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ALS Canada Profile
ALS Canada

@ALSCanada

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We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for a world free of ALS.

Ontario, Canada
Joined February 2009
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@ALSCanada
ALS Canada
10 months
Today, ALS Canada celebrates a monumental advocacy achievement: the Ontario Government's commitment of $13 million over three years in the 2024 Fall Economic Statement to support the Ontario Provincial ALS Program. To the ALS community, thank you. Together, we did this. This
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@ALSCanada
ALS Canada
2 days
“After our mom’s passing, Chris and I set out to do whatever we could to fight this disease. Other than continuing to raise money and contribute to research, I hope that the ALS story for our family is over.” .Read Dave’s full blog today, visit
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@ALSCanada
ALS Canada
3 days
Missed the ALS Canada: Driving and ALS webinar? .We’ve got you covered! Head over to our YouTube channel to watch the recording and hear from ALS Canada and Sunnybrook Health Sciences Centre. Catch the full recording now on our YouTube channel:
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@ALSCanada
ALS Canada
3 days
Real progress deserves real recognition. Join us in thanking the Ontario government for supporting people living with ALS. If you live in Ontario, join our letter-writing campaign to the Premier and Minister of Health. Together, we can show the ALS community is paying attention
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@ALSCanada
ALS Canada
7 days
🔎 Ever wondered how potential ALS therapies are investigated? Why do clinical trials take so long? Or even — can I trust this off-label therapy?. In the latest edition of Inside the Science, we break down the complex journey of a potential ALS therapy, clinical trial phases and
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@ALSCanada
ALS Canada
8 days
Do you have questions about #ALS research 🙋? We got you. Join us on Wednesday, August 20, at 1:00 pm ET for ALS Research and Clinical Trials 101 Q&A Drop-in, a monthly session where you can have your questions addressed, chat with peers, meet the ALS Canada Research Team, and
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@ALSCanada
ALS Canada
8 days
Do you want to make a difference today by urging your Member of Parliament to prioritize the needs of the #ALS community? Visit our website and simply enter your name, e-mail address, and postal code, and a pre-written letter outlining the key priorities of the ALS community will
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@ALSCanada
ALS Canada
8 days
“In 2021, the same year Allan was diagnosed, our children created the team “Al’s Pals” and joined the inaugural Revolution Ride. What started as a gesture of love has grown into a powerful tradition. Today, I’m proud to be part of the Revolution Ride planning committee, helping
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@ALSCanada
ALS Canada
11 days
The ALS community advocated for years to have standardized, equitable access to care, community services and equipment in Ontario. In 2024, the provincial government responded with an investment in the Ontario Provincial ALS Program. Now, it’s time to say thank you. If you live
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@ALSCanada
ALS Canada
14 days
🔬 Catch up on what’s currently happening in #ALS research! In the August 2025 Research Update, explore new insights into clinical trials, environmental factors, tracking progression, and ALS genetics. Read the full blog: #ALSresearch
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@ALSCanada
ALS Canada
15 days
Have you unlocked the first-class experience at the 2025 ALS Canada #PullToEndALS? 🌟 Teams must raise more than $10,000 in Toronto or $8,000 in Simcoe County at least two weeks before each event to hit VIP status – making an already great event day even better! Kick-start your
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@ALSCanada
ALS Canada
16 days
⏰ There is still time to register for the ALS Canada: Driving & ALS Webinar on August 13 at 1:00 pm ET. Join ALS Canada and Sunnybrook Health Sciences Centre to learn about the impact of ALS on driving ability, adaptive driving equipment, how an ALS diagnosis may affect
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@ALSCanada
ALS Canada
16 days
🏃🏃‍♀️ Attention all Toronto-area runners! There is still time to register for the Constantine Yorkville Run. Join #TeamALS and run in the 2025 Yorkville Run on September 7, 2025! To registr today visit, #TeamALS #aWorldFreeOfALS
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@ALSCanada
ALS Canada
21 days
Interested in advocating for the #ALS community to your Member of Parliament? Utilize ALS Canada’s national letter-writing campaign to send a letter to your MP today to highlight the urgency of ALS research investments. Ensure ALS stays on the radar of your MP, learn more at
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@ALSCanada
ALS Canada
24 days
💻 Register today for the ALS Canada: Driving & ALS Webinar on August 13 at 1:00 pm ET. Join ALS Canada and Sunnybrook Health Sciences Centre to learn about the impact of ALS on driving ability, adaptive driving equipment, how an ALS diagnosis may affect insurance, and
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@ALSCanada
ALS Canada
28 days
The start of a fresh mandate following the recent federal election means many opportunities to engage with Members of Parliament and build relationships. ALS Canada is excited to launch a federal letter-writing campaign, “Welcome to Parliament: A Message from Canada’s ALS
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@ALSCanada
ALS Canada
29 days
“One of the reasons why I’m so involved in ALS advocacy is because my grandpa and my dad’s main priority was always protecting and taking care of family. By getting involved in initiatives with the goal of ending or effectively treating ALS, ultimately, I feel I’m helping to
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@ALSCanada
ALS Canada
30 days
How is Canada influencing the global fight against ALS? What are some initiatives and meetings shaping the future of ALS research? . From international roundtables to national research meetings, the ALS Canada Research Team is driving progress at every level. The July edition of
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@ALSCanada
ALS Canada
1 month
Catch up on ALS Canada’s advocacy efforts during the second quarter of 2025, including reconvening the Parliamentary ALS Caucus, launching a new advocacy resource and driving government recognition of June as ALS Awareness Month. Dive into our latest Advocacy Update to learn
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@ALSCanada
ALS Canada
1 month
“ALS can feel incredibly isolating, but I’ve found strength in community. Support groups have connected me with other people who understand. I’ve also found purpose: joining ALS Canada’s Board of Directors and participating in fundraisers like the ALS Canada Revolution Ride.”
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@ALSCanada
ALS Canada
1 month
What could Canada do with $50 million to transform ALS research? . That bold question set the tone at the National ALS Research Summit, hosted by ALS Canada. Researchers, clinicians, people affected by ALS, and ALS organizations came together in person to envision a national
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