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The Lily Foundation Profile
The Lily Foundation

@4Lilyfoundation

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Following
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The UK's leading mitochondrial disease charity. We support patients & families, raise awareness & fund pioneering research to find treatments & a cure

London
Joined October 2009
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@4Lilyfoundation
The Lily Foundation
3 months
10 years ago, The Lily Foundation stood at the heart of the campaign to legalise #mitochondrialdonation. Today, research confirms it’s working, giving families the chance to have healthy, genetically related children πŸ’— Read more and please share! https://t.co/2fp9DK5IuE
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@4Lilyfoundation
The Lily Foundation
2 days
πŸ‘οΈToday is World Sight Day – and we’re proud to reshare some incredible news for the mito community. Idebenone is now available for patients with LHON – a breakthrough that could help preserve vision and improve lives. πŸ“– Read Mary’s story to learn more: https://t.co/M0hN3PAIas
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@4Lilyfoundation
The Lily Foundation
5 days
πŸ”¬ Supporting medical research into mitochondrial disease is at the heart of our mission. πŸ‘‰ Explore our current research projects: https://t.co/jSUbHQbYW8 πŸ‘‰ Discover our past research projects: https://t.co/jSUbHQbYW8 Together, we’re driving hope through science. πŸ’š
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@4Lilyfoundation
The Lily Foundation
10 days
Happy International Coffee Day! βœ¨β˜• β€œThe Lily Coffee mornings are the highlight of my week…” - Amy, 28 If you’d like to be part of these wonderful mornings, just drop an email to Janet@thelilyfoundation.org.uk to get involved! ❀️
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@4Lilyfoundation
The Lily Foundation
16 days
Throwback Thursday!πŸ‘€ Today we're throwing it back to our unforgettable Adult Support Weekend β€” and what a weekend it was! Swipe through these fabulous photos to relive some of the highlights β€” we hope they bring a smile to your face just like they do for us. 😊
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@4Lilyfoundation
The Lily Foundation
20 days
It’s not too late to do your bit for World Mitochondrial Disease Awareness Week! πŸ’š Did you know... Symptoms of mito include loss of muscle coordination, seizures, loss of vision and/or hearing, and organ failure Please share to show you care: πŸ”— https://t.co/QRYTGdM7TK
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@4Lilyfoundation
The Lily Foundation
21 days
πŸ’‘ Tonight, landmarks across the UK will glow green for Light Up for Mito Thank you to everyone who made this happen – you’re all doing your bit to help put mito on the map this World Mitochondrial Disease Week! πŸ’š It's not too late to play your part: https://t.co/U2l9KsdOQF
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@4Lilyfoundation
The Lily Foundation
21 days
It’s not too late to get involved in World Mitochondrial Disease Awareness Week! πŸ’š All week, we’re shouting loud about mitochondrial disease – raising awareness, sharing stories and putting mito on the map all over the UK. πŸ‘‰ Find out more: πŸ”— https://t.co/QRYTGdM7TK
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@4Lilyfoundation
The Lily Foundation
22 days
World Mitochondrial Disease Week is reaching its peak Did you know there is still no cure for mito? We're fighting to change this and have invested over Β£3 million in pioneering research since 2007. πŸ‘‰ Here's how you can continue to support usπŸ’š πŸ”— https://t.co/QRYTGdM7TK
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@4Lilyfoundation
The Lily Foundation
23 days
πŸ’šShare to show you care this World Mitochondrial Disease Awareness Week! πŸ’š All week we’re shouting loud about mitochondrial disease – raising awareness, sharing stories and putting mito on the map. πŸ‘‰ See how you can help: πŸ”— https://t.co/QRYTGdM7TK #worldmitoweek2025
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@4Lilyfoundation
The Lily Foundation
24 days
πŸ’š It’s World Mitochondrial Disease Week! πŸ’š This week, we’re shouting loud about #mitochondrialdisease – raising awareness, sharing stories and putting mito on the map. πŸ‘‰ See how you can get involved: https://t.co/U2l9KsdOQF #worldmitoweek2025 #mitoonthemap #mitoaware
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@4Lilyfoundation
The Lily Foundation
25 days
It’s here – World Mitochondrial Disease Awareness Week! πŸ’š Every share helps raise awareness and brings us closer to better treatments, more support and a cure. Let’s make some noise for the mito community! πŸ’ͺ πŸ‘‰ Get involved: πŸ”— https://t.co/QRYTGdM7TK #worldmitoweek2025
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@4Lilyfoundation
The Lily Foundation
26 days
It’s here – World Mitochondrial Disease Awareness Week! Let’s make some noise for the mito community! πŸ‘‰ See how you can get involved: πŸ”— https://t.co/QRYTGdM7TK
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@4Lilyfoundation
The Lily Foundation
27 days
πŸ’šβœ¨ It’s nearly here… World Mitochondrial Disease Week starts TOMORROW! βœ¨πŸ’š This is our moment to come together and put mito on the map – but we need your help! 🌍 Are you in? πŸ™Œ https://t.co/tvXNUwWEzW
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@4Lilyfoundation
The Lily Foundation
1 month
Today is #TK2dTuesday Learn more about thymidine kinase 2 deficiency (TK2d) and support those affected. https://t.co/SRkY1utz0k #mitochondrialdisease #TK2dAwareness
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@4Lilyfoundation
The Lily Foundation
1 month
#LilyFoundation are joining together with the global #mito community to raise awareness of Thymidine kinase 2 deficiency (TK2d), an ultra rare #mitochondrialdisease Find out more: https://t.co/SRkY1utz0k #TK2dTuesday #muscleweakness #mito #TK2dAwareness
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@4Lilyfoundation
The Lily Foundation
1 month
Thymidine kinase 2 deficiency (TK2d) is an ultra rare #mitochondrialdisease Find out more: https://t.co/SRkY1utz0k #TK2dTuesday #muscleweakness #mito #TK2dAwareness
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@4Lilyfoundation
The Lily Foundation
1 month
Today is TK2d Awareness Day TK2d is a rare form of mitochondrial disease By advocating for patients, we're helping to drive vital progress towards a potential treatment Read more https://t.co/MCR6MgZZTG #TK2dawarenessday #thelilyfoundation #mitochondrialdisease #mitoonthemap
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@4Lilyfoundation
The Lily Foundation
1 month
This month is Dystonia Awareness Month.πŸ’œ Throughout the month, we’ll be sharing facts and information to help raise awareness, spread understanding. Knowledge is power β€” and together, we can shine a light on this often misunderstood condition πŸ’‘
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@4Lilyfoundation
The Lily Foundation
1 month
This is NOT a drill! 🚨 World Mitochondrial Disease Week is just ONE WEEK AWAY!! Have you made your plans to get involved? Let’s stand together and shine a light on mitochondrial disease. πŸ‘‰ Find out how to get involved here: https://t.co/U2l9KsdOQF
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@4Lilyfoundation
The Lily Foundation
1 month
πŸ’š Be a part of something amazing πŸ’š Light Up for Mito – Saturday 20th September Want to light up a local landmark? We’ve got a ready-to-go email template to help! https://t.co/U2l9KsdOQF
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