the two main forms of Inflammatory Bowel Disease (IBD) and are not to be confused with Irritable Bowel Syndrome (IBS). For example, Irritable Bowel Syndrome (IBS) does not produce the
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@StenHelmfrid
Sten Helmfrid 🇺🇦 🇬🇱
1 year
Some critics have cartooned #MECFS as alternate science. Did you know that there have been more than 6,000 papers on ME/CFS published in peer reviewed journals and that one current and one previous member of the OMF Scientific Advisory Board are Nobel laureates? #MEAwarenessHour
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@AutoimmuneChat
Autoimmune Chat
2 years
This is my cat Ninja. She is a quirky loving little girl who always makes me laugh & helped me when I was grieving Don's loss. She is a Hope for Romanian Strays rescue who I adopted when she was 6months old, she's also lived in 3 countries. She hates pigeons
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@AutoimmuneChat
Autoimmune Chat
2 years
This is Don who sadly passed in January at the age of 21. He was an amazing once-in-a-lifetime cat - very chilled, loving & full of character. He had IBD. I adopted him when he was 8 years old from the RSPCA. He lived in 3 countries, travelled on 2 airplanes & the Eurotunnel
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@AutoimmuneChat
Autoimmune Chat
2 years
Today is #InternationalCatDay! My cats have been a huge support particularly when I've had bad days. They have made me laugh when I was crying, comforted me when I was depressed & made sure I never felt lonely. Share your cat photo's & stories! More info on my cats 🧵
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@AutoimmuneChat
Autoimmune Chat
2 years
A little Monday joy from @theAleppoCatmen
@theAleppoCatmen
Ernesto’s Sanctuary for Syrian Cats
2 years
Something beautiful to enjoy and share today . Here Ernesto’s babies today 😚
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@AutoimmuneChat
Autoimmune Chat
2 years
I think positive thinking can only go so far. Just as important is being kind to yourself. If you need a sofa day or if you need an "eat-as-much-chocolate-as-I-can" day it's ok. Life with an autoimmune disease is not a short battle - it's a long war #autoimmunedisease
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@AutoimmuneChat
Autoimmune Chat
2 years
no amount of positive thinking will help. I also said it's ok to have a bad day & sometimes you do need to wallow in a bad mood. Because sometimes it can just all be too much knowing the problems will not go away (no positive thinking does not cure disease) ...🧵
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@AutoimmuneChat
Autoimmune Chat
2 years
I had a slight run-in with a friend over the weekend around the power of positive thinking. I was having a really bad day & I'd admitted as much. She started talking about the power of positive thinking. I replied that sometimes you just have bad days ...🧵
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@DecodeMEstudy
DecodeME the ME/CFS Study
2 years
*TRIGGER WARNING* Last night, Action for ME CEO Sonya spoke to BBC News Scotland’s The Nine programme about the impact of ME and the need to accelerate research. Sonya appears from 10 minutes in, watch here: https://t.co/O2MA3Ixxnh
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@MSawarenessIndy
@msawarenessindy ♿️ ♻️🎗️
2 years
So true.
@smmdmm
smmdmm
2 years
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@LupusResearch
Lupus Research
2 years
El lupus es una enfermedad autoinmunitaria crónica y compleja. Los síntomas más comunes son cansancio extremo, erupción malar, inflamación de las articulaciones y fiebre sin causa aparente. Obtenga más información: https://t.co/5woVyu3Q7j #LupusEnEspañol
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@MSawarenessIndy
@msawarenessindy ♿️ ♻️🎗️
2 years
Chronic Illness #TermOfTheDay - COGNITIVE HEALTH - Source: https://t.co/CESZejoBgS
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@AutoimmuneList
Autoimmune List
2 years
The relationship between autoimmune disorders and intracranial aneurysms in East Asian and European populations: a bidirectional and multivariable two-sample Mendelian randomization study
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@AutoimmuneChat
Autoimmune Chat
2 years
Can you imagine having a disease where there is no treatment, no hope, little help and tons of misunderstanding? That's the reality of #ME #MECFS #autoimmunedisease
@CaroleBruce17
Carole Bruce
2 years
“I exist but I don’t live and this condition has become unbearable to me and has been for a long time now, to the point where I want to end my life.” #ME #MyalgicE #MedTwitter
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@PsoriasisUK
Psoriasis Association
2 years
Being diagnosed with #PsoriaticArthritis can be confusing and worrying. For someone who has just been diagnosed, it may raise a lot of questions about the condition. Do you have any advice you can share? Drop your tips below.
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@AutoimmuneChat
Autoimmune Chat
2 years
The injustice in terms of money spent on #pwME as well as autoimmune disease in general is appalling. We need change. We need people to care. #MECFS #DecodeME
@DecodeMEstudy
DecodeME the ME/CFS Study
2 years
DecodeME Investigator, Chris Ponting, talks to BBC Radio Scotland about DecodeME, what is ME? and the need for funding around ME research. Go to 24:52 https://t.co/WTrZUxrlOw to hear his interview. #DecodeME #MECFS #pwME
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