Our incredible daughter Liz died in the early hours of this morning. She remained determined to the last. Even yesterday she was still making plans. We are so very proud of the kindness, empathy and courage she has shown in the last year. She was not only a phenomenal

As the weeks since losing Liz have turned to months, the loss so often feels as though it is growing not shrinking. I’m not sure even now ten months later I can process the fact that she will never walk through the door again. I know it cognitively but knowing it in my heart is

What do you want to know?.

As well as devouring miles - he has currently completed 2 marathons spread over the last 18 days to raise money for @CaptureDSRCTC with another one still planned, Mateo has devoured books this holiday - even begging me for extra reading time so he could just get to page 100. He

Thinking of all those who are getting A Level results today, all those who should have been and all those missing those who would have been. Know always that whatever happens today, if we look hard enough there are always ways to follow our dreams. In the words of Liz who had

In my parallel life, the one where you didn’t get ill, the one where you didn’t die, I wonder what this summer would have looked like? . We’d have shopped at Ikea for things you needed for university, you would have been worrying about exam results, I would have been worrying

Another day of exercise!. Mateo has accomplished:. 1.5 miles scootering .2 miles cycling.2 miles running.1 hour of solid lengths (this terrible mother forgot she was counting because she was too busy chatting - in fairness I was chatting about @CaptureDSRCTC - so it was relevant)

Another crazy day of exercise in the Robayna house. Mateo started of the day by swimming 1.1 miles - swim squad training followed by extra time in the pool with his friend Thomas who is also doing the challenge. 2 miles of cycling with with his friends Fran and Charlotte (also

RT @thosethatcan: This month, I'm doing Marathon Your Way In A Month to make sure as many young people as possible with less survivable for….

Today marked the start of Marathon Your Way In A Month. And boy did Mateo make sure we took part. Today I started the couch to 5k (2 miles managed). Mateo ran much further than I did and we’re estimating at least 2.5 miles. He then went on to swim 100 lengths at the swimming pool

What are your plans this August? . Are you looking to make memories with your family or friends? Will you help us ensure that others can too - especially those young people with less survivable cancers?. We are so very grateful for every moment and every memory we shared with

So grateful to @rosetintedlass for signing up to Marathon Your Way In A Month for @CaptureDSRCTC in August. If you would like to join her you can sign up here:

Mateo thought you might need some reassurance that you don’t need to run for our Marathon Your Way In A Month challenge coming up in August! Why not get fit whilst having fun with family and friends?. Whether you want to walk, roll, jump or skateboard it’s totally your choice.

This time last year we were still a four. Now everything we do is smaller. There is no sugar coating it, the school holidays are hard. Everywhere we look there are families who are still together. We are so glad for them, but the pain of missing Liz is huge. Liz is missed every

X, without you Liz’s bucket list would never have happed. Can you do her proud and like, comment on and share this post as far and wide as you can to see if we can flood the world with her photographs on the 31st August to celebrate what would have been her 18th birthday?. We’ll

Some days I am angry. I am angry that there is no funding from governments, large cancer charities or pharmaceutical companies for cancers like Desmoplastic Small Round Cell Tumour. I cannot help but wonder if more funding had happened, treatment could have been better. Instead

You might notice that on both of these photos - Liz is wearing the same bag. It is a bag containing a portable syringe driver. In the last weeks of her life this was what kept Liz moving, out of bed and Living her best life. When the idea was first suggested Liz was horrified.

It’s hard to believe that this was only a year ago. We were so full of hope that trip. When we boarded Liz had so little pain, her latest MRI has shown shrinkage in all her tumours. She was so excited to be allowed to eat from the buffet, meet characters and watch shows. She

This used to be our life. Having fun together as a family of four. We never dreamt for a second that one of our children would die. That’s the sort of thing that happens to other people, right? . Except in November 2024 - we became other people. Liz died just 10 months after she

Wondering what to do this summer? Heading on holiday with family and want to keep active? Staying at home and fancy a team challenge with colleagues or teammates? Or perhaps you’re determined to complete a solo challenge? . Why not join @CaptureDSRCTC and The Be More Laura

RT @CaptureDSRCTC: This Sunday Capture will be at Pannal Golf Club. We are very honored to have been chosen as the charity they will be sup….