J Profile
J

@epilepsytime

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Exploring relationships while living with invisible illnesses -The views and opinions expressed are my own and my own alone

Joined April 2022
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@epilepsytime
J
3 hours
Happy bday to #football great #AlanFaneca! He is not only a hall of fame #superbowlchampion, but also outspoken advocate for #epilepsyawareness! He was a beast when he was playing and that’s why I think he’s the picture of the term #epilepsywarrior #invisibleillnesswarrior
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Happy bday to #baseball great #TonyLazzeri! Did he die of a #heartattack or was it #epilepsy related death? Many now think his death was because of a #seizure. He is a great example that people w/ #epileptic #seizures or just those who have seizures are sometimes great athletes.
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Recently, I heard a whimsical claim by a #neurologist that all of his #epilepsy patients on #XCopri (cenobamate tablets) were #seizurefree. That might be true, but the anti #epileptic drug (AED) used to treat partial-onset #seizures in adult patients is still fairly new (2019)
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#Fear is a thought process that triggers the #fightorflight response. So, fear itself is imagined only, but does cause real consequences #anxietyrelief #dangerisrealfearischoice #fears #afraid #feartheunknown #unknownfacts #stigmafighter #stigmafighters #invisibleillnesswarrior
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Is it dangerous living w/ #epilepsy? Yes, but there are always dangers in the world, so that’s why we continue to live our lives and get ourselves out there. #epilepsyfighter #stigma #epilepsyfight #epilepsystrong #epilepsystrength #seizures #seizuressuck #epilepsyawarenessmonth
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#Anxiety is one of the biggest side effects of #anticonvulsants, but it is also a big #seizuretrigger & the result of having many #seizures over time. The fear of #seizureawareness causes one to get #anxious #seizuretriggers #epilepsyaware #anxietydisorders #braininstability
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Happy bday to famous #author #JonathanSwift, known for classic novel #Gulliverstravels. Many thought that he suffered from many #illnesses & that played a part in the feel in his stories. For example, he was possibly diagnosed with #epilepsy, #hydrocephalus, #depression, etc.
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Happy bday to #Australian radio & #TVpersonality #BenFordham. He shared his #epilepsy story publicly a few years back for #epilepsyawareness - how he battled after his first #seizure when 7yo. #epilepsyawarenessmonth #epilepsyfight #depressionawareness #seizures #seizuressuck
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@epilepsytime
J
10 days
#HappyThanksgiving ! After struggling on a hard #epilepsy journey & living so long without being #seizurefree, I’m #thankful for the support from the #epilepsycommunity. After seeing how many great #epilepsysurvivors & other people w/#chronicillnesses fighting out there, thanks
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@epilepsytime
J
12 days
I give a shout out to you for staying strong in the fight against #epilepsy, living with #stigma, and possibly circumstances that have led to a lower quality of life at times. Happy #epilepsyawarenessmonth & continue to spread #epilepsyawareness in full force. #invisibleillness
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@epilepsytime
J
13 days
#Loneliness is a serious problem, but you don’t have to feel alone when living with #epilepsy. It is one of the most common #neurologicaldisorders & there is a big support system out there, online and possibly in your local community. #epilepsyadvocate #nationalinstituteofhealth
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@epilepsytime
J
14 days
How severe can a mild #epileptic #seizure turn into? When referring to #nocturnalseizures, they can be both focal, generalized, so how mild is the jolt or falling experience right before falling asleep? #epilepsy #epilepsie #epilepsia #epilepsywarriors #epilepsywarrior #seizures
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@epilepsytime
J
16 days
Our #epilepsyjourney is sometimes a search for answers! During our life,we must keep the #epilepsyhope that we will find those answers #epilepsyawareness #epilepsylife #epilepsi #epilepsystrong #invisibledisability #seizures #seizuredisorder #seizure #epilepsyaware #neurological
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@epilepsytime
J
17 days
How do you live well with #epilepsy? If your #seizures aren’t controlled, it doesn’t help to be on edge about it and #worrying never helped any problem. #Calm, #Centered, and #Controlled are the 3 C’s of #anxiety #epilepsyawareness #epilepsyawarenessmonth #invisibleillness
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@epilepsytime
J
18 days
#Seizures strike instantly & for many people without warning. They leave #headinjuries & #anticipatoryanxiety but the people around don’t know, that’s #invisibleillness #pnes #epilepsy #epileptic #nonepilepticseizures #seizureawareness #psychogenicseizures #epilepsyfacts #stigma
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