M.E. Australia
@MyalgicE
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2K
Following
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Championing change: advocacy, news and collaboration for people with Myalgic Encephalomyelitis and chronic fatigue syndrome #pwME #MyalgicE
Australia nationwide
Joined February 2016
ME Australia is a collaborative network of people across all states and Canberra, including people with ME, families and others with a close connection to someone with ME. #PWME #MyalgicE #MyalgicEncephalomyelitis #MEAwarenessHour
https://t.co/Y9RtbfiPun
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For International ME Awareness Month, I wish to shine a spotlight on M.E. Australia & Sasha @sashanimmo for their efforts in promoting the ME-IC Primer which educates medical professionals about expert diagnosis (ICC).🧑🔬 🩺🌡️🛌🌏📢
The International Consensus Primer for Medical Practitioners is the gold standard for diagnosing #MyalgicEncephalomyelitis. A broad panel of tests (page 11) provides a more robust basis to identify symptom patterns, abnormalities & orient treatment.👇#ME
https://t.co/NplqJI18Ba
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@TurnItUp4ME @sashanimmo Thank you @sashanimmo & @MyalgicE for advocating for #pwME and the ICC criteria. #meawarenessmonth
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@PhillippaHolla1 @exceedhergrasp1 @thane_black @neurosqueak We need a database of #MyalgicEncephalomyelitis (ME) outbreaks by date and location @MEAdvocatesIre @meadvocacy_org @meactionscot @MEActNet @MyalgicE @MillionsMissgFr @MillionsMissin2 @MillionMissCan @FinlandMissing @MMissingGermany @OpenMedF @sheffieldmefm @MMStavanger #pwME
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“Graded exercise programs have been shown to be beneficial”. Not true. “Unwarranted concerns that any physical activity could be harmful may lead you maladaptive attitudes that increase disability”. These are guidelines used today in Australia. #pwme #MyalgicEncephalomyelitis
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The @australia_call petition is extended - please read and consider signing. #pwme #MyalgicEncephalomyelitis
#MEAwarenessMonth #auspol
Here’s the petition anyone around the world can sign. Please do! Last day today! Thanks Andrew for all your hard work, and @ElizaCharley
#pwme #MyalgicEncephalomyelitis
https://t.co/tXzeBF1E7j
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Ella is only 20 years old, but it's been almost four years since her feet have touched the ground. She is unable to lift her head, to sit upright and she's often unable to talk or communicate. #myalgicencephalomyelitis #northernbeaches
https://t.co/be2MgVVkr1
theleader.com.au
"Everything I loved to do, and everything that made me who I was is gone."
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12th May is #MEAwarenessDay all across the globe. For decades #pwME have been neglected & suffered gaslighting by many doctors & others in the medical field, the community at large, friends & even family. These are the ‘Facts about #ME in Australia’.👇 https://t.co/Gg1KnczF61
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The International Consensus Primer for Medical Practitioners is the gold standard for diagnosing #MyalgicEncephalomyelitis. A broad panel of tests (page 11) provides a more robust basis to identify symptom patterns, abnormalities & orient treatment.👇#ME
https://t.co/NplqJI18Ba
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@MyalgicE @TheRACP @ceo_nhmrc @nhmrc 🇦🇺 needs new clinical guidelines yesterday. In the interim, please release a formal statement to stop the recommendation of graded exercise and cognitive behavioral therapy as treatments. #pwME deserve better. #MEcfs #MEAwarenessDay #MyalgicEncephalomyelitis
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#MEAwarenessDay is today, 12th May. For decades, this below has been the plight of people with #MyalgicEncephalomyelitis. It’s beyond time for change, especially with so much biomedical research showing many physiological abnormalities in #pwME. We need far more research funding!
12th May is #MEAwarenessDay all across the globe. For decades #pwME have been neglected & suffered gaslighting by many doctors & others in the medical field, the community at large, friends & even family. These are the ‘Facts about #ME in Australia’.👇 https://t.co/Gg1KnczF61
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On #MEAwarenessDay, let’s highlight the work of advocates who are both very sick and working hard for us. Thanks @australia_call for your petition and submission to the #DisabilityRoyalCommission #pwme #Disability
Link to the petition:
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2022, & this is still the situation in Australia. When will #pwME receive proper medical guidelines, care & treatment, especially from medical professionals? @TheRACP @RACGP @RACGPPresident @nhmrc @GregHuntMP
12th May - #MEAwarenessDay
@TheRACP #ME (#CFS) Medical Guidelines of 2002 are outdated. Recommended #GET is potentially harmful to #pwME, according to biomedical research,& the UK NICE Guidelines. Expectations for new clinical guidelines in Australia👇 https://t.co/rOdhdlsn29
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Victims of this ignorance are patients, clinicians, #HealthcareSystem, social security, and more. We advocate ME International Consensus Primer for Medical Practitioners (ICP). #Healthcare #MEcfs #CFSfukuda #MEicc
Why is the Royal Australian College of General Practitioners @RACGP still pushing GET for "CFS" and still citing the discredited PACE study?
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12th May is #MEAwarenessDay all across the globe. For decades #pwME have been neglected & suffered gaslighting by many doctors & others in the medical field, the community at large, friends & even family. These are the ‘Facts about #ME in Australia’.👇 https://t.co/Gg1KnczF61
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12th May is International #ME Awareness Day. 👇 #MyalgicEncephalomyelitis is a disease that places a huge burden on up to 250,000 Australians & their families. There’s a dearth of meaningful biomedical research funding, & currently no treatment or cure. https://t.co/k77mxcH26n
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12th May - #MEAwarenessDay
@TheRACP #ME (#CFS) Medical Guidelines of 2002 are outdated. Recommended #GET is potentially harmful to #pwME, according to biomedical research,& the UK NICE Guidelines. Expectations for new clinical guidelines in Australia👇 https://t.co/rOdhdlsn29
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12th May - #MEAwarenessDay
@TheRACP #ME (#CFS) Medical Guidelines of 2002 are outdated. Recommended #GET is potentially harmful to #pwME, according to biomedical research,& the UK NICE Guidelines. Expectations for new clinical guidelines in Australia👇 https://t.co/rOdhdlsn29
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12th May is #MEAwarenessDay all across the globe. For decades #pwME have been neglected & suffered gaslighting by many doctors & others in the medical field, the community at large, friends & even family. These are the ‘Facts about #ME in Australia’.👇 https://t.co/Gg1KnczF61
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The International Consensus Primer for Medical Practitioners is the gold standard for diagnosing #MyalgicEncephalomyelitis. A broad panel of tests (page 11) provides a more robust basis to identify symptom patterns, abnormalities & orient treatment.👇#ME
https://t.co/NplqJI18Ba
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12th May is International #ME Awareness Day. 👇 #MyalgicEncephalomyelitis is a disease that places a huge burden on up to 250,000 Australians & their families. There’s a dearth of meaningful biomedical research funding, & currently no treatment or cure. https://t.co/k77mxcH26n
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