Dr. Alison Bateman-House
@ABatemanHouse
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History & ethics of research on humans. Access to investigational meds. Public health is political. Retweet not endorsement. NYU Grossman SOM Medical Ethics
New York
Joined August 2014
Re PGTME’s 11/19/25 LLS event, on Communication, Data Sharing, & reporting: panelist Rachel McMinn is Founder & CEO of https://t.co/FiaOGFXjLU & sibling of an individual with an undiagnosed genetic disease
neurogene.com
Neurogene is focused on developing life-changing genetic medicines for patients & families affected by rare, devastating neurological diseases.
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Re PGTME’s 11/19/25 LLS event, on Communication, Data Sharing, & Reporting: panelist Erin Ward (& others) formed the MTM-CNM Family Connection. Message to sponsors: in her community’s experience, communication stopped when trials halted; avoid this!
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Re PGTME’s 11/19/25 LLS event on “Communication, Data Sharing, & Reporting” Tim: aren’t there other forces (SEC, FDA requirements?) countering the push for open data? McMinn: not so much systemic barriers but reluctance to disclose as a part of corporate culture
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Pretty sure this is not what the Founding Fathers were dreaming of
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A return to the policies of old…Medical conditions like obesity & diabetes can now impact US Visa decisions - Asaase Radio
asaaseradio.com
A new U.S. visa policy allows medical conditions like obesity, cancer, and diabetes to influence approval decisions, raising concerns about
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🚨The Trump administration is turning drug review into make-a-deal https://t.co/RGV6kfh1Xh via @statnews
statnews.com
“FDA decision-making may be reduced to a sequence of ‘make-a-deals’ with Trump, his FDA, or even political allies,” experts warn.
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🚨The Trump administration is turning drug review into make-a-deal https://t.co/RGV6kfh1Xh via @statnews
statnews.com
“FDA decision-making may be reduced to a sequence of ‘make-a-deals’ with Trump, his FDA, or even political allies,” experts warn.
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A return to the policies of old…Medical conditions like obesity & diabetes can now impact US Visa decisions - Asaase Radio
asaaseradio.com
A new U.S. visa policy allows medical conditions like obesity, cancer, and diabetes to influence approval decisions, raising concerns about
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Will DMD patients turn down treatment because of this requirement? @PharmaPinkSheet's @PinkSheetSutter explains: Sarepta’s Elevidys Post-Infusion Proximity Stay Is Lengthy For Gene Therapies
insights.citeline.com
The labeling recommendation that Duchenne muscular dystrophy patients should maintain proximity to an appropriate healthcare facility for at least two months following infusion will add to the...
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Why men are flocking to dubious online clinics for testosterone therapy https://t.co/uzUTWuccka via @statnews
statnews.com
The proliferation of online testosterone sites is a sign of the health care system’s lack of regard for male sexual hormones and their role in health
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Starting now! If you miss this live, it & all events from the week will be archived on PGTME’s YouTube channel
youtube.com
The mission of the Working Group on Pediatric Gene Therapy and Medical Ethics is to advance research, policy, and education regarding ethical issues surrounding gene therapy trials. We seek to...
Tomorrow, Fri 11/21/25–the final day of PGTME’s annual lecture series-is dedicated to a topic we normally don’t talk about, the economics of gene & cell therapies. MIT professor @AndrewWLo is an engaging speaker who’s thought deeply about the cost of developing new drugs
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Today!!!
Tomorrow, Fri 11/21/25–the final day of PGTME’s annual lecture series-is dedicated to a topic we normally don’t talk about, the economics of gene & cell therapies. MIT professor @AndrewWLo is an engaging speaker who’s thought deeply about the cost of developing new drugs
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I’m a doctor who has seen people die from vaccine-preventable diseases. What parents need to hear right now is vaccines for measles, polio, hepatitis B and other childhood diseases are safe and effective and will not cause autism. Any statement to the contrary is wrong,
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Tomorrow, Fri 11/21/25–the final day of PGTME’s annual lecture series-is dedicated to a topic we normally don’t talk about, the economics of gene & cell therapies. MIT professor @AndrewWLo is an engaging speaker who’s thought deeply about the cost of developing new drugs
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As funding falters, young brain scientists rethink careers in research : Shots - Health News : NPR
npr.org
Research on brain disorders may slow as young neuroscientists struggle to find jobs and research grants.
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We found what you’re asking ChatGPT about health. A doctor scored its answers.
washingtonpost.com
Asking a doctor to review 12 real examples of ChatGPT giving health advice revealed patterns that can help you get more out of the AI chatbot.
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“During their partnership n office, Trump &Kennedy have raised suspicions re the safety of childhood vaccines, assailed Tylenol as a potential cause of autism, & canceled funding for mRNA vaccines, the biotechnology breakthrough that pulled America out of the Covid-19 pandemic…”
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Pretty sure this is not what the Founding Fathers were dreaming of
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Re PGTME’s 11/19/25 LLS event on “Communication, Data Sharing, & Reporting” Tim: aren’t there other forces (SEC, FDA requirements?) countering the push for open data? McMinn: not so much systemic barriers but reluctance to disclose as a part of corporate culture
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Re PGTME’s 11/19/25 LLS event, on Communication, Data Sharing, & Reporting: panelist Erin Ward (& others) formed the MTM-CNM Family Connection. Message to sponsors: in her community’s experience, communication stopped when trials halted; avoid this!
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