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Epilepsy Foundation of America Profile
Epilepsy Foundation of America

@EpilepsyFdn

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#EpilepsyAwareness & Education | FREE #SeizureFirstAid Certification | 24/7 Helpline (1-800-332-1000) | Unwavering ally for people w/ #epilepsy & #seizures.

Washington, DC
Joined April 2009
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@EpilepsyFdn
Epilepsy Foundation of America
1 month
Today, July 3, the U.S. House passed H.R. 1, the budget reconciliation package, & the legislation is expected to be signed into law by the President. We are devastated by the cuts and changes to Medicaid included in the reconciliation package. Read our statement in the images:
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@EpilepsyFdn
Epilepsy Foundation of America
9 hours
Our Epilepsy & Seizure Safe Classrooms program aims to equip educators, school nurses, and administrators with the knowledge and confidence they need. Kick off the school year with safety and inclusion in mind. Download your toolkit today:
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@EpilepsyFdn
Epilepsy Foundation of America
14 hours
Addysyn is our 1 in 26. She is 14 years old and starting high school this year. In July 2023, she experienced her first tonic-clonic seizure, which led to an epilepsy diagnosis in December 2023. Addysyn has faced many challenges with epilepsy, but has not let it slow her down.
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@EpilepsyFdn
Epilepsy Foundation of America
1 day
A 504 Plan can include seizure action steps, classroom accommodations, and access to rescue medication. It’s a key tool for creating a seizure-smart school year. 💜 Find helpful forms and resources to support your back-to-school planning:
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@EpilepsyFdn
Epilepsy Foundation of America
2 days
Join Lemonade for Livy and make the last days of summer a little sweeter! Every cup you pour helps raise critical funds and awareness for the epilepsy community. .💜 🌞🍋
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@EpilepsyFdn
Epilepsy Foundation of America
3 days
August is Back-to-School Month! As students return to the classroom, school staff must be ready to support those living with epilepsy. Our Seizure Safe School courses are free and tailored for educators, school nurses, and support staff. Start learning at
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@EpilepsyFdn
Epilepsy Foundation of America
3 days
Seizures are just one part of Javi’s journey. Along the way, he’s faced stigma, obstacles, and the everyday challenges of living with epilepsy. Now, he’s using his voice to raise awareness and help #ChangeOurEpilepsyStory. Read more:
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@EpilepsyFdn
Epilepsy Foundation of America
3 days
Genetics play a key role in many types of epilepsy. Some DNA changes that affect brain function may be inherited or happen without family history. Understanding the cause can lead to better care. Learn more:
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@EpilepsyFdn
Epilepsy Foundation of America
4 days
CDSMP is a free virtual workshop for adults living with chronic conditions such as epilepsy. The upcoming session begins on August 12 and is available to adults aged 18 and older nationwide. To register, please visit:
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@EpilepsyFdn
Epilepsy Foundation of America
4 days
Surfing can be a fun, new experience, but for people with epilepsy, it’s important to understand the unique risks and safety considerations involved. Thank you to @surfertoday for raising awareness around epilepsy and water safety! Read the article:
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surfertoday.com
Nearly one percent of the world's population lives with epilepsy, which translates into around 150,000 surfers having seizures. Is it safe to ride waves with this condition? What are the pros and...
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@EpilepsyFdn
Epilepsy Foundation of America
5 days
Talking to your doctor about Sudden Unexpected Death in Epilepsy can be difficult, but understanding your risks and taking steps to protect your health is important. Learn how to feel more comfortable discussing this topic with your healthcare team:
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@EpilepsyFdn
Epilepsy Foundation of America
6 days
Living with seizures has sometimes made academics challenging for Ava, but learning to communicate effectively with her teachers has made all the difference. Now, she’s on her way to college. Read Ava’s story or share your journey:
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@EpilepsyFdn
Epilepsy Foundation of America
6 days
August is #BackToSchoolMonth! Start the year strong with our free, age-appropriate toolkits to help create seizure-safe, inclusive classrooms. Perfect for educators, nurses & administrators. Get yours now:
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@EpilepsyFdn
Epilepsy Foundation of America
7 days
Heading back to school with epilepsy? Your voice matters! Whether you're a student, parent, or teacher, we want to hear from you. What’s your #1 piece of advice for someone with epilepsy returning to school?.#BackToSchool
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@EpilepsyFdn
Epilepsy Foundation of America
7 days
Some people with epilepsy may notice certain feelings, sensations, or behavioral changes hours or even days before a seizure. While not everyone experiences these early warning signs, those who do can take precautions. For more info, visit our website:
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@EpilepsyFdn
Epilepsy Foundation of America
8 days
Our 1 in 26 is our daughter, Lizzy. She was diagnosed at age 4 after having three tonic-clonic seizures. She is an active, spunky girl who isn’t letting her epilepsy hold her back from enjoying life to the fullest!
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@EpilepsyFdn
Epilepsy Foundation of America
8 days
Seizures can happen anytime—knowing how to respond can save a life. 💜.Get certified in Seizure First Aid with our self-paced, 2-year course. Enroll today:
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@EpilepsyFdn
Epilepsy Foundation of America
9 days
Starting school is a big step, especially if your child has epilepsy. With the right support and preparation, make it a positive experience for both you and your child. Read our latest blog for tips to feel confident and ready:
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@EpilepsyFdn
Epilepsy Foundation of America
10 days
Lemonade for Livy is one of our favorite memories with Charlie. While she couldn’t do what many kids could, she found joy in raising awareness. We lost her in February, but her sister Parker carried on the tradition, raising $1K! Thank you, Epilepsy Foundation and the Scheinmans.
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@EpilepsyFdn
Epilepsy Foundation of America
10 days
Javan always dreamed of following in the footsteps of his grandfather and cousins by serving in the U.S. Navy. That dream was nearly shattered after his first seizure. While his journey didn’t go as planned, Javan is using his experience to inspire others:
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@EpilepsyFdn
Epilepsy Foundation of America
10 days
Share, learn, and connect. Epilepsy support groups offer a space to talk, listen, and build friendships with those who truly understand. Find a group that works for you:
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