Autoimmune Chat
@AutoimmuneChat
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A patient led initiative bringing autoimmune patients together to share experiences, support and raise disease awareness. Join our #autoimmunechat community
Joined February 2022
A cure for MS is synonymous with infinite possibility — whether it means increased mobility, an end to MS anxiety, or simply waking up in the morning pain-free. What does a cure mean to you?
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🌍 More than 200,000 people live with #lupus in Europe. 🚨 Some #SLE patients have physical disabilities due to the impact of symptoms like fatigue, joint pain, & organ involvement, that could make daily life and work challenging. #WorldDisabilityDay
#IDPWD
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Some critics have cartooned #MECFS as alternate science. Did you know that there have been more than 6,000 papers on ME/CFS published in peer reviewed journals and that one current and one previous member of the OMF Scientific Advisory Board are Nobel laureates? #MEAwarenessHour
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This is my cat Ninja. She is a quirky loving little girl who always makes me laugh & helped me when I was grieving Don's loss. She is a Hope for Romanian Strays rescue who I adopted when she was 6months old, she's also lived in 3 countries. She hates pigeons
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This is Don who sadly passed in January at the age of 21. He was an amazing once-in-a-lifetime cat - very chilled, loving & full of character. He had IBD. I adopted him when he was 8 years old from the RSPCA. He lived in 3 countries, travelled on 2 airplanes & the Eurotunnel
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Today is #InternationalCatDay! My cats have been a huge support particularly when I've had bad days. They have made me laugh when I was crying, comforted me when I was depressed & made sure I never felt lonely. Share your cat photo's & stories! More info on my cats 🧵
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A little Monday joy from @theAleppoCatmen
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I think positive thinking can only go so far. Just as important is being kind to yourself. If you need a sofa day or if you need an "eat-as-much-chocolate-as-I-can" day it's ok. Life with an autoimmune disease is not a short battle - it's a long war #autoimmunedisease
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no amount of positive thinking will help. I also said it's ok to have a bad day & sometimes you do need to wallow in a bad mood. Because sometimes it can just all be too much knowing the problems will not go away (no positive thinking does not cure disease) ...🧵
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I had a slight run-in with a friend over the weekend around the power of positive thinking. I was having a really bad day & I'd admitted as much. She started talking about the power of positive thinking. I replied that sometimes you just have bad days ...🧵
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*TRIGGER WARNING* Last night, Action for ME CEO Sonya spoke to BBC News Scotland’s The Nine programme about the impact of ME and the need to accelerate research. Sonya appears from 10 minutes in, watch here: https://t.co/O2MA3Ixxnh
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So true.
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El lupus es una enfermedad autoinmunitaria crónica y compleja. Los síntomas más comunes son cansancio extremo, erupción malar, inflamación de las articulaciones y fiebre sin causa aparente. Obtenga más información: https://t.co/5woVyu3Q7j
#LupusEnEspañol
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The relationship between autoimmune disorders and intracranial aneurysms in East Asian and European populations: a bidirectional and multivariable two-sample Mendelian randomization study
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Can you imagine having a disease where there is no treatment, no hope, little help and tons of misunderstanding? That's the reality of #ME
#MECFS #autoimmunedisease
“I exist but I don’t live and this condition has become unbearable to me and has been for a long time now, to the point where I want to end my life.” #ME #MyalgicE #MedTwitter
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Being diagnosed with #PsoriaticArthritis can be confusing and worrying. For someone who has just been diagnosed, it may raise a lot of questions about the condition. Do you have any advice you can share? Drop your tips below.
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The injustice in terms of money spent on #pwME as well as autoimmune disease in general is appalling. We need change. We need people to care. #MECFS #DecodeME
DecodeME Investigator, Chris Ponting, talks to BBC Radio Scotland about DecodeME, what is ME? and the need for funding around ME research. Go to 24:52 https://t.co/WTrZUxrlOw to hear his interview. #DecodeME #MECFS #pwME
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