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LadyPZander

@LadyPZander

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Wife,mother &pet owner๐Ÿ‘ฉโ€โค๏ธโ€๐Ÿ‘จ๐Ÿง‘๐Ÿผ๐Ÿ‘ง๐Ÿผ๐Ÿถ๐Ÿˆโ€โฌ›Passionate about raising awareness of the #ValproateCrisis & the damage that #Valproate can cause to an unborn child

United Kingdom
Joined February 2009
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@LadyPZander
LadyPZander
2 years
โ€œThe need for redress is now. I want the government to get on with it, to set up a scheme for patientsโ€ฆโ€ says @PSCommissioner Thanking @JasonFarrellSky and @SkyNews for their coverage of the the #ValproateCrisis & the need for redress @JanetWilliams99 @Emma4facs @catherinecox2
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@LadyPZander
LadyPZander
9 days
#ValproateCrisis The lack of action from govt sends a message to victims that they do not matter! The harm caused was deliberate due to govt actions and the victims will live with this forever #ActNow #ManMadeTragedy #Scandal #Epilepsy #JustGetOnWithIt #Justice @RebeccaHarrisMP
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
9 days
For 50 years, this Government and those before it have knowingly allowed a drug to remain on the market that disables babies in the womb. The suffering continues today. No accountability. No compassion. #Valproatescandal #Justice @JanetWilliams99 @wesstreeting
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@LadyPZander
LadyPZander
1 month
@PJOnline_News
The Pharmaceutical Journal
1 month
In exclusive comments to #ThePJ, #HenriettaHughes, @PSCommissioner, has urged the @GOVUK to provide a full response to her #valproate recommendations in report published nearly two years ago https://t.co/0K38SQEdwY
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@JanetWilliams99
Janet Williams MBE INFACT Campaign
1 month
Tomorrow will be 20 months , since the #HughesReport was given to the @DHSCgovuk on costs of compensation for Valproate. As families continue to suffer anxiety over welfare reform & lack of duty of care how much longer will they be made to wait. @Emma4facs @SharonHodgsonMP
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@LadyPZander
LadyPZander
2 months
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
2 months
#CompensationforValproate #Justice Disappointing to keep receiving the same copy and paste response all this time. Our children deserve better than this! @JanetWilliams99 @Infactuk System safety before patient safety!!! #Coverup #Covereringtheirbacks
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@JanetWilliams99
Janet Williams MBE INFACT Campaign
5 months
Therefore, will Minister meet to @CatSmithMP & @Infactuk to discuss the Quality outcome framework & statement of financial Entitlements for Epilepsy, only having 1 point at present, to add the issue of avoidable harm in pregnancy & extra points to ensure the PPP is given by GPs?
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@JanetWilliams99
Janet Williams MBE INFACT Campaign
5 months
Written PQ by @CatSmithMP on 16th June asked the @DHSCgovuk for @wesstreeting & @AshleyDalton_MP to meet to discuss further safety issues to prevent avoidable harm from Valproate, question was avoided. 1/2
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@LadyPZander
LadyPZander
6 months
Thank you to @arthurparashar at @MailOnline for reporting on the #ValproateCrisis Our voices need to be heard. We will fight for our children but #government has a responsibility to help them too as they caused this harm INTENTIONALLY and our children will live with this forever
@DailyMail
Daily Mail
6 months
The birth defect scandal bigger than thalidomide: 'Forgotten' mothers of children left disabled by epilepsy drug taken during pregnancy fear kids will 'die in poverty' without compensation
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@JanetWilliams99
Janet Williams MBE INFACT Campaign
8 months
A week ago the story of #Valproatecrisis was released in a podcast by @lewis_goodall followed by the Westminster Hall Debate on the delay of compensation. A scandal bigger than Thalidomide!
Tweet card summary image
podcasts.apple.com
Podcast Episode ยท The News Agents ยท 21/03/2025 ยท 45m
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@LadyPZander
LadyPZander
9 months
