APARDO
@APARDO_official
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Asia Pacific Alliance of Rare Disease Organisations (APARDO) is a non-profit organisation consisting of patient advocate leaders from across the APAC.
Singapore
Joined October 2019
Registrations for the APARDO Conference 2025 will close on 25 November, 2025! Don't miss out! Public registration: https://t.co/MpRhkNYouj *Members and event sponsors, please check your emails for your exclusive links For more info: https://t.co/iPat6YwzPN
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Regional leadership, global solidarity. The Southeast Asia Rare Disease Policy Forum convened leaders from across ASEAN and beyond to translate the global rare disease resolution into regional action.
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A meaningful step forward for the region! Read the full article on the Southeast Asia Rare Disease Policy Forum 2025 to dive deeper into the key outcomes 👇
linkedin.com
At the recently concluded Southeast Asia Rare Disease Policy Forum 2025, countries reaffirmed that rare diseases are not only a medical issue but a public policy and systems priority. Chaired by...
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Registration is still open for the APARDO Conference 2025! Secure your spot and join rare disease leaders from across Asia-Pacific this November in Indonesia. Public registration: https://t.co/Nc0JrAwtye Event details: https://t.co/iPat6Yx7Fl
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The APARDO Conference 2025 Countdown begins! We'll be bringing together patient advocates, policymakers, and industry partners to explore solutions across multiple pillars & build actionable roadmaps 📅 Nov 28-30, 2025 📍 Jakarta, Indonesia More Info: https://t.co/iPat6Yx7Fl
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Inviting the rare disease community to participate and share your experience and insights in this global forum organised by Alexion, AstraZeneca Rare Disease. 📅 Date: 23 September 2025 🕖 Time: 7PM SGT & 11:30PM 🔗 https://t.co/wcJ9EZcv5E
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Caring for a loved one can be both rewarding and overwhelming—and you're not alone. Join us this 30 May, 2025 for The Caregiver’s Journey, a special webinar created to support and empower caregivers. 📅 Dates: 30 May 2025, 5:30PM (SGT) 🔗 https://t.co/tXRZwXjZnv
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As we kick off the conference #APARDO2024 in a few days We’re thrilled to welcome Dr. Irene Lorinda Indalao of Indonesia’s Ministry of Health as an honored guest, alongside an incredible lineup of leaders driving change in their region. #RareDisease #PatientAdvocacy
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📅 Only 10 days to go until #APARDO2024 in Manila! We’re honored to welcome Dr. Teodoro Herbosa, Dr. Jose Gerard Belimac, Dato' Dr. Mohd Azman bin Yacob, and Mrs. Hansa Thaisri as our distinguished guests. Join us as we unite for #RareDisease advocacy in the Asia-Pacific! 🌏
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✨APARDO Conference 2024 is Around the Corner! We’ve got exciting sessions and expert speakers lined up, plus amazing opportunities to connect and share knowledge. 📅 Dates: November 22-24, 2024 More info: https://t.co/dZC1TKwVZS
#APARDO2024 #RareDisease #PatientAdvocacy
apardo.org
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🚀 Excited to announce the APARDO Annual Conference 2024! Join us from November 22-24 at Dusit Thani Manila, Philippines. Connect, collaborate, and drive change in patient advocacy across Asia. More info: https://t.co/dZC1TKwVZS
#APARDO2024 #RareDisease #PatientAdvocacy
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Boehringer Ingelheim is organising a wonderful opportunity to further the dialogue on patient organization involvement in improving patient health outcome. Regional Rare Disease Access to Care Forum 2024 (Virtual via Zoom) Registration link: https://t.co/wqsSc1UAoo
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📢 Join APARDO in driving change for rare diseases in the Asia Pacific! We're looking for an Executive Director to spearhead strategic initiatives, amplify advocacy efforts, and strengthen our network. #RareDisease For more info, please head over to: https://t.co/R4vufhuWnH
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Excited for another day at the APARDO Conference in Kuala Lumpur, Malaysia!
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The APARDO Conference 2023 Day 1 is underway! We look forward to a day filled with insightful sessions, discussions, and netwotking opportunities
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📢 Registrations closing soon! Find out more about our conference and how to register for it on our website: https://t.co/yEH2IGOjO2
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We're excited to be heading to Kuala Lumpur, Malaysia for our Annual Conference! 🗓️ 24-26 November 2023 Have you registered? Check out our website for more information: https://t.co/yEH2IGNLYu
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Our surveys are open to everyone! Your participation will help shape the direction of our initiatives and contribute to the improvement of rare disease care and support in the region. Surveys will be up until 13 November 2023. Link below 👇 https://t.co/7bn9jIhUsX
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We hope to see you at our upcoming webinar on Gene and Cell Therapy We'll be looking into the current landscape of gene and cell therapies, how can we go about implementing these therapies in health systems, and the advocacy role within. Register here: https://t.co/4QQXEdbJvc
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Happening Today! Gene and Cell Therapy: From Discovery to Delivery 🗓️ Date: July 7 2023 🕘 Time: 9AM (SGT) https://t.co/VtuQG1bl1q
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