Host Patrick James Lynch reflects on turning forty…and on forty years of life with hemophilia — joined by Dr. Donna DiMichele. https://t.co/MRz7jBwUqW Supported through advertising by @SanofiUS #bleedingdisorders #clinicalresearch #hematology #GHRpod #bloodstreammedia

When researchers and clinicians come together nationally, rare disease studies can build on each other to set new care standards. Dr. Donna DiMichele breaks down this collaborative approach. https://t.co/MRz7jBwUqW Supported by @SanofiUS #clinicalresearch #hematology #GHRpod

Maria Santaella from @nbd_foundation explains why including women in studies is critical—and how we can ensure non-HTC clinicians take these findings seriously. https://t.co/MRz7jBwUqW Supported through advertising by @SanofiUS #clinicalresearch #hematology #GHRpod

Dr. Michael Recht explains how the Hemophilia Health Joint Score gives the bleeding disorders community a validated way to track overall joint health on. https://t.co/MRz7jBwUqW Supported through advertising by @SanofiUS #clinicalresearch #hematology #GHRpod #bloodstreammedia

Dr. Donna DiMichele explores how LEAs can take the next step—discussing findings among themselves rather than only through clinicians. https://t.co/MRz7jBwUqW Supported through advertising by @SanofiUS #clinicalresearch #hematology #GHRpod #bloodstreammedia

Samantha Carlson, LMSW at NBDF, explains how HTCs strengthen mental health outcomes—and what’s lost when care happens outside the network. https://t.co/MRz7jBwUqW Supported through advertising by @SanofiUS #clinicalresearch #hematology #GHRpod #bloodstreammedia

Michael Recht shares why demonstrating the impact of federally supported care centers is critical on the latest GHR. https://t.co/MRz7jBwUqW Supported through advertising by @SanofiUS #clinicalresearch #hematology #GHRpod

Dr. Sholzberg explains how data could transform care for the bleeding disorders community. Dawn Rotellini adds that to understand outcomes, we need to count every woman and carrier from birth. https://t.co/MRz7jBwUqW Supported by @SanofiUS #clinicalresearch #hematology #GHRpod

On this episode of GHR, Dr. Robert Sidonio explains the limits of the “gold standard” Alkaline Hematin Method