
ANNetwork
@ANN_AusNZ
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The Australasian Neuromuscular Network is a collaboration of professionals striving to help people affected by neuromuscular disorders in Australia and NZ
Joined June 2015
It's the first poster session @PNSociety1 and our #ANN members are presenting their research @DonlevyGabe BIA in #CMT & @Physio_Rachel #PhysicalActivity and #exercise in #CMT #PNS2024
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The last research presentation session of the #ANN2024 Congress covering #respiratory #mentalhealth and #sleep dysfunction, #gait in DMD, #glucose monitoring in #SMA, stress & glucose intolerance in mdx mice & respiratory function in #SMA 2&3.Bravo all 👏🏻👏🏻👏🏻
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Valedictory presentation from Prof @BurnsSyd at #ANN2024 Congress. Australia is not really losing you to @StJude896 .Your hugely impactful research will continue to benefit the international community of children, young people and adults with CMT and NMD. Excited for next steps!
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Embedding functional research in the clinical environment @RCHMelbourne #paediatric #Neuromuscular Clinic.#gait #function #falls.Kate Carroll, @katydv_physio Justine Adams @Physio_Rachel . Strengths and challenges of clinician initiated research. so much data. so little time.
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National Muscle Disease Bio-databank. clinicians and scientists collaborating from around Australia. working with patient advocacy groups, patients and families @MCRI_for_kids
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An update from across the pond from @MiriamNZNMD . NZ Neuro genetic Registry and Biobank. registry translating to clinical trials and access to treatments! 👏🏻👏🏻👏🏻 @AucklandUni
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RT @sophiemanoy: Vital importance for access to genetic counselling for families with children with #SMA exampled by embedding genetic coun….
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The first @WorldMuscleSoc sponsored #ECR session. Congratulations @DonlevyGabe @katydv_physio @CaraTimpani @iheartleopard 👏🏻👏🏻👏🏻👏🏻
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New paradigm of care in #paediatric #SMA patients. car seat positioning with @RCHMelbourne OT Ash Cruz, genetic counselling with Pauline McGrath @childhealthqld, nutritional Mx in era of DMT @Katie_OBee and emergency care plans with Dr Anita Cairns @childhealthqld
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A morning discussing care in adults with #Neuromuscular disease. respiratory, cardiac and obstetric care. importance of #multidisciplinary care across all talks
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Dr Conrad Chris Weihl @LabWeihl from @uwsomwwami is our keynote speaker discussing clinical trial readiness in LGMD. Take home message "Genetic test companies classify variants, clinicians interpret genetic variants"
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Welcome to Melbourne #ANN2024 and what a glorious autumnal Melbourne morning. The ANN Congress is go!.Stay tuned for all the latest breaking. @WorldMuscleSoc many thanks for sponsoring 12 #ECR who are attending and presenting their research.
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T -4 days to go!!! #ANNCongress2024.See you in Melbourne, Monday May 27th 8am Sheraton Ball Room .Australasian Neuromuscular Network Congress 2024 🧬💪🏻
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@MCRI_for_kids @RCHMelbourne @UniMelbMDHS @MonashUni @StVincentsMelb please share with your E/MCRs 🙏.
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