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ALS Assoc. Indiana Profile
ALS Assoc. Indiana

@ALSAIndiana

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To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

Indianapolis, Indiana
Joined October 2011
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@ALSAIndiana
ALS Assoc. Indiana
3 years
Join ALSA Indiana for the upcoming Powerful Tools for Caregivers course! The first class is February 8th at 1pm EST via Zoom. To register, please contact Chelsea Richards at chelsea.richards@als.org or 317-767-1407. Can’t wait to see you there! #ALS #caregiver #selfcare
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@ALSAIndiana
ALS Assoc. Indiana
3 years
For more information about how to manage breathing for individuals with ALS, check out our seminar here ➡️ https://t.co/DxeYWs4gOE #ALS #whateverittakes #ItTakesAllofUs #healthcare #respiratory #airway
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@ALSAIndiana
ALS Assoc. Indiana
3 years
#ALS can cause people to have difficulty breathing and keeping their airways clear. Here are 3 of the essentials for maintaining airway clearance in individuals with ALS 👇 🔺 Protect the airway from aspirating 🔺 Maintain adequate cough 🔺 Measuring airway clearance ability
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@ALSAIndiana
ALS Assoc. Indiana
3 years
ICYMI: In October, a man from Indianapolis biked 100 miles to raise money and awareness about Hoosiers living with #ALS. Learn more about his incredible journey and how his #fundraising efforts changed the lives of folks living with ALS 👉 https://t.co/IK14jAaEWR #ItTakesAllofUs
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@ALSAIndiana
ALS Assoc. Indiana
3 years
For many, #driving is a necessity for maintaining independence and financial security. Unfortunately, diseases like #ALS can affect a person’s ability to safely operate a vehicle. Check out our article for more info ➡️ https://t.co/v5qEpH5ADu #ItTakesAllofUs #disability
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@ALSAIndiana
ALS Assoc. Indiana
3 years
We have a lot of great things planned for this year! We can’t wait to connect as a community and work together to support those living with ALS and fund #research to cure #ALS! Keep up to date with our calendar here: https://t.co/cPsqVwLlSd #ItTakesAllofUs #ALSwalk
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@ALSAIndiana
ALS Assoc. Indiana
3 years
There are several therapy options to support #respiratory and ventilation functions for folks living with #ALS, include ⬇️ 🔹 BiPAP 🔹 Bi-Level 🔹 Non-invasive ventilation 🔹 Tracheostomy 🔹 Portable ventilator 🔹 Multi-Function ventilator More info ➡️ https://t.co/DxeYWs4gOE
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@ALSAIndiana
ALS Assoc. Indiana
3 years
If you’re a caregiver to someone living with ALS, consider checking out our #Caregiver Education Course! Learn how to #support the specialized needs of people living with #ALS and develop greater confidence in your caregiver responsibilities. Enroll here: https://t.co/8uSASoqST2
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@ALSAIndiana
ALS Assoc. Indiana
3 years
Many patients are concerned about the high annual cost of #Relyvrio, a new drug that can help slow the progression of #ALS. Learn more about how patients are navigating the healthcare system to access this critical #medication 👉 https://t.co/s6bt39njDv #ItTakesAllofUs #medical
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@ALSAIndiana
ALS Assoc. Indiana
3 years
If you or your family are in need of #medicalequipment, check out our equipment loan closet! We can offer donated and durable medical equipment to families in need. For more info, contact us at connie@alsindiana.org. #ALS #whateverittakes #ItTakesAllofUs #donations
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@ALSAIndiana
ALS Assoc. Indiana
3 years
The Lawrence and Isabel Barnett Drug Development Program is an exciting funding source that allows us to fund ALS-related research projects for preclinical trials. Read more ➡️ https://t.co/Bq71zGD8K2 #ALS #whateverittakes #ItTakesAllofUs #STEM #scienceresearch #sciencefunding
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@ALSAIndiana
ALS Assoc. Indiana
3 years
What age does ALS start? 🤔 Most people who develop ALS are between the ages of 40 and 70, with 55 being the average age of diagnosis. Learn more here ➡️ https://t.co/nMyb4WCZFc #ALS #whateverittakes #ItTakesAllofUs #genetictesting #ALSquestions
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@ALSAIndiana
ALS Assoc. Indiana
3 years
If you’re seeking guidance on your journey with #ALS - or information to help care for someone with ALS - consider joining one of our local support groups! ❤️ Join today 👉 https://t.co/za7Dip91HR #whateverittakes #ItTakesAllofUs #PALS #caretakers #supportgroup #mentalhealth
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@ALSAIndiana
ALS Assoc. Indiana
3 years
Check out this blog for more information about the genetics of ALS and if you or your family is at risk of ALS ➡️ https://t.co/3TLyDBT0Zq #genetictesting #ALSquestions
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@ALSAIndiana
ALS Assoc. Indiana
3 years
While #ALS can be genetically passed down, about 90-95% of ALS cases occur in individuals with no family history of ALS. For some individuals, ALS is caused by a gene mutation that can be passed down genetically or occur sporadically. #whateverittakes #ItTakesAllofUs
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@ALSAIndiana
ALS Assoc. Indiana
3 years
Looking for some fun, wheelchair-accessible destinations across Indianapolis? Check out this list from accessibleGO for a list of fun, ALS-friendly activities 👉 https://t.co/k86THRhviD #ALS #whateverittakes #accessible #accessibility #wheelchair
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@ALSAIndiana
ALS Assoc. Indiana
3 years
The US department of #Veteran Affairs has approved to cover RELYVRIO, the new drug recently approved by the FDA to treat ALS. #Veterans living with #ALS will now have access to RELYVRIO through their VA benefits. Read more here ➡️ https://t.co/PR9txngqPY #whateverittakes
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@ALSAIndiana
ALS Assoc. Indiana
3 years
Early #symptoms of ALS can look different for everyone. Here are a few of the common early signs of ALS 👇 ✳️ Muscle weakness ✳️ Fine motor issues ✳️ Change in vocal pitch ✳️ Difficulty swallowing Learn more here 👉 https://t.co/CW4yVudgJx #ALS whateverittakes #ItTakesAllofUs
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@ALSAIndiana
ALS Assoc. Indiana
3 years
Your donations help us fund critical research to find a cure for ALS and support those living with ALS across Indiana. Consider making an end of year donation today ➡️ https://t.co/D3V7eNASmP #ALS #whateverittakes #ItTakesAllofUs #research #medicalresearch
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@ALSAIndiana
ALS Assoc. Indiana
3 years
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