Lane Fox Respiratory Unit Patients' Association
@LFRUPA
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Official Twitter account of @GSTTnhs LFRUPA, supported by @NickHartGSTT @DrPBmurphy and @LaneFoxResearch Operating under the auspices of @GSTTCharity
London, England
Joined May 2019
Dear all, I hope you're having a pleasant afternoon. It’s that time of year again! We’re excited to invite you to the Summer Annual Event, taking place on Sunday, 22 June 2025 at 12:30 PM. Please RSVP by 16/06/2025 by scanning the QR code included in this invitation.
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Libby describes the costs of breathing on #WorldHMVDay #respiratory @LFRUPA @HMViPGroup #breath #breathless
'For people who live with ventilation, breathing is not something that comes naturally and not something that comes for free.' https://t.co/CxrSmpWQuy
#WorldHMVDay #CareIsKey
@hmvip @MDUK_News @SMA_UK_ @PathfindersNMA @EducationSheff @DisMatters
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On #WorldHMVDay, we are sharing podcast conversations with those involved in receiving and providing care. To watch and learn more about the vital role of carers in HMV go to https://t.co/gVB5EnDNu2.
#HMVcareiskey #Addinglifetoyearsoyears #hmvip
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Join us in celebrating #WorldHMVDay! Today, we're shining a light on the incredible carers who support HMV users to live life to the fullest. Show your support by sharing #HMVcareiskey and help us recognise their vital role. #addinglifetoyears
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Honoured to be working with you guys improving respiratory health for us all. @NickHartGSTT @LaneFoxResearch @HMViPGroup @RBHHomeVent @TbmCure @LFRUPA @Polychondritis @SiLVaH_UK @uk_hmv @relacs_uk @DrPBMurphy @RebDCruz @BTSrespiratory @TheMightySite @RareBeacon #crippingbreath
New blog post by our fantastic community researchers! Blog post #7 Experts by experience: Our Community Researcher Cooperative https://t.co/m8Va7vOVcW
@KirstyLiddiard1 @loubietheartist @JamieRHale @CRIPticArts @gracearjoseph @JulieCarmel1 @jenniferkettle1 @suzanneglover0
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I’d love to hear your story. Contact me at a.morley0320231@arts.ac.uk. #ArtAndScience #VentilatorProject #ArtExhibition🙂
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Hi, I’m Andrew Morley, an artist and doctor at Central St Martins. For my graduation show, I’m creating a sculpture on home mechanical ventilation and looking for participants to share their experiences. If you use a ventilator and are open to an interview.
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Good afternoon! I hope you had a wonderful bank holiday!
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please feel free to get in touch with me. I’d love to hear from you! Stay well, and looking forward to connecting soon!
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Hello Everyone! I hope you're all doing well! I'm reaching out to see how everyone is and to let you know that we are currently looking for new matrons to join Lane Fox Respiratory Unit Patient Association. If you know anyone who might be interested! 😃
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@LFRUPA An honour in memory of my husband Sean. Always in our hearts 🧡❤️🧡❤️ and loved forever and ever. We will be reunited.
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A Huge Thank You to Chris! In honour of his husband, Sean Benny, Chris Benny has raised an incredible nearly £2.3k for the Lane Fox Unit. Your amazing fundraising efforts will help ensure the Lane Fox Unit continues to receive the support it needs to provide exceptional care.
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What an AMAZING Summer Event! Thank you to everyone who joined us for an unforgettable day of music, food, and speakers! 📷📷📷 A huge shout out to our incredible community for making this event a smashing success! 📷 Your energy and smiles made it truly special. 30.06.2024
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📷📷 Bake Sale SUCCESS! 📷📷 We did it again! A HUGE thank you to everyone who came out and supported our Christmas bake sale! 📷 Your generosity and love for all things sweet made this event a massive success! 📷📷 Thanks to you, we raised £303.65 for LFRUPA!
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📷📷 Cake Sale Success! 📷📷 14.06.2024 A HUGE thank you to everyone who came out and supported our cake sale! 📷 Your love for delicious treats helped us raise funds for LFRUPA and we couldn't have done it without you! 📷
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The highly anticipated LFRUPA summer event has arrived! We are thrilled to invite you all to Shepherd Hall at St Thomas' Hospital on Sunday 30th June at 12:30pm! LINK TO RSVP: https://t.co/3kwXbVfwWH
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🎉The Lane Fox Respiratory Patients Association is fundraising for Lane Fox unit To raise funds, we are having a bake sale on June 14 from 11 a.m. to 3 p.m. at Central Hill, St. Thomas📷 A good cause! Spread the word📷 🥳
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The renovated Lane Fox garden is looking fantastic! A huge thank you to all of our donors and to everyone who helped! We hope all of our patients and staff will enjoy the wonderful space in the sun @GSTTCharity @GSTTnhs @DrPBMurphy @NickHartGSTT @LaneFoxResearch
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Do you look after patients with neuromuscular conditions? #NMD Please complete our survey to tell us what you think is important to measure in future studies on secretion clearance. Your voice is vital to make this work! https://t.co/nOKVqoOPZ8
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