Niranjanan Nirmalananthan
@nn_neuro
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Neurologist, Atkinson Morley Neurosciences Centre @StGeorgesTrust, London. National Clinical Director for Neurology, NHS England views=own š
Tooting, London
Joined April 2020
Please help us reach parents/guardians of children with Dystonia @AlderHey
@CUBRICcardiff @UCLIoN @hamrofoundation @gstevensonsport @FionaRawlinson1
@minifish1210 @nn_neuro @QSNeurosurgery @Journo_Lydia @timadlam @joanne4142 @sjpetherbridge
https://t.co/QlrRr6hxz1
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Baby born from three people's DNA in UK first
bbc.co.uk
Most of the baby's DNA comes from their two parents, with a small percentage from a donor.
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Workforce is the biggest challenge in the NHS and addressing that requires a focus on retention. This is a really clear data thread from the always excellent @jburnmurdoch.
NEW: we need to talk about NHS staff retention. At a time when Britainās healthcare system is acutely short of workers, *1 in 7* UK-trained doctors are practising overseas. No other developed country is like this, which immediately tells you thereās a problem. Letās dig deeper:
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The patient voice is essential in planning and decision making. Do consider applying if you have personal experience or expertise in a rare disease: https://t.co/b6ZXjhQDZi
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NHS England is recruiting a Patient and Public voice partner for the Rare Diseases Advisory Group (RDAG). Although individually rare (affecting <1/2000 people) rare diseases, many neurological, are collectively common - affecting 3.5 million people. Linkš
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What is the point of doing routine 4ATs in the ED? Most of us will miss delirium and memory problems on brief reviews if we don't do some specific testing. You might think you're good at just spotting delirium. But you're probably not. (Neither am I)
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Direct link to recommendations: https://t.co/Wr34yAdE2z
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Timing is everything when it comes to Parkinson's medication: delayed / missed doses ā major impact on disabling PD symptoms. Really important quality campaign from @ParkinsonsEN below to ensure meds given ā¤ 30 minutes of when due. Needs take up in all acute NHS Trusts. ā°
1/2 Today on #WPD2023 we launch Phase 2 of our campaign across the #NHS with a short film called āTime Critical Medications : Itās Time.ā These 10 recommendations when implemented will improve the quality of care people with #Parkinsons receive https://t.co/mJ5NMFGgLJ
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We're launching a new course - "FND: A Healthcare Professionalās Guide" in collaboration with FND Hope UK. Taught by experts from University of London, this course covers FND symptoms, diagnosis, management, and patient communication. Enrol now at š https://t.co/e9UZttVKZI
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Further info on CRGs: https://t.co/sd210z9Ida Further info on applications: https://t.co/sd210z9Ida A strong patient / public voice is essential in our CRGs. Do consider applying.
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Applications are open for Patient and Public Voice partner roles for the NHS England Neurology Clinical Reference Group (and a number of others, including Neurosurgery / Spinal Surgery, and Rehab/Disability/ Spinal Cord Injury). Closing date 8th of January. Links below.
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šNew report out today-a review of the epilepsy care of adult patients attending hospital with a seizure: https://t.co/YYOD8bLbJQ
@SudepAction @epilepsysociety @epilepsyaction @RCollEM @theABN_Info @NASH_Audit @RCPhysicians @rcgp @rcpsglasgow @RCPEdin @HQIP
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Lots to do to address challenges - including addressing inequalities in access to assessment and treatment, integration and coordination of care and ensuring systems are set up to support access to the growing pipeline of commissioned treatments for neurological diseases.
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Starting this week in new role as National Clinical Director for Neurology at NHS England. Looking forward to working with colleagues across the NHS and with patients to improve care for the large and diverse group of neurological conditions - 1/6 of the population.
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Weāre sorry to hear that Doddie Weir OBE has died. Since sharing his MND diagnosis in 2017, Doddie became an inspiration to many, raising awareness and campaigning tirelessly on behalf of those with MND. Our thoughts are with Doddieās wife Kathy, his 3 sons, family and friends.
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Signed our petition calling on the government to #BackThe1in6? Share this link now and tell friends, family and colleagues why you #BackThe1in6 people in the UK with a neuro condition https://t.co/WVG5na1s84 Thanks!
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The new Fatigue Management resource for people with Neuromuscular Conditions is out now: https://t.co/a2iQTVj2gc Thanks to @MDUK_News and the working group for making this project a reality!
musculardystrophyuk.org
Fatigue is a constant feeling of exhaustion and is common for people with neuromuscular diseases. Hereās how to manage fatigue.
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We are excited to attend the APPG for the Muscular Dystrophy roundtable tomorrow to discuss the potential of integrated care systems to improve neuromuscular services. If you would like to virtually join the discussion, please contact us on campaigns@musculardystrophyuk.org
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