ALS Action Canada
@ALSAction
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We're Canada's first and only ALS patient-led nonprofit organization fighting to #EndALS forever. Join us! Charitable organization BN: 791367204 RR 0001
Canada #EndALS
Joined April 2020
Join our Facebook Support Group here:
facebook.com
This private group was set up by ALS Action Canada. ALS Action is a Canadian patient-led initiative to improve access to promising therapies for those...
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September’s ALS event united MP Peter Fragiskatos, NHL icons, and federal leaders to advance care, research, and advocacy. Momentum is building—follow for updates! #ALSAdvocacy
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This holiday season, we’re filled with gratitude for the incredible support from our community in the fight against ALS. Wishing you and your loved ones a Merry Christmas and a joyful holiday season filled with love, hope, and peace. 🎄❄️ #MerryChristmas #TogetherForALS
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An incredible collaborative effort = an amazing result! If you missed the live event yesterday, please view the recording for the next couple of weeks at https://t.co/zdEEobRvmi
@DevinCuddy @JimCuddy @FriedgeHNIC @DougMaclean @tsnjamesduthie @PR_NHL @NHLAlumni
#NHL #EndALS
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🏒 In September on Parliament Hill, NHL Alumni Mark Kirton shared his powerful fight against ALS, joined by friends, family, and hockey legends like Wayne Gretzky and Darryl Sittler. In an emotional moment, Gretzky called Kirton a "hero," reflecting on their longtime friendship
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This Remembrance Day, we honour those who served and sacrificed in defense of freedom — and we extend our remembrance to all who’ve faced battles closer to home, especially those lost to ALS. At ALS Canada and The ALS Super Fund, we remember the courage and resilience of those
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"Mark, your generosity and kindness brought my husband Paul great comfort. I'll never forget the love you showed him. Forever grateful." 💙 Thank you, Vivian, for your incredible strength and love for Paul. Your support and courage continue to inspire us all as we stand together
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🎥 In case you missed it! Dr. Erik Pioro and @KevinMoorhead joined Global B.C. Weekend News this morning to talk about the amazing work behind the ALS Super Fund and PROJECT HOPE. Watch the story here:
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Huge thanks to Health Canada, the Canadian Drug Agency, and MPs we met today: Daniel MacDonald, Suzanne McGurn, Yasir Naqvi, Francis Drouin, and Judy Sgro. Our pALS shared their therapy access challenges. Let’s keep pushing for funding and awareness so all Canadians can access
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A huge thank you to everyone who joined us at the ALS Advocacy Reception in Ottawa! 🎉 We had 145 attendees, including the Honourable Minister of Health Mark Holland and hockey legends Wayne Gretzky and Darryl Sittler. Special thanks to ALS Caucus Chair Peter Fragiskatos.
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A huge thank you to everyone who joined us at the ALS Advocacy Reception in Ottawa! 🎉 We had 145 attendees, including the Honourable Minister of Health Mark Holland and hockey legends Wayne Gretzky and Darryl Sittler. Special thanks to ALS Caucus Chair Peter Fragiskatos.
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Yesterday, #NHLAlumni Mark Kirton spoke to Canada’s Parliament about his fight against ALS, as well as the importance of raising both awareness and funding to find a cure. Joining him were @WayneGretzky, Darryl Sittler, Brendan Shanahan, Glenn Healy, Laurie Boschman, Colin
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Gretzky leads NHL icons in support of ALS fund, 'hero' Kirton ⤵️ https://t.co/o7jnDxnOyY
nhl.com
Hockey, political worlds join together; $1 million milestone reached by group in battle against disease
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Thank you @KirtSpeaksALS for everything you have done, and continue to do, for ALS. 🙌🏼
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⏰ The countdown is on! The ALS Advocacy Day is just a few days away. Don’t miss out—follow us to keep up with the latest news! #ALSCanada #ENDALS
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Wondering what topics will be covered at our ALS Advocacy Day at Parliament Hill? Here’s a sneak peak! 👀 Follow us on our social media to stay updated, see behind the scenes, and get more information on how you can help us against the fight to #EndALS! 🙌🏼
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⏰ The countdown is on! The ALS Advocacy Day is just a few days away. Don’t miss out—follow us to keep up with the latest news! #ALSCanada #ENDALS
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🚨 Breaking New Ground in ALS Treatment! 🚨 Our latest article dives into Tofersen, a revolutionary therapy targeting the SOD1 gene, offering new hope for ALS patients. This is more than just a treatment—it's a step toward a future where genetic testing and personalized
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On behalf of our community, we extend our sincerest sympathies to the Jones and Senators family.
We are saddened to learn of the passing of former Assistant Coach Bob Jones after his battle with ALS. Our condolences to his wife Paige, children Blake and Brianna as well as all those he influenced across his nearly 30 year coaching career. Nous sommes tristes d’apprendre le
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A huge thank you to ISA Cybersecurity for choosing ALS Action Canada for their 12th Annual Charity Golf Tournament! Together, we raised $31,600 for ALS research and resources. Thank you to everyone who participated and donated! Your support brings us closer to a cure. 🌟🏆
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