MyositisAssocAust
@MyositisAust
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Joined May 2017
#Myositis Patients face other life-threatening disorders, including interstitial lung disease, antisynthetase syndrome, and a higher risk of cancer and other diseases. #TMACanHelp
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Explaining #myositis, the Idiopathic Inflammatory Myopathies, and how it affects our lives as patients is difficult. There isn’t a simple, clear-cut answer for us. Here are some tips to help explain myositis. https://t.co/2yPoN0BbA8
#inflammatorymyopathy #raredisease #autoimmune
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Up late and want to help support #MyositisAwareness? Join our Thunderclap message and share to invite others to join. https://t.co/XumwIBfwph
#myositis #myositisinfocus
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Men and women with rheumatoid arthritis are at increased risk of having a child with autism, according to a large study based on medical records from Denmark https://t.co/5WKqVD2ErG
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IVIG infusions in the home are improving quality of life, while reducing overall healthcare cost!
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Hear from #NORD on why #Medicaid crucially important 2 #raredisease community: https://t.co/DkmutNYUrG
#ProtectMedicaid #ProtectPatientsNow
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Your Feedback on the NDIS is needed! The joint Standing Committee on the National Disability Insurance Scheme...
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An Anti-Inflammatory Diet? https://t.co/7z7E9UzjC5 Does diet help you when living with #rarediseases like #Myositis?
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EDUCATE #4: WHAT IS #NecrotizingAutoimmuneMyopathy? Learn more and share with others! #myositis #raredisease #thinkzebras
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EDUCATE #1: WHAT IS #DERMATOMYOSITIS? Share this with others! (More to come this month) #myositis #myositisawareness
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Myositis is 1 of 80 autoimmune dieseases affecting 10% of the pop. of Aust / NZ. #RareDisease #Myositis Read more:
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#InternationalNursesDay: Why these unsung heroes put the needs of others first https://t.co/ghLT2nPIL8
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It´s out! #rarediseasday 2017 video! https://t.co/kOu6XJPxHt
#insolitus #raredisease #loveit #watchitnow #kids...
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I wonder what the stats are here in Australia. 1 n 17 is a lot!
Did you know that 3.5 million people living in the UK will be affected by a #RareDisease at some point in their life? That's 1 in 17!
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sign up link to stay up to date with all things Myositis https://t.co/qtoolMbsLY
#MyositisAwareness #RareDiseases
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@prime7tv May is Myositis Awareness Month. Please spread awareness. Refer to our website https://t.co/088219A69d
#RareDiseases #Myositis
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May is #Dermatomyositis awareness month! https://t.co/8SP2t0lbQt
#myositis Support those who fight this condition! #KatieSmiles
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