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@APFEDorg

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American Partnership for Eosinophilic Disorders, APFED. 501(c)3 org dedicated to patients and their families coping with Eosinophilic Disorders.

Atlanta, Georgia
Joined July 2009
Don't wanna be here? Send us removal request.
@APFEDorg
APFED.org
10 months
APFED is partnering with "Viewpoint with Dennis Quaid" to spotlight #EoE in a segment airing nationwide! Clips of the full segment will air tonight on Fox Business Network at ~6:30pmET. Watch here: https://t.co/b88b2qhWbB. The segment will also air on other stations this year.
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@APFEDorg
APFED.org
1 day
❓ Friday Check-In: What’s one strategy you’ve learned that makes doctor visits less stressful or more productive? 💙 Comment below—we’d love to hear your strategies and ideas. #FridayCheckIn #EosAware #ChronicIllnessCommunity #SupportNetwork #RareDisease #LivingWithEos #APFED
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@APFEDorg
APFED.org
2 days
Ready to rally your squad for a great cause? This Giving Tuesday, launch your own APFED fundraiser! We've got the how-to guide and graphics waiting for you:  https://t.co/LPdVLomy88  ❤️   #GivingTuesday #APFED
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@APFEDorg
APFED.org
3 days
Register for our webinar on “Hypereosinophilic Syndromes and Your Heart” w/ Dr. Zimmerman: https://t.co/0JqZU6owQz. Join us 11/18 @ 12:30PM ET to learn how eosinophils can affect the heart + why this matters for understanding/managing HES.
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@APFEDorg
APFED.org
3 days
This holiday season, gift NY Islanders tickets for January 24th and support APFED's mission to advance eosinophilic disease research. Proceeds from ticket sales will be donated to APFED.👉 To purchase tickets, visit https://t.co/Jbdjf8c0w1 #APFED #EosAwareness #NYIslanders
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@APFEDorg
APFED.org
4 days
APFED’s nationwide #EoEOnTheMove campaign is rolling across Boston, Chicago & Orlando—raising awareness about eosinophilic esophagitis (#EoE) and its symptoms. 📸 Spot an ad? Share it with #EoEOnTheMove! 🔗  https://t.co/aRhTkXD758
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@APFEDorg
APFED.org
4 days
Need help managing the cost os treatment or daily needs with eosinophilic disease? APFED's Assistance Programs & Resources page offers support for medications, travel, food, and more. You're not alone—help is available. https://t.co/nZE2VtKpbU #APFED #EosAware
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@APFEDorg
APFED.org
5 days
💙 Parenting a child with EoE can feel overwhelming, but you’re not alone. Join the APFED Connect: EoE Family Support Network, a virtual group for parents and caregivers to share, learn, and connect. 💬 🔗  https://t.co/69Qj2QSacV #EoE #EosAware #APFEDConnect #ParentSupport
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@APFEDorg
APFED.org
5 days
We're gaining momentum! APFED set a goal to raise $100,000 by December 31st, and thanks to our incredible community, we've already raised $40,003! Make your contribution today at https://t.co/O3EUYue6VB #EosinophilicDiseases #APFED #ResearchMatters #CommunityStrong
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@APFEDorg
APFED.org
8 days
This week we’ve been unmasking eosinophil-associated diseases (EADs). 👻 Don’t ghost your symptoms—awareness is powerful! Wishing everyone a safe, fun, & awareness-filled Halloween from APFED 🎃 🔗 https://t.co/hd2OOg5uK9 #EosAware #APFED #UnmaskEADs
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@APFEDorg
APFED.org
8 days
🚫 Myth: Eosinophilic fasciitis (EF) is the same as scleroderma. ✅ Fact: While EF can look similar to scleroderma, it’s a distinct condition where eosinophils cause inflammation and thickening of the fascia (the tissue around muscles). #EosAware #EosinophilicFasciitis #APFED
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@APFEDorg
APFED.org
9 days
🔬Check out APFED's October Research Roundup: • EoE & the Atopic March • Dexpramipexole & Eosinophilic Asthma • COPD (Eosinophilic Phenotype) • Benralizumab Rare Eos Disorders • Could Vaccines Teach the Immune System to Tolerate Allergens? 🔗 Read: https://t.co/snGHwv0iLk
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@APFEDorg
APFED.org
9 days
🧙‍♀️ Muscle stiffness, swelling, skin that feels tight? These could be signs of eosinophilic fasciitis (EF), a rare condition that affects connective tissue. No potion can fix it, but awareness and early care can help. 👉 https://t.co/BniSU0bd5J #EosAware #UnmaskEADs #APFED
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@APFEDorg
APFED.org
10 days
If you've held stocks for more than a year that have increased in value, donating them directly to APFED may provide greater tax benefits. Visit our Ways to Give page, and click on Stocks from the drop-down menu. https://t.co/DgfmurIQ8R #StrategicGiving #APFED #MakeImpact
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@APFEDorg
APFED.org
10 days
When you share your experience with diagnosis, treatment, and daily management, you remind others they're not alone in this fight. What part of your story could inspire someone today? Share your story today at https://t.co/R3AYW9ddR2 #APFED #EosinophilicAsthma #PatientVoices
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@APFEDorg
APFED.org
10 days
👹 Stomach cramps, vomiting & unexplained weight loss could signal Eosinophilic gastrointestinal Disease (EGID). Don’t stay in the dark—talk to your doctor. 🔗  https://t.co/DpicRT8Y6Y #EGE #EosAware #APFED #UnmaskEADs
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@APFEDorg
APFED.org
10 days
We're excited to release our latest podcast episode: "TSLP and EoE: Exploring the Science Behind a Potential Treatment Target" w/ Andrew Lee, MD. Listen at https://t.co/QAfnzGGDV4 and subscribe to our podcast at Amazon Music, Audible, Spotify, + more. #EoE #APFEDPodcast #EosAware
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@APFEDorg
APFED.org
11 days
🧛‍♂️ Fatigue, rashes, and heart or breathing issues leaving you feeling drained? These could signal hypereosinophilic syndrome (HES), where too many eosinophils harm the body. Learn more & act early. 🔗 https://t.co/W9POH76wdM #HES #EosAware #APFED #UnmaskEADs
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@APFEDorg
APFED.org
12 days
The recording of last week's webinar on "Understanding Eosinophilic Fasciitis: Diagnosis, Challenges & Care" is now available at https://t.co/XAFY1SOj1Q and on YouTube https://t.co/wHEDBQPCUy.
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@APFEDorg
APFED.org
12 days
👻 Chest pain, food getting stuck, nausea...sounds scary, right? These “spooky” symptoms could be signs of eosinophilic esophagitis (EoE). If you notice them, don’t ghost your doctor—get checked. 🔗 https://t.co/3oixt7KDJV #EoE #EosAware #EosinophilicEsophagitis #UnmaskingEADs
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@APFEDorg
APFED.org
12 days
Imagine if your online shopping could help a child eat without pain. Through iGive, it can. Here's how: 🧾Set up an account 🖱️Choose APFED as your cause to support 🛍️Start shopping It's that easy! Visit https://t.co/hF4H02BKfF to start your holiday shopping today. #APFED
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