Neurofibromatosis Network
@nfnetwork
Followers
4K
Following
4K
Media
2K
Statuses
3K
Neurofibromatosis (NF) Network is the national non-profit serving individuals affected by neurofibromatosis. Leading NF Advocacy, Building NF Community.
Wheaton, IL
Joined February 2011
Kindness is like snow; it beautifies everything it covers. Let's remember to be kind to others, and especially to ourselves today! If you want to learn more about Neurofibromatosis or connect with others for support and kindness, sign up here: https://t.co/a4ztFUL081. G
0
0
0
Hey Miami! Get ready for some pickleball fun! NF patients and their families can enjoy playing for FREE this Saturday, November 15, at the Biltmore Tennis Center! 11:00 am-1:00 pm (two sessions) https://t.co/qJzQkn1bFR
0
0
2
Join us on Wednesday, November 19 at 7PM CT for an insightful virtual event featuring Dr. John Henson, speaking about the crucial role of genetic testing in NF. He'll discuss family planning and the advantages of preimplantation testing. https://t.co/G00bVqs5Jn
0
1
1
Happy #ThrowbackThursday! Are you ready to create a positive impact this year? Join us for our upcoming Walk on November 9! Your involvement is crucial in raising funds for vital research and support for families affected by Neurofibromatosis. https://t.co/UztWIMwzA0
0
2
3
Hey Miami! Join us for 2 FREE NF Community Events! November 15, 2025, at the Biltmore Tennis Center! Meet the Docs Miami Register today! https://t.co/qJzQkn1bFR Let's come together to learn, play, and support one another! 💙
0
0
1
Join us for a weekend dedicated to Neurofibromatosis! This weekend! November 8-9, 2025 #nfstrong Walk for NF, Nov 9: https://t.co/UztWIMwzA0 Expert Event, Nov 8: https://t.co/wMMxN17mDY
0
0
3
0
0
4
Attention, Memphis! Join us on November 8th for an enlightening event featuring Dr. Donald Bearden, Chief of Child Psychology at Le Bonheur Children's Hospital. https://t.co/wMMxN17mDY
0
0
0
October is Breast Cancer Awareness Month, an essential period for individuals to focus on their health, especially those diagnosed with Neurofibromatosis Type 1 (NF1). Visit our website to read more at https://t.co/zFepZhdDUr.
0
0
0
Join NF Families for the Zoo Atlanta IllumiNights! 🗓 When: December 6, 2025, at 5:30 PM 📍 Where: The Atlanta Zoo, Zebra Room, Savannah Hall 👉 Register for tickets here to enjoy a group discount! https://t.co/kwjETKejUs
0
0
0
Memphis 5K T-shirts must be ordered tomorrow! To ensure everyone gets the awesome T-shirts, we need to place our order. Sign up now to secure your shirt. Register here: https://t.co/UztWIMwzA0
0
0
1
Happy #ThrowbackThursday! Join us as we revisit our Memphis, TN, event from past years. Sign up for our upcoming Walk on November 9! https://t.co/UztWIMwzA0
0
2
2
Hey Miami! Join us for 2 FREE NF Community Events! November 15, 2025, at the Biltmore Tennis Center! Meet the Docs Miami 10:00 AM - 11:00 AM Dink with the Docs 11:00 AM - 1:00 PM (two sessions) Register today for FREE! https://t.co/qJzQkn1bFR
0
0
0
Are you and your healthcare provider aligned in your treatment for NF1 or NF1 with plexiform neurofibromas? Clear communication is vital. https://t.co/zNp3PHWF62
1
0
0
Join us for a weekend dedicated to Neurofibromatosis November 8-9, 2025! #nfstrong Walk for NF: On November 9 and help raise funds for research and support. https://t.co/UztWIMwzA0 Expert Event: On November 8, connect with leading experts: https://t.co/EHnDzhQvDQ
0
0
0
October is Breast Cancer Awareness Month, an essential period for individuals to focus on their health, especially those diagnosed with NF1. This month serves as a crucial reminder to prioritize early screenings. https://t.co/gEQMXPJKLb
0
0
0
https://t.co/GynjIC7GR3 NF Hope Las Vegas is this weekend. Get Tickets now!
0
0
0
Is there a doctor who really cares about her patients? Absolutely! Meet Dr. Pivnick, who is as dedicated as they come! We’re excited to invite you to join her as she kicks off a special and informative meeting on November 8th. https://t.co/EHnDzhQvDQ
0
2
3