Acromegaly Community
@AcroCommunity
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Please visit our website at https://t.co/T0gLxcf98w. Membership, info & support always free!
Grove, OK
Joined September 2009
The 340B Program’s rapid expansion has been linked to insurance premium increases of $22 billion a year, costing families $415/year. This was never the goal. @SenMullin please support #340BReform to restore integrity & reinvest savings in care.
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•@LAGovJeffLandry, Louisiana patients need reform that tackles the root cause of high drug costs: PBMs’ profits tied to inflated prices. We need to bring transparency and fairness to the system to lower out of pocket costs for patients. #LALeg.
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Large healthcare entities say the 340B Program wasn’t meant to lower patient costs, yet they pocket millions while vulnerable patients are left behind. @SenMullin please help to #Fix340B.
help.senate.gov
WASHINGTON – Today, U.S. Senator Bill Cassidy, M.D. (R-LA), chair of the Senate Health, Education, Labor, and Pensions (HELP) Committee, released a...
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The #MFN rule won’t help Medicaid patients. No cost savings, just less access & lost innovation. We need reform that works. The #EPICAct is the right path for patients. @RepGusBilirakis @DrNealDunnFL2 @SenAshleyMoody @SenBillCassidy @SenatorWicker @SenMullin.
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The #IRA’s “pill penalty” is undermining innovation in pills and tablets, medicines that 90% of Americans rely on. @CongresswomanSC @RepTroyCarter @BennieGThompson @repkevinhern please support the #EPICAct.
weworkforhealth.org
Small-molecule drug investment has fallen 68%—and 74% for diseases mainly affecting Medicare patients—since the IRA was introducedFOR IMMEDIATE RELEASEApril 14, 2025 WASHINGTON, D.C. – New research...
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Small-molecule medicines treat cancer, heart disease & more, but they face harmful obstacles under the "pill penalty.". Patients deserve better. @VernBuchanan @RepGregSteube @repkevinhern, please stand up for health access and innovation. Support the #EPICAct to protect patients.
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90% of U.S. prescriptions are pills. The “pill penalty” puts those at risk, leading to fewer treatments and less access. @VernBuchanan @RepGregSteube @repkevinhern, please support the bipartisan #EPICAct to fix this harmful penalty.
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Patients shouldn’t have to pay more while middlemen profit. Congress must include #PBMReform in the year-end healthcare package @RepGusBilirakis @VernBuchanan @Kat_Cammack @USRepKCastor @DrNealDunnFL2 @RepDarrenSoto @RepGregSteube @repkevinhern.
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Pharmacy benefit managers control 80% of insured drug transactions in the U.S. #PBMReform is needed to hold PBMs accountable. @repkevinhern.
ohiocapitaljournal.com
Drug transactions are controlled by middlemen who are owned by huge health conglomerates that also own big insurers. And a new report says that those companies often list hundreds of different prices...
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Pharmacy benefit managers list hundreds of prices for the same drug, some that are 51 times as much as others. It's time for #PBMReform @repkevinhern.
ohiocapitaljournal.com
Drug transactions are controlled by middlemen who are owned by huge health conglomerates that also own big insurers. And a new report says that those companies often list hundreds of different prices...
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RT @Crinetics: On #AcromegalyAwarenessDay, we collectively raise awareness and offer hope to the acromegaly community. At Crinetics, we’r….
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The Acromegaly Community: An international haven for people living with acromegaly #RareRevolution.
rarerevolutionmagazine.com
Acromegaly Community is an international haven for people living with acromegaly, comprising over 3,800 patients from around the world
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RT @MariaFleseriu: Free SharedIt link:.Read our collab international review led by @DrDanielaEspo. #Complications i….
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RT @EBGeerMD: Superb talk by @gadelha_monica! Next up is @martin_reincke and Mark Gurnell for HCP. #patients meet with @CSRFnet and @AcroCo….
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RT @EBGeerMD: One week away - still time to sign up! @MSK_DeptOfMed @MSKCancerCenter @gadelha_monica @martin_reincke @AcroCommunity @CSRFnet.
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RT @HenryFordNeuro: Consider joining our virtual #pituitary support group featuring @jakeeide1 . @AcroCommunity.@pituitaryorg.@PituitarySoc….
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RT @EBGeerMD: We have a superb line up - @martin_reincke @gadelha_monica and Mark Gurnell will be joining us, mark your calendars !@MSK_Dep….
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RT @CheckRare: Patrick Lewis, PharmD, Senior Director, Medical Affairs at Amryt Pharma provides an overview of acromegaly and why diagnosti….
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RT @CheckRare: In the quest for an effective and convenient acromegaly treatment option, Crinetics Pharmaceuticals has developed paltusotin….
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Congress can pass meaningful #PBM reform right now. Delinking drug prices from PBM income and requiring rebate pass through to patients will lower out-of-pocket patient costs. @SenMullin @repkevinhern #S1542 #S2474 #HR5376.
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