Amanda M. Gutierrez
@_AMGutierrez
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Health Policy PhD candidate @Harvard & @HPRScholars. Care access, health equity, Latino health. Alum: @HarvardChanSPH @FulbrightSpain @RiceUniversity 🇳🇮 🇭🇳
Boston, MA
Joined December 2011
🎙️Listen to @_AMGutierrez discuss our work in @hail_CSER on adolescent and young adults’ preferences for shared decision making about genetic testing in cancer care!
Adolescents and young adults (AYAs) with cancer weigh in on genetic testing: Study author Amanda Gutierrez joined GenePod to discuss the importance of including AYAs in decision making about their healthcare and participation in genomic sequencing https://t.co/FxNXx6YWrH
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Adolescents and young adults (AYAs) with cancer weigh in on genetic testing: Study author Amanda Gutierrez joined GenePod to discuss the importance of including AYAs in decision making about their healthcare and participation in genomic sequencing https://t.co/FxNXx6YWrH
What do teens with cancer have to say about #genomesequencing research in #CancerGenetics? https://t.co/a4RTXrkICd
#decisionmaking @_AMGutierrez
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What do teens with cancer have to say about #genomesequencing research in #CancerGenetics? https://t.co/a4RTXrkICd
#decisionmaking @_AMGutierrez
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NEW STUDY: Explores the decisional preferences related to #genomic research of adolescents & young adults w/ #cancer & their engagement with genomic results; by our team & collabs https://t.co/z9rd6B2htp
#genomicsequencing #assent #consent #oncology
liebertpub.com
Purpose: With increased use of genomic testing in cancer research and clinical care, it is important to understand the perspectives and decision-making preferences of adolescents and young adults...
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📢 New publication in @GIMJournal 📢 Explores parents’ motivations to receive & reasons to decline adult-onset only #genetic disease risk information for their #children, the #decisionmaking process, suggestions for supporting #parents
https://t.co/tmF22VBqDw
#BabySeq #ElSI
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Very happy to share this research that explores how caregivers of pediatric patients with suspected genetic conditions approach decision-making about genomic sequencing, with a specific focus on family-level considerations. Read the full article here:
New Article! "Key drivers of #family- #level #utility of #pediatric #genomic #sequencing: a qualitative analysis to support preference research" first authored by @CHeRP_DPM Member, @hadleyssmith is published in @ejhg_journal #GS
https://t.co/G87IqYk4c8
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NEW STUDY: Our Health Policy Scholar @DrIKusters, w/ our Sr. RA @_AMGutierrez & collabs review spanish-language COVID-19 website info vs info in English provided by health departments of the top 10 cities. Take a read:
link.springer.com
Journal of Racial and Ethnic Health Disparities - The COVID-19 pandemic has brought new urgency to a longstanding problem: the US health system is not well-equipped to accommodate the...
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¿Se identifica como hispano/latino y ha recibido pruebas genéticas para el riesgo de cáncer hereditario o tiene antecedentes familiares de cáncer y/o diagnóstico de cáncer? Si es así, nos encantaría entrevistarlo sobre su experiencia. #pruebasgenéticas #cáncerhereditario
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Do you identify as Hispanic/Latino and have either received genetic testing for hereditary cancer or have a family history of cancer and/or cancer diagnosis? If so, we’d love to interview you about your experience! #genetictesting #hereditarycancer
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Honored to speak at #AlzLatinos2022 with such wonderful co-panelists! Thanks to Dr @ytquiroz for bringing us together for this panel on terminology in medical research. Let’s continue the conversation to find better ways to capture complex Hispanic/Latino identities in research!
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One of the primary federal programs intended to help immigrants integrate into the US faces serious challenges related to accessibility, practicality, & demand. Check out our new @MigrationPolicy report that looks at IELCE & potential fixes. @ACherewka
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In our latest research, we explored experiences of #COVID19-related stigma in the U.S. and described what characteristics were associated with experiencing #stigma during the #pandemic. Check out our paper now out in @APA_Journals' Stigma and Health! https://t.co/GL447h7GAL
"Empirical research characterizing the breadth of #COVID19 related #stigma in the U.S. is lacking & yet critically needed to inform interventions" Our team delves in @APA_Databases Stigma and Health @_AMGutierrez, @isabel_canfield @ChristiGuerrin1
https://t.co/p8ufOpdXIa
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Latest Article Assessment of COVID-19 Website Communication in Languages Other than English by Local Health Departments in the United States @DrIKusters @_AMGutierrez @BCMEthics @UHClearLake
https://t.co/hEhvcw60so
tandfonline.com
Managing the information needs of diverse populations through accessible, high-quality, and evidence-based health communication is critical to controlling the COVID-19 pandemic. Access to comprehen...
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New findings indicate a gap by local health departments to address issues re: equitable multilingual, multimodal #emergency #communication & underscore need from our HP Scholar @DrIKusters @UHClearLake & our RA @_AMGutierrez with collabs https://t.co/YAvEQvc2zl
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Our paper, out today, examines whether local #health departments are providing #equitable #COVID19 information to their limited English proficient constituents in their preferred language ( https://t.co/ssJfdLsP1w)
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How to conceptualize and measure access to #genomic medicine? New @hail_CSER #ELSI WG paper led by @_AMGutierrez outlines a thoughtful approach. Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium
cambridge.org
Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium - Volume 5 Issue 1
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Congratulations to @_AMGutierrez and the #ELSI team @hail_CSER! Important and thoughtful work examining access to #genomic medicine and research. 🧬🏥 📚- https://t.co/9TvBDHfz5Y
@ACTScience
cambridge.org
Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium - Volume 5 Issue 1
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Check out our new @MigrationPolicy report which uses an original framework to analyze how U.S. state and local governments have designed laws and policies to advance #languageaccess across their services. https://t.co/E9qI0sJ39m
migrationpolicy.org
Many states and localities have language access laws and policies to ensure people who are Limited English Proficient (LEP) have effective access to essential public services and institutions. This
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