๐Ÿค๐Ÿ’œ๐Ÿค๐Ÿ’œ๐Ÿค๐Ÿ’œ Did you know that St. Valentine is the patron saint of epilepsy ๐Ÿค๐Ÿ’œ๐Ÿค๐Ÿ’œ๐Ÿค๐Ÿ’œ #Epilepsy #EpilepsyAwareness #StValentine #ValentinesDay @Emma4facs @JanetWilliams99 @Infactuk @catherinecox2 @lisaboothman99 @littlelegs2006
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@LadyPZander
LadyPZander
10 months
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
10 months
๐Ÿ’ซ๐Ÿ’ซWhen dreams come true ๐Ÿ’ซ๐Ÿ’ซ In 2012 when we @JanetWilliams99 established @Infactuk in our Business Plan one of our aims was dedicated services for those harmed by Epilepsy Meds in Pregnancy. Today that dream became a reality ๐Ÿคฉ๐Ÿคฉ@rebbromley https://t.co/vfpPQa7QZx
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@JanetWilliams99
Janet Williams MBE INFACT Campaign
11 months
Thank you to @CatSmithMP for hosting our Drop in Day to PCH this morning. Information to MPs on the #Valproatecrisis is vital at this stage of the campaign & we look forward to continuing the fight in the New Year. @Infactuk @Emma4facs @PSCommissioner @wesstreeting
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@JanetWilliams99
Janet Williams MBE INFACT Campaign
11 months
It was brilliant to talk to long time supported @GwynneMP today about the #Valproatecrisis and prevention. #compensationforvalproate @Emma4facs @Infactuk @CatSmithMP
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@JanetWilliams99
Janet Williams MBE INFACT Campaign
11 months
Following our @Infactuk @Emma4facs meeting with Health Minister Baroness Merron @DHSCgovuk we look forward your response to our question "was the #Valproatecrisis compensation calculated in the previous spending Review our the latest one". A very urgent and important question
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@JanetWilliams99
Janet Williams MBE INFACT Campaign
11 months
On our way into Parliament this morning.. First chat of the day with @wesstreeting you for your time & recognition that #Valproatecrisis must have the attention it deserves. @Infactuk @Emma4facs @CatSmithMP @ShaunLintern @thetimes @Christian4BuryS @GwynneMP
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@LadyPZander
LadyPZander
11 months
#ValproateCrisis So thankful for the support of my MP @RebeccaHarrisMP with regards to justice for valproate victims. #UKGovernment needs to #ActNow #Justice #Redress #HughesReport #CompenasationForValproate @Infactuk @Emma4facs @JanetWilliams99
@JanetWilliams99
Janet Williams MBE INFACT Campaign
11 months
Thank you so muchbto @RebeccaHarrisMP for calling in & supporting #Valproatecrisis @Infactuk Drop in Day at PCH @Emma4facs @LadyPZander
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@LadyPZander
LadyPZander
11 months
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
11 months
โ€œWe are working at pace, and we remain focused on making meaningful progress. This is a complex area of work, involving several Departments, but we are committed to providing an update at the earliest opportunity. โ€œ
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@LadyPZander
LadyPZander
11 months
DECADES on,victims of the #ValproateCrisis are still awaiting #Redress as recommended in the @IMMDSReview #CumberlegeReview from 4 years ago & further outlined in the #HughesReport Hoping for a positive response soon #Justice @RebeccaHarrisMP @Infactuk @Emma4facs @JanetWilliams99
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
11 months
#CompensationforValproate #HughesReport #Cumberlegereview @GwynneMP โ€œ Although the Government are not yet in a position to comment on the recommendations, I assure Members that we are considering the wide range of work set out in the report.โ€ @thetimes @ShaunLintern
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@LadyPZander
LadyPZander
1 year
This was monumental for the victims affected by Valproate Despite recommendations made in the @IMMDSReview in 2020, our children are STILL awaiting justice Following the release of a further report in 2024 about redress @PSCommissioner said Government should just get on with it
@Emma4facs
Emma Murphy (INFACT) โ˜˜๏ธ๐Ÿ’•๐Ÿ˜˜๐Ÿฆ‹
1 year
6 years ago today we @JanetWilliams99 gave Oral evidence to The Independent Medicines and Medical Devices Review Uncovering the research & evidence we found at National Archives of 1 of the biggest Manmade medical disasters Thousands of UK victims STILL waiting for justice โ˜น๏ธ
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