LAMFoundation Profile Banner
TheLAMFoundation Profile
TheLAMFoundation

@LAMFoundation

Followers
1K
Following
879
Media
1K
Statuses
3K

Delivering facts about #LAM #RareDisease and The LAM Foundation. We're dedicated to funding research, advocacy and awareness to improve the QoL for all LAM pts.

Cincinnati Ohio
Joined April 2010
Don't wanna be here? Send us removal request.
@LAMFoundation
TheLAMFoundation
1 year
Join our supportive network of scientists, clinicians, and LAM patients. Receive valuable resources and stay informed on the latest LAM-related news and events. Sign up now: https://t.co/TJ6Mwl6mO9 #Curelam #LAM #lymphangioleiomyomatosis
0
0
0
@LAMFoundation
TheLAMFoundation
17 hours
Join Megan this #GivingTuesday to support women with LAM! 💙 Donate → https://t.co/rx2d66Zxp3 #TheLAMFoundation #CureLAM #RareDisease #GamingForGood #GivingHope
0
0
0
@LAMFoundation
TheLAMFoundation
4 days
Give a gift that gives back this holiday season! Check out our store for popular “Can you say lymphangioleiomyomatosis” t-shirts, Rosie mugs, and more. A portion of the proceeds supports The LAM Foundation. Spread the word! https://t.co/WsSWKjoIQx
0
0
0
@LAMFoundation
TheLAMFoundation
5 days
Your support inspires us every day as we work toward a future without LAM. #ICYMI - Please enjoy this video from members of our Board of Directors. https://t.co/3hA0lhFbaA #curelam See less
0
0
0
@LAMFoundation
TheLAMFoundation
6 days
Recording Now Available Listen as Dr. Henske and Dr. Johnson, share conference highlights, key takeaways, and what has them excited for the future of LAM research. Watch Now: https://t.co/enAXIztvLM #RareDisease
0
0
0
@LAMFoundation
TheLAMFoundation
11 days
THANK YOU FOR YOUR GRACE, GRIT, AND HEART. Your support inspires us every day as we work toward a future without LAM. Wishing you warmth, hope, and peace this season. THE LAM FOUNDATION P.S. Please enjoy this video from members of our Board of Directors. #curelam
0
0
0
@LAMFoundation
TheLAMFoundation
13 days
You are invited to a Circle of Hope webinar on 12/15, 7 PM – 8:30 PM ET. Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way. Register: https://t.co/qMZTFmUcAh #Curelam
0
0
0
@LAMFoundation
TheLAMFoundation
14 days
Tonight: Join 2025 International LAM Research Conference Co-Chairs, Dr. Henske and Dr. Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research. Register Now: https://t.co/nLbtBvlXOA #RareDiseaseResearch
0
1
1
@LAMFoundation
TheLAMFoundation
15 days
Tomorrow: Join 2025 International LAM Research Conference Co-Chairs, Dr. Henske and Dr. Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research. Register Now: https://t.co/nLbtBvlXOA #RareDiseaseResearch
0
0
1
@LAMFoundation
TheLAMFoundation
17 days
Join 2025 International LAM Research Conference Co-Chairs, Dr. Elizabeth Henske and Dr. Simon Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research. Register Now: https://t.co/nLbtBvlXOA #RareDiseaseResearch
0
0
0
@LAMFoundation
TheLAMFoundation
20 days
Meet Frances, our LAM co-liaison for Region 15: NM, southern, and western TX! Diagnosed in 2013, she offers hope and support to LAM patients, especially in rural areas and to those considering adoption. Find a liaison near you: https://t.co/STSAARhIZD #Curelam
0
0
0
@LAMFoundation
TheLAMFoundation
21 days
Join 2025 International LAM Research Conference Co-Chairs, Dr. Elizabeth Henske and Dr. Simon Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research. Register Now: https://t.co/nLbtBvlXOA #RareDiseaseResearch
0
0
1
@LAMFoundation
TheLAMFoundation
26 days
🎉 Shoutout to The LAMinators, Chowchilla Champs, Team Denver, and Team Love my Lungs! Together, they exceeded their combined Laps for LAM goal of $10k! We are grateful to everyone who fundraised, donated, or shared a post. Your support is vital to the LAM community. #curelam
0
0
0
@LAMFoundation
TheLAMFoundation
27 days
Join us for Rare Disease Week on Capitol Hill, Feb 24–26, 2026! Educate Congress & apply for travel scholarships by Nov 8. Learn More: https://t.co/Ql0An7RskQ #RareDiseaseWeek #LAMFoundation #EveryLifeFoundation #CapitolHill #RareDiseaseAdvocacy
0
0
1
@LAMFoundation
TheLAMFoundation
28 days
Join 2025 International LAM Research Conference Co-Chairs, Dr. Elizabeth Henske and Dr. Simon Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research. Register Now: https://t.co/nLbtBvlXOA #RareDiseaseResearch
0
0
0
@LAMFoundation
TheLAMFoundation
1 month
It's here! The October edition of The LAM Foundation newsletter is now available. Click here to read the latest: https://t.co/qXOOU9JlHj #curelam #LAMposium2025 #raredisease #thelamfoundation
0
0
0
@LAMFoundation
TheLAMFoundation
1 month
Meet Teri Childs, our LAM Liaison for Quebec! She is here to provide support to fellow LAM patients. Learn more: https://t.co/STSAARhIZD #TheLAMFoundation #LAMAwareness #RareDiseaseSupport #curelam
0
0
0
@LAMFoundation
TheLAMFoundation
1 month
Join our supportive network of scientists, clinicians, and LAM patients. Receive valuable resources and stay informed on the latest LAM-related news and events. https://t.co/2DU9modRmA #Curelam #LAM #lymphangioleiomyomatosis
0
0
0
@LAMFoundation
TheLAMFoundation
1 month
A Promising Breakthrough in Lung Testing for LAM Patients: Introducing Oscillometry We’re excited to share a promising new development that could transform how lung health is monitored in LAM patients. Read the whole story: https://t.co/zivlxaCHtm #PulmonaryResearch
0
0
0
@LAMFoundation
TheLAMFoundation
1 month
Join us for Rare Disease Week on Capitol Hill, Feb 24–26, 2026! Educate Congress & apply for travel scholarships by Nov 8. Learn More: https://t.co/Ql0An7RskQ #RareDiseaseWeek #LAMFoundation #EveryLifeFoundation #CapitolHill #RareDiseaseAdvocacy
0
0
0