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ALS Network Profile
ALS Network

@youralsnetwork

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We connect need with support, questions with answers, thought leaders with new ideas, research to funding, and advocates to challenge the status quo.

California and Hawaii
Joined February 2011
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@youralsnetwork
ALS Network
11 hours
Our August eNewsletter is in your inbox, or you can view it online! Join us at one or more of our upcoming community outreach events this fall!. Please check our calendar for upcoming events and online connection groups this month. Be sure to visit the News and Stories section -
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@youralsnetwork
ALS Network
15 hours
Join us virtually on Thursday, August 21, at 12:00 pm PDT/ 9 AM HST for “ASK ME: Let’s Get Your Ducks and Dollars in a Row”. Beth Greulich, CDFA, CFP, Partner, Quantum Financial Advisors and Michael S. Welling Senior Director, Planned Giving, ALS Network will cover key financial
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@youralsnetwork
ALS Network
20 hours
Please join us for Connect, Support, Chat: Living with ALS Under 50 on Tuesday, August 19, at 4:00 PM PDT/1:00 PM HST. Please contact Care Managers Emma Karavardanyan, M.A. at ekaravardanyan@alsnetwork.org or Shannan Sonnicksen, LCSW, MPH, at ssonnicksen@alsnetwork.org for more
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@youralsnetwork
ALS Network
2 days
Support family caregivers by asking your member of Congress to sponsor the Credit for Caring Act of 2025. This bipartisan bill would provide a new federal tax credit of up to $5,000 for eligible working caregivers, offering meaningful relief for those who care for loved ones
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@youralsnetwork
ALS Network
2 days
Join us for Connect, Support, Chat: Trach and Vent on Thursday, August 14, at 1:00 PM PDT/10:00 AM HST. Contact ALS Network Care Managers Robin Eller, RCP at reller@alsnetwork.org or Lauren Leonard, RCP at lleonard@alsnetwork.org for more information on how to participate.
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@youralsnetwork
ALS Network
3 days
Thanks to everyone who joined the 4th South San Francisco Splash to Cure ALS on Tuesday, July 29!. We had an amazing day raising funds and awareness to support #ourALScommunity. Big thanks to Denali Therapeutics, @Cytokinetics, Corcept Therapeutics, @traceneuro, and @biomarin,
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@youralsnetwork
ALS Network
3 days
We invite you to join us for Connect, Support, Chat: All-Hawaii on Friday, August 15, at 2:00 PM HST. This month will feature a Navian Hawaii Palliative Care presentation by Lois Miyashiro-Tong, Community Liaison. For more information and to register in-person or via Zoom,
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@youralsnetwork
ALS Network
3 days
Join us for the 26th annual Central Valley Walk & Roll to Cure ALS on October 4, 2025, at Woodward Park in Fresno, CA!. This event is for all activity levels with a wheelchair-accessible route, an ALS resource fair, entertainment, food, prizes and giveaways, and a Festival Zone
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@youralsnetwork
ALS Network
4 days
Get ready for a fantastic day at the 4th annual Central Coast Ride, Walk & Roll to Cure ALS! Don’t forget to save the date: Saturday, September 20, 2025, at our NEW LOCATION in Dinosaur Caves Park in Pismo Beach, CA! . This fundraising event welcomes families and offers
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@youralsnetwork
ALS Network
4 days
We invite you to join us for one or more of our August Connect, Support, Chat Groups (ALS Network's version of support groups designed for YOU!). These meetings provide opportunities for individuals to share their personal experiences and to learn more about strategies for
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@youralsnetwork
ALS Network
5 days
Join us for Adaptive Yoga/Assisted Movement and Guided Meditation on Wednesday, August 6, at 11:30 AM PDT/8:30 AM HST. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This
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@youralsnetwork
ALS Network
5 days
We are only FOUR weeks out from event day for the 3rd annual Big Island Walk & Roll to Cure ALS on Saturday, September 6, 2025, at Wailoa River State Recreation Pavilion in Hilo, HI!. There is still time to register at As a reminder, online registration
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@youralsnetwork
ALS Network
6 days
We invite you to join us for Connect, Support, Chat: Loved Ones on Tuesday, August 5, at 11:00 AM PST / 8:00 AM HST. For more information and to register, contact Facilitator: Kim Venezia, LMFT at 510-569-3631 or kvenezia@alsnetwork.org.
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@youralsnetwork
ALS Network
7 days
Calling all Napa Valley Ride teams! The Team Challenge is here!. From now through August 15, you will have THREE opportunities to win prizes through our challenges. Recruit your friends, family, and colleagues to join you, fundraising to support #ourALScommunity, and more!. Join
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@youralsnetwork
ALS Network
8 days
The ALS Network applauds the Senate Appropriations Committee for continuing to prioritize the ALS community in the FY26 budget process, including:.- A $25M increase for ACT for ALS.- Language urging ARPA-H to dedicate $30M for ALS and related neurodegenerative research.- $40M
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@youralsnetwork
ALS Network
9 days
@youralsnetwork is hiring! We are seeking a Director, Community Outreach - Northern California, to oversee peer-to-peer fundraising, outreach, and mission awareness efforts connected to the ALS Network’s signature events. The role also facilitates an array of do-it-yourself and
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@youralsnetwork
ALS Network
9 days
We invite you to join us for Connect, Support, Chat: Loved Ones on Tuesday, August 5 at 11:00 AM PST / 8:00 AM HST. For more information and to register, contact Facilitator: Kim Venezia, LMFT at 510-569-3631 or kvenezia@alsnetwork.org.
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@youralsnetwork
ALS Network
10 days
Enthusiastic volunteers are key to our success - whatever your goals, interests, availability, and comfort zone, we have opportunities for you to join us! We welcome corporate, education, and community service groups of all sizes and backgrounds to support our mission-critical
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@youralsnetwork
ALS Network
11 days
Registration is open for the 23rd annual Inland Empire Walk & Roll to Cure ALS at Miller Park Amphitheater in Fontana, CA on Sunday, October 19, 2025!. Join us for a one-day community event designed to appeal to every level of walker, roller and supporter of the ALS community!
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