
The Lily Foundation
@4Lilyfoundation
Followers
4K
Following
18K
Media
11K
Statuses
23K
The UK's leading mitochondrial disease charity. We support patients & families, raise awareness & fund pioneering research to find treatments & a cure
London
Joined October 2009
10 years ago, The Lily Foundation stood at the heart of the campaign to legalise #mitochondrialdonation. Today, research confirms itβs working, giving families the chance to have healthy, genetically related children π Read more and please share! https://t.co/2fp9DK5IuE
1
2
8
ποΈToday is World Sight Day β and weβre proud to reshare some incredible news for the mito community. Idebenone is now available for patients with LHON β a breakthrough that could help preserve vision and improve lives. π Read Maryβs story to learn more: https://t.co/M0hN3PAIas
0
0
1
π¬ Supporting medical research into mitochondrial disease is at the heart of our mission. π Explore our current research projects: https://t.co/jSUbHQbYW8 π Discover our past research projects: https://t.co/jSUbHQbYW8 Together, weβre driving hope through science. π
0
0
2
Happy International Coffee Day! β¨β βThe Lily Coffee mornings are the highlight of my weekβ¦β - Amy, 28 If youβd like to be part of these wonderful mornings, just drop an email to Janet@thelilyfoundation.org.uk to get involved! β€οΈ
0
0
0
Throwback Thursday!π Today we're throwing it back to our unforgettable Adult Support Weekend β and what a weekend it was! Swipe through these fabulous photos to relive some of the highlights β we hope they bring a smile to your face just like they do for us. π
0
0
0
Itβs not too late to do your bit for World Mitochondrial Disease Awareness Week! π Did you know... Symptoms of mito include loss of muscle coordination, seizures, loss of vision and/or hearing, and organ failure Please share to show you care: π https://t.co/QRYTGdM7TK
0
1
2
π‘ Tonight, landmarks across the UK will glow green for Light Up for Mito Thank you to everyone who made this happen β youβre all doing your bit to help put mito on the map this World Mitochondrial Disease Week! π It's not too late to play your part: https://t.co/U2l9KsdOQF
0
1
3
Itβs not too late to get involved in World Mitochondrial Disease Awareness Week! π All week, weβre shouting loud about mitochondrial disease β raising awareness, sharing stories and putting mito on the map all over the UK. π Find out more: π https://t.co/QRYTGdM7TK
0
1
3
World Mitochondrial Disease Week is reaching its peak Did you know there is still no cure for mito? We're fighting to change this and have invested over Β£3 million in pioneering research since 2007. π Here's how you can continue to support usπ π https://t.co/QRYTGdM7TK
0
2
4
πShare to show you care this World Mitochondrial Disease Awareness Week! π All week weβre shouting loud about mitochondrial disease β raising awareness, sharing stories and putting mito on the map. π See how you can help: π https://t.co/QRYTGdM7TK
#worldmitoweek2025
0
3
1
π Itβs World Mitochondrial Disease Week! π This week, weβre shouting loud about #mitochondrialdisease β raising awareness, sharing stories and putting mito on the map. π See how you can get involved: https://t.co/U2l9KsdOQF
#worldmitoweek2025 #mitoonthemap #mitoaware
0
2
4
Itβs here β World Mitochondrial Disease Awareness Week! π Every share helps raise awareness and brings us closer to better treatments, more support and a cure. Letβs make some noise for the mito community! πͺ π Get involved: π https://t.co/QRYTGdM7TK
#worldmitoweek2025
0
1
2
Itβs here β World Mitochondrial Disease Awareness Week! Letβs make some noise for the mito community! π See how you can get involved: π https://t.co/QRYTGdM7TK
0
3
6
πβ¨ Itβs nearly hereβ¦ World Mitochondrial Disease Week starts TOMORROW! β¨π This is our moment to come together and put mito on the map β but we need your help! π Are you in? π https://t.co/tvXNUwWEzW
0
1
2
Today is #TK2dTuesday Learn more about thymidine kinase 2 deficiency (TK2d) and support those affected. https://t.co/SRkY1utz0k
#mitochondrialdisease #TK2dAwareness
0
0
3
#LilyFoundation are joining together with the global #mito community to raise awareness of Thymidine kinase 2 deficiency (TK2d), an ultra rare #mitochondrialdisease Find out more: https://t.co/SRkY1utz0k
#TK2dTuesday #muscleweakness #mito #TK2dAwareness
0
0
1
Thymidine kinase 2 deficiency (TK2d) is an ultra rare #mitochondrialdisease Find out more: https://t.co/SRkY1utz0k
#TK2dTuesday #muscleweakness #mito #TK2dAwareness
0
0
2
Today is TK2d Awareness Day TK2d is a rare form of mitochondrial disease By advocating for patients, we're helping to drive vital progress towards a potential treatment Read more https://t.co/MCR6MgZZTG
#TK2dawarenessday #thelilyfoundation #mitochondrialdisease #mitoonthemap
0
1
3
This month is Dystonia Awareness Month.π Throughout the month, weβll be sharing facts and information to help raise awareness, spread understanding. Knowledge is power β and together, we can shine a light on this often misunderstood condition π‘
0
0
5
This is NOT a drill! π¨ World Mitochondrial Disease Week is just ONE WEEK AWAY!! Have you made your plans to get involved? Letβs stand together and shine a light on mitochondrial disease. π Find out how to get involved here: https://t.co/U2l9KsdOQF
0
1
4
π Be a part of something amazing π Light Up for Mito β Saturday 20th September Want to light up a local landmark? Weβve got a ready-to-go email template to help! https://t.co/U2l9KsdOQF
0
1
2