Spina Bifida Association
@SpinaBifidaAssn
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Following
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Working to build a better and brighter future for all those impacted by Spina Bifida.
Alexandria, VA
Joined April 2009
Check out this Bladder Buzz Podcast episode - Understanding Lifelong Congenital Urology https://t.co/5A5LZlE9Vs
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New podcast on gene therapy for neurogenic bladder! Dr. Argy Stampas talks with EG 427’s Dr. Philippe Chambon about emerging treatments. Listen:
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Researchers at the University of Alabama want to learn about access to sexual education & relationship info among people with Spina Bifida. Your input can help improve patient care & education. 🔗
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Today isn’t just race day. We’re celebrating Spina Bifida Awareness Day as we do our part to help Richard’s mission. #SBAM25 🩵
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Racing for a greater cause! 🩵 @sammysmithSS and @JRMotorsports are joined tonight by honorary team member Richard Jenkins in support of spina bifida awareness. #SBAM25
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🎧 New #BladderBuzz episode! Host Sarah Dimeglio chats with Hollister’s Gina Powley & Rachel Boeche about catheterization tips, tricks, and how to find the right fit for you. Listen on Apple, Google, Stitcher, Spotify & Amazon Music!
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This Saturday, Richard Jenkins joins Sammy Smith’s pit crew at the Xfinity race to raise awareness for #SpinaBifida! Tune in on The CW at 7:30 PM EDT to see SB facts shared live, the SBA logo on the car, and SB featured on the retaining wall.
Richard Jenkins, a longtime NASCAR fan, has been looking to raise awareness for Spina Bifida. Last week, he thought he was joining a call about an ordinary visit to @MartinsvilleSwy. Little did he know, NASCAR, @JRMotorsports and @sammysmithSS were ready to surprise him with an
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🎧 New BladderBuzz episode! Madison Hughes & Dr. Molly DeWitt-Foy break down common tests for neurogenic bladder—why they matter & what to expect. 🔗 Listen:
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Did you know that no two cases of Spina Bifida are the same? Learn more about Spina Bifida at https://t.co/RkxzLvcgzp
#SpinaBifidaAwarenessMonth #SBAM25
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Did you know over 166,000 people in the U.S. live with Spina Bifida and 60% of those are adults? #SpinaBifidaAwarenessMonth #SBAM25
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Text SBAM25 to 1(571)517-1069 🔹 Get insight into challenges faced by people living with Spina Bifida 🔹 Learn how research, education, clinical care, networking, and advocacy play a role in addressing those challenges. 📲Text SBAM25 now to be part of it.
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MedStar National Rehabilitation Hospital in DC is recruiting adults (18+) with neurogenic bladder for a study on probiotic bladder wash dosage. Some may qualify to provide urine samples for $20 each. Contact Chris Riegner at Christopher.R.Riegner@Medstar.net or (202) 877-1560
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Did you know Spina Bifida is a neural tube defect (NTD) that occurs when a baby’s neural tube fails to develop or close properly, usually occurring during the first 28 days of pregnancy. #SpinaBifidaAwarenessMonth #SBAM25
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On #WorldSpinaBifida Day, Oct 25, we’re showing what daily life really looks like to someone with Spina Bifida. Text SBAM25 to 1(571)517-1069 to join the journey.
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What do you want the world to know about Spina Bifida? This year for #SpinaBifidaAwarenessMonth we want to know what you want the world to know about Spina Bifida. https://t.co/5hu2KWEV5W
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Did you know Spina Bifida is one of the most common congenital birth defects that cause disability? Every person who experiences Spina Bifida has a unique experience. No two cases are the same. Learn more - https://t.co/ZzcTowxm0S
#SpinaBifidaAwarenessMonth #SBAM2025
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October is #SpinaBifida Awareness Month! Head to our website to check out our 2025 Spina Bifida Awareness Month social media toolkit. Tag us and use #SBAM25 and #SpinaBifidaAwarenessMonth all month long. https://t.co/cwO8oK0YAc
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New site, same mission. Dive into our redesigned digital home today with enhanced accessibility, streamlined support, and strengthened pathways for community connections.
spinabifidaassociation.org
What can we help you find? Find support Helping people live longer, healthier lives Making an impact 40+ Clinic Care Partners across the U.S. 15 years...
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New Research Fund to Drive Spina Bifida Breakthroughs at Pitt and UPMC https://t.co/7dsD9UwSZu via @UPMCnews
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Bladder care is key for people with Spina Bifida. Luzi and Elizabeth found that intermittent cathing not only reduced health risks — it also improved their daily life. 💙 Now they’re sharing tips for others on a similar journey.👇 https://t.co/jLwIi6xIqH
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