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ASH Research Collaborative Profile
ASH Research Collaborative

@ASHCollab

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Non-profit organization established by @ASH_Hematology to improve the lives of people affected by blood diseases and accelerate progress in #hematology.

Washington, DC
Joined June 2019
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@ASHCollab
ASH Research Collaborative
3 days
Every clinical trial has rigorous checks and balances to keep participants safe, but what does that look like? Learn safeguards and processes that protect individuals throughout SCD research: https://t.co/Hb7rszKceB #SickleCell #ClinicalTrials #ResearchSafety #ConquerSCD
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@ASHCollab
ASH Research Collaborative
6 days
From EHR-based #SickleCell phenotyping to real world voxelotor outcomes, today’s #ASH25 abstracts from the ASH Research Collaborative offer fresh insights into improving care of patients. Explore the studies: https://t.co/gpe8BSHRev #Hematology
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@ASHCollab
ASH Research Collaborative
7 days
This evening at #ASH25, the ASH Research Collaborative highlights tech driven research and community engagement, from AI kidney disease prediction to clinical trial literacy. Check them out from 6 PM to 8 PM! https://t.co/Xlml5O4g3D #AI #Hematology #MMsm #ClinicalTrials
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@ASHCollab
ASH Research Collaborative
7 days
Don’t miss the ASH Research Collaborative’s special interest session at #ASH25, spotlighting how real-world data is being applied in multiple myeloma to support regulatory work. https://t.co/0TKRzc7Ter #MMsm #Hematology
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@ASHCollab
ASH Research Collaborative
8 days
ASH RC is improving research to build a brighter future for people with hematologic conditions. Don't miss more #ASH25 abstract presentations today! #ConquerSCD #SickleCell #MMsm #Hematology
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@ASHCollab
ASH Research Collaborative
8 days
Join the ASH RC for a special interest session on real-world data in sickle cell disease. Learn how targeted cohort studies reveal new trends, inform care strategies, and drive innovative research approaches. https://t.co/3GAqhxlv4y #ConquerSCD #SickleCell #Hematology #ASH25
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@ASHCollab
ASH Research Collaborative
8 days
Which #ASH25 abstract presentations are you most excited to see today? The ASH RC is sharing new real-world data on myeloma, kidney health, & sickle cell disease. Discover what's shaping the field! https://t.co/VjDtUWk6vl #ConquerSCD #SickleCell #MMsm #Hematology #Thrombosis
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@ASHCollab
ASH Research Collaborative
9 days
#ASH25 is here and 10 accepted abstracts from the ASH RC will be presented! The research highlights kidney health in #SickleCell disease, treatment outcomes and high-risk disease in multiple myeloma, and more. https://t.co/G8AQ5QYJKI #ConquerSCD #MMsm
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@ASHCollab
ASH Research Collaborative
11 days
How does #SickleCell disease (SCD) research help to reduce bias in care and treatment? This new ASH RC video, developed in partnership with NCAB members, highlights how inclusive, community-driven research can build trust and improve outcomes. 🎥 https://t.co/yX6rcUnvGu
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@ASHCollab
ASH Research Collaborative
23 days
New videos just dropped on the ASH RC Clinical Trials E-Library! Our NCAB working group helped bring these resources to life, from scripting to character development, to make SCD research easier to understand and more accessible to all. Watch now: https://t.co/Bo73yPGW2p
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@ASHCollab
ASH Research Collaborative
2 months
Joining a clinical trial is your decision. You can choose to participate or not, and you can change your mind at any time — your rights and privacy are always protected. Learn more from the clinical trials resource: https://t.co/MDKpKkwyxO #Research #Hematology #HemeOnc
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@ASHCollab
ASH Research Collaborative
2 months
How can #RealWorldEvidence drive innovation in #SickleCell Disease? A new @BloodPortfolio manuscript details the evolving role of the ASH RC Data Hub as a strategic registry network—backed by curation & QC processes. 🔍 Explore the data:  https://t.co/luXWaL5Dw8 #RWE
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@ASHCollab
ASH Research Collaborative
2 months
Curious about how your data is protected in clinical trials? Learn what safeguards are in place, from de-identifying information to ethical oversight, so you can participate in research with confidence. Visit the clinical trials resource library today: https://t.co/CQpQ0ZFnpN
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@ASHCollab
ASH Research Collaborative
3 months
Clinical trials help researchers test new ways to diagnose and treat SCD, and your participation may give you access to innovative therapies not yet available to the public. Learn more: https://t.co/yYjePZp7vg #ClinicalTrials #Hematology #NationalSickleCellAwareness Month
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@ASHCollab
ASH Research Collaborative
3 months
NEW: ASH RC released the Living with Sickle Cell Disease (SCD) Data Hub Report, reflecting the experience of13,000+ individuals living with SCD Read the report: https://t.co/PtETb5t6Ev #SickleCell #ConquerSCD #SickleCellAwarenessMonth
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@ASHCollab
ASH Research Collaborative
6 months
Now available: the 2025 Sickle Cell Disease Data Hub Report — the first report from the ASH RC’s SCD Data Hub Program. These data, based on real world data, lay the foundation for future research, policy, and improved care for the SCD community. 🔗 https://t.co/XZT4zLmMXi
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@ASHCollab
ASH Research Collaborative
6 months
Looking for Spanish-language resources on #SickleCell clinical trials? The Clinical Trials Resource Library offers trusted education created with the community to help you navigate research. 🔗 https://t.co/eTyKGfyfQL #Hematology
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@ASHCollab
ASH Research Collaborative
6 months
¿Buscas recursos en español sobre ensayos clínicos en la enfermedad de células falciformes? La Biblioteca de Recursos sobre Ensayos Clínicos ofrece educación confiable creada con la comunidad para ayudarte a comprender la investigación. 🔗 https://t.co/nDdkSVvnIw
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@ASHCollab
ASH Research Collaborative
7 months
💡 Trusted info. Real voices. Easy-to-follow videos–-also in Spanish. The Clinical Trials Resource Library is your starting point for the #SickleCell disease, curated by ASH RC National Community Advisory Board. Learn more: ➡️ https://t.co/FYTZ7ivGce #Hematology
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@ASHCollab
ASH Research Collaborative
7 months
La Biblioteca de Recursos sobre Ensayos Clínicos es tu punto de partida para aprender sobre la enfermedad de células falciformes, curada por el Comité Asesor Nacional Comunitario del ASH RC. 🔗 https://t.co/KxNhiYswrz
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