South East Thames Paediatric Epilepsy Group
@SETPEG
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SETPEG is a network of professionals involved in the provision of epilepsy services for children, young people & families in the South East Thames region.
Joined December 2020
@SETPEG members 👇
We are looking for children aged 5 – 7 who do not have epilepsy to help us better understand sleep and learning in children who do have epilepsy. Interested in taking part? We're offering a voucher for participating! Find out more about the study here: https://t.co/WXZi1rmTs7
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Are you aged 12-17 or a parent/guardian of a young person aged 12-17 with a diagnosis of epilepsy? Would you or they be interested in taking part in a study? Take part here: https://t.co/RSgUtDELaU
#study #epilepsy #research
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Children and young persons clinical nurse specialist post in epilepsy is being advertised on the nhs jobs website for Brighton
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We're looking for 13 – 25 year-olds with epilepsy to join the Young Supporter team! 💜Have your voice heard and make a change 💜Join a community with shared experiences 💜Receive training 💜Attend exciting events 💜Boost your CV Find out more here: https://t.co/U5qgsvdGIC
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Lewisham and Greenwich are advertising for a paediatric epilepsy nurse on the nhs jobs website
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👇New job alert 🚨 📢 Are you an experienced paediatric nurse with experience in #epilepsy? @LG_NHS are looking for a @RoaldDahlFund Paediatric Epilepsy Clinical Nurse Specialist!
We are looking for a Paediatric Epilepsy Clinical Nurse Specialist to join our team. For more information please visit
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Today is SUDEP Action Day, a global day dedicated to raising awareness of SUDEP (Sudden Unexpected Death In Epilepsy). Join us in opening conversations, asking questions, and understanding the risks. #SUDEPActionDay2022 #TalkSudepNow
https://t.co/OLv87LrMXk
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I am going to this tremendous Childrens Epilepsy Surgery Service 10 year anniversary event - the program looks suuuuuuuper good Thurs 24 Nov face to face only - north of Bristol https://t.co/AxeiQRvh8H Pls RT @drcolindunkley @DrNickTwit @RCPCH_and_Us @Anthony16061946
eventbrite.com
It is 10 years since NHS England commissioned Children’s Epilepsy Surgery Services (CESS)
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Epilepsy can have a significant impact on young people's learning and inclusion in school life. Sign up for this free webinar to find out how young people with epilepsy can best be supported at school.
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Delighted to switch on Phase 2 @SFHFT. Now added digital video sharing & review function for any child with a neuro or non-neuro episode, alongside ongoing epilepsy platform for those with epilepsy. All integrated behind single system @digital_notts NHS App! More to do...
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Do you work with young people with epilepsy & their families? Please help us understand clinicians’ opinions & experiences about offering support about key topics of importance to young people & their families. Brief survey: https://t.co/U3It70d82L
#epilepsy #research #clinician
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Are you a Paediatric Oncologist, a Paediatric Neurologist or a General Paediatrician? The Commission on Human Medicines is looking to appoint new members to advise Ministers on the regulation of paediatric medicines and medical devices: https://t.co/5XvwD2U0K6
#Paediatrics
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📢 Exciting Opportunity! We are looking for a young person with a VNS device who would be willing to share their experiences and support us on an upcoming project. If you would like to know more information, please email us at youngreps@youngepilepsy.org.uk
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🚨 Epilepsy12 / OPEN UK annual conference alert! The fifth annual conference will take place online on Wednesday 21st September 2022 from 12.30pm. Register here: https://t.co/hKbWWmOqNe For more information, visit our website: https://t.co/Tem5WZ12a2
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Epilepsy12 and OPEN UK annual conference registrations are open! Taking place on Weds 21 Sept, the event will be completely virtual and begin at 12:30 pm. Find out more https://t.co/oDOYyYGsvv
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🚨 The RCPCH EQIP is back! The programme will once again offer an in-person training event on Saturday 17 Sept 2022 from 11:30 – 16:30 (venue in East Midlands). Register your team's interest & more info👉 https://t.co/M58Zi87AVb Application deadline: Mon 22 August #RCPCHEQIP
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Hello @SETPEG members and teams. Don’t miss your chance to register for the #RCPCH Epilepsy Quality Improvement Programme. #EQIP
@Epilepsy_12
https://t.co/qdE6JitxJU
New waves! Great to see the new call for teams to register for our next @Epilepsy_12 QI programme! (No doubt pasta voting will be in the mix!!) https://t.co/BrPd8CuCxU
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New waves! Great to see the new call for teams to register for our next @Epilepsy_12 QI programme! (No doubt pasta voting will be in the mix!!) https://t.co/BrPd8CuCxU
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It is #DravetAwarenessDay. Learn more about #DravetSyndrome in this blog by clinical nurse specialist, Amanda Tomalin. "Although officially a ‘rare’ condition, occurring in around 1 in every 15,000 live births, Dravet Syndrome is one of the most common genetic epilepsies"
.@EvelinaLondon paediatric epilepsy clinical nurse specialist Amanda Tomalin on #DravetSyndrome and the importance of international awareness days https://t.co/jUrStl5v0z
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