HDSA
@HDSA
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The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease.
U.S.A.
Joined April 2009
Today we celebrate the curiosity, creativity, and innovation that drive Science, Technology, Engineering, and Math. Happy National STEM Day from HDSA! #HDSA #STEM #LetsTalkAboutHD
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The following is a Q&A session that was recorded on October 30th, 2025, before the UniQure regulatory update on November 3, 2025. Visit: https://t.co/Y7MjlxyuAZ to watch the full video.
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HDSA and FreeWill have partnered together to offer a free, secure way to write your will online. The process only takes about 20 minutes, and you can complete it, from the comfort of your own home. For more info, visit: https://t.co/Z0sIFnmV9T
#HDSAFamily #HDSAFamily
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If you have an upcoming birthday or anniversary to celebrate this November, you can make the most of your special occasion by organizing a fundraiser on Facebook or Instagram with HDSA. #HDSA #HDAwareness #Huntingtonsdisease
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🌸🌿 Give a gift that blooms this Amaryllis season! Pre order your Amaryllis now! Deliveries begin November 18th. Don't forget to credit your order to your chapter or affiliate at checkout! Let's bloom together. Click: https://t.co/Ubzeh0eEiH to learn more.
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Updated jmp (w @Henkel_JLuca) 1) Longer-horizon match quality data 2) Extended AI mechanism analysis 👇
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🌸🌿 Give a gift that blooms this Amaryllis season! Pre order your Amaryllis now! Deliveries begin November 18th. Don't forget to credit your order to your chapter or affiliate at checkout! Let's bloom together. Click: https://t.co/Ubzeh0eEiH to learn more.
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🎉 Huge THANK YOU to the HDSA NYC Marathon Team!🏅 As we gathered for the pre marathon lunch last Friday, our check was already outdated with a whopping $160,936 raised! Visit https://t.co/21HYt8zTep to contribute to a runner’s profile! 🚀 #TCSMarathon #HuntingtonsDisease
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Together is how we make change.💙 HDSA is proud to join forces with other U.S. Huntington’s disease organizations to amplify our community’s voice, especially in conversations with the FDA. Stronger together, we’ll keep pushing forward.(Click image to read more) #LetsTalkAboutHD
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🌸🌿 This November, Amaryllis season is in full bloom! Don't forget to credit your order to your chapter or affiliate at checkout! Let's bloom together. Click: https://t.co/Ubzeh0eEiH to learn more
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This month, make an impact at an HDSA event near you to help raise awareness and support for families impacted by Huntington's disease. To learn more and register, visit: https://t.co/IFHrUniFVO
#LetsTalkAboutHD #HuntingtonsDisease #HDSA
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HDSA offers support for everyone impacted by Huntington’s disease, including individuals living with HD, caregivers, and people at risk. To learn more, visit: https://t.co/oiSJHZVi56
#LetsTalkAboutHD #HuntingtonsDisease #HDFamily #FamilyIsEverything
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A heartfelt THANK YOU to the incredible 26 runners pounding the pavement for the TCS NYC Marathon this Sunday! Together, you've raised over $157,000 for HDSA! Special thanks to EisnerAmper for your invaluable partnership in supporting our HDSA Team. #TCNYCMarathon
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Find your local food bank: Locate the food bank serving your community below: https://t.co/IgcT0J8J2g Explore additional meal programs: Find programs that serve seniors and children below: https://t.co/zsKeeA300T
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💙 Thank you to our incredible partner, EisnerAmper, for their generous support of the HDSA NYC Marathon Team and the HDSA Chicago Marathon Team! 🏃♀️🏃♂️ Your partnership fuels our runners every step of the way as they raise awareness for families impacted by Huntington’s disease.
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Watch our newest webinar: A conversation with Dr. Arik Johnson, PsyD (HDSA), Dr. Walid Abi-Saab (uniQure) and Dr. Sarah Tabrizi (UCL), covering what the recent uniQure news on gene therapy means for HD families and what to anticipate next. Visit: https://t.co/ivBC71X4jq
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Support Kati Janssen, a member of our NYC Marathon Team! On November 2nd the team will take on 26.2 miles to help raise awareness for Huntington's disease. You can support Katie by visiting her fundraising page at: https://t.co/lQQPPJVaL1
#HDSA #HD #NYCMarathon
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Join us TODAY, Thursday, October 30 at 2:00 PM ET for a Conversation about the uniQure AMT-130 Announcement. To register, and learn what the results mean for HD families and what to anticipate next, visit: https://t.co/vzoV5totSe
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Support Tom Malone, a member of our NYC Marathon Team! On November 2nd the team will take on 26.2 miles to help raise awareness for Huntington's disease! You can support Tom by visiting his fundraising page at: https://t.co/HUEHmPcSXM
#HDSA #HD #NYCMarathon
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¿Sabías que HDSA también alberga grupos de apoyo en español? Utilice el enlace a continuación para obtener más información: https://t.co/APU0K33nFX
#HablemosDeHD
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Join us TOMORROW for a Conversation about the uniQure AMT-130 Announcement. To register, and learn what the results mean for HD families and what to anticipate next, visit: https://t.co/AHsvSQLo0v
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