RareBoost
@RareDiseasesIBG
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The RareBoost ERA Chair project aims to establish Izmir Biomedicine and Genome Center (IBG) as a center of excellence in rare and undiagnosed diseases research
Izmir, Turkey
Joined July 2020
He stated that he is happy to contribute to the rare disease community in Türkiye. We would like to express our sincere appreciation for his valuable participation. #ICORD2025 #raredisease #research #undiagnosed
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📽️ Dr. Dave Pearce from @irdirc ( International Rare Disease Research Consortium) talked about the consortium and the importance of holding the 17th ICORD meeting in Türkiye.
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Prof. Rumen Stefanov interview on 17th ICORD Meeting in İzmir https://t.co/GH4ulrTPQI
#ICORD2025 #rarediseases #orphandrugs #İBG #RareBoost
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You can read the interview of our Project Manager, Emine Eylül Taskin, with @ERDERA_org
https://t.co/gIDn2Qc6aQ
#rarediseases #nadirhastalıklar #NMG #Türkiye #research
erdera.org
ERDERA interviews Emine Eylül Taşkın, Project Manager at ERDERA and at the İzmir Biomedicine and Genome Center (IBG)
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Join us on December 4 at 12:15 PM for this online event. 🔗 Please register at the link to participate: https://t.co/RdAZ0cWQUU
@ibgmerkezi
@Trail4L
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💫As #CHIRONProject, in collaboration with @ibgmerkezi and @RareDiseasesIBG, we completed the lecture “Introduction to Immunology” by Dr. Gerhard Wingender.
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3. Ulusal Nadir Hastalıklar Sempozyumu ve 17. ICORD Toplantısı için Prof. Dr. Uğur Özbek Röportaj ile gerçekleştirilen röportajı izlemek için:
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📢 İzmir Biyotıp ve Genom Merkezi Hayvan Deneyleri Yerel Etik Kurulu’nun düzenlediği 6. Deney Hayvanları Kullanım Sertifikası eğitim programına başvurular açılmıştır. 📌 Kayıt ve detaylı bilgi için lütfen linki takip edin; https://t.co/1SiFXr9f9a #İBG
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RUDiP üyesi Dr. Arif Çetin'in makalesi Nature Communications’ta yayınlandı. Dr. Arif Çetin ve ekibini bu yenilikçi katkılarından dolayı tebrik ediyoruz. QR kodu okutarak makaleye ulaşabilirsiniz. @ibgmerkezi
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We are excited to share that a RareBoost-supported study from Dr. Arif Çetin’s group has been published in Nature Communications. 👏 Congratulations to Dr. Arif Çetin and his team for this innovative work and publication. #RareBoost #naturecommunications #newpublication #İBG
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ERDERA Ulusal Yansıma Grubu Türkiye ilk yüz yüze toplantısını İBG'de gerçekleştirdi. Akademi, kamu ve hasta temsilcileri; #NadirHastalıklar araştırma alanında ulusal çabaları ilerletmek üzere bir araya geldi.
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Only 3 weeks to go!🚀 Join the 2nd International Conference on Clinical Research Networks, spotlighting global alignment on rare-disease data, diagnostics and CRNs. 📅 9–10 Dec 2025 (Hybrid) 🗣️ Programme: https://t.co/GXRHRHweoT 👉 Register: https://t.co/LhBhcfBfcs
#ERDERA
forms.office.com
The Second International Conference on Clinical Research Networks (CRNs) for Rare Diseases, titled “Connected for Impact: Mobilising the Global Rare Disease Research Ecosystem” will take place in...
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14 Kasım’da Dokuz Eylül Üniversitesi Sabancı Kültür Merkezi’nde düzenlenen 3. Ulusal Nadir Hastalıklar Sempozyumu, akademi, kamu kurumları ve endüstriyi bir araya getirerek Türkiye’de nadir hastalıklar alanındaki güncel gelişmeleri kapsamlı şekilde ele aldı. @ibgmerkezi
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The 3rd National Rare Diseases Symposium, held on November 14th at the Dokuz Eylül University Sabancı Cultural Center, brought together academia, public institutions, and industry to comprehensively address current developments in rare diseases in Türkiye. https://t.co/frU7N4ge0B
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🌍 Secure your spot! #ERDERA is hosting a two-morning virtual #workshop (20–21 November) focused on strengthening collaboration in rare disease research. 👉 Find out more and register: https://t.co/lhW4ehRbGh
#ERDERA
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Joining online, Dr. Zeynep Tümer presented her group’s efforts in sustainable genomics, focusing on DNA methylation profiling and the need for publicly accessible platforms. #ICORD2025 #RareBoost #raredisease #icordmeetings
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Dr. Khalid Fakhro highlighted rare disease gene discovery and population genetics shaping precision medicine in the Arab region.
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In this session, Dr. Mazhar Adli discussed his team’s work on functional gene characterization and disease modeling using CRISPR-based tools.
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The first session of the 17th Annual ICORD Meeting has just been completed!
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