The Mighty
@TheMightySite
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Following
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Making health about people: When we ask how you’re doing, we actually want to know! Download our free app to join a community that gets it ✨
Joined December 2013
Do you know what apneustic breathing is?.
themighty.com
Apneustic breathing is a breathing pattern with prolonged inhalation and difficulty exhaling, often linked to Rett syndrome and neurological disorders.
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"Each day, her family and care team adapt, advocate, and celebrate every victory — from a small movement to a single glance that says, 'I’m here. I understand. I’m with you.'”.
themighty.com
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At 10, Tanner plays trombone, loves animals, and dreams of designing stage sets. You’d never guess he’s faced challenges from Alagille syndrome since infancy. Read about his family’s story. 💛 . Sponsored by Ipsen.
themighty.com
To the casual observer, Tanner seems like most other 10-year-old kids. He loves spending time with his family, playing the trombone, and reading. He’s competitive, funny, and full of energy. If you me
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“I want others with rare diseases to know that limitations don’t have to stop you from chasing your dreams.”. Read Whitney’s story about how she strives for independence while living with fibrodysplasia ossificans progressiva, a rare bone disease. Sponsored by Ipsen.
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"What’s been especially challenging in my lifelong struggle with psoriasis has been the general lack of information as well as a medical community lacking in knowledge when it comes to psoriasis in people of color.".
themighty.com
An African American woman explains why it was difficult to get diagnosed with psoriasis.
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Growth hormone deficiency in kids isn't just about being shorter. It can impact muscles, heart health, and more. Learn the signs to catch it early! 💪❤️.
themighty.com
Pediatric human growth hormone deficiency (PGHD) is a rare but serious me
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"If you’re the parent or caregiver of someone with Rett syndrome, you already know what it’s like to navigate the unfamiliar. New terms. New symptoms. New patterns that don’t always make sense but are part of the daily rhythm of life.".
themighty.com
Learn what bruxism is, why it's common in Rett syndrome, and how to manage it with compassion, support, and real-world tips for caregivers and families.
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How a Child's Diagnosis Should (and Shouldn't) Go.
themighty.com
The mother of a child with Rett syndrome shares best practices for how medical professionals can give parents information about a rare disease diagnosis.
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"Here are five ways to help encourage self-advocacy in kids.".
themighty.com
4. "Start small. Practice advocacy skills in more comfortable settings or conversations. Figure out what works, what is challenging, and areas to improve. From there, build confidence to take on the...
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"Nick has multiple, life-threatening food allergies and a trip to a local ice cream establishment is not something we can safely enjoy.".
themighty.com
Emily Sorenson shares how her family is making unique memories for her son who has life-threatening food allergies.
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Jolie was told her breathing issues were anxiety—but it was pulmonary arterial hypertension (PAH), a rare, serious condition. Her journey is a powerful reminder to trust your gut, push for answers, and advocate for your health. #Sponsored by the @LungAssociation.
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"I Still Get Jealous, I Still Hold a Grudge, and I Am Sorry.".
themighty.com
I would like to start this out and get my apology out of the way right now. At my current age of twenty-two, I'm p
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Kids with Growth Hormone Deficiency (GHD) face more than just growth challenges—it can impact self-esteem & emotional well-being too. 💙 Support, advocacy & open conversations make a big difference. #GHDawareness #PediatricHealth #MentalHealthMatters.
themighty.com
Helping your child navigate a chronic health condition like
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Is your child growing slower than expected? Pediatric Growth Hormone Deficiency (GHD) can impact more than just height—it affects overall health too. 💡 Learn more about GHD and the steps you can take to support your child’s health.
themighty.com
Does your child seem to tire quickly or grow slower than other children their age? While growth patterns can vary, some children
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Do you have any to add?.
themighty.com
Members of The Mighty community share the most "embarrassing" symptoms of BPD.
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"If you’re navigating life with a rare disease and feel that those around you don’t fully understand, remember that your loved ones care deeply and want to support you. Sometimes, understanding what it’s truly like to live with PBC takes time.".
themighty.com
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How can you take a break today?. Whether it's going outside for fresh air, taking a few moments to collect your thoughts, or carving out a few hours for self-care taking intentional breaks is important. Friendly reminder: You are worthy of taking the breaks you need today.
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This viral fall trend might be worth trying. Join us!
tiktok.com
24.2K likes, 202 comments. “OCTOBER 1ST THEORY”
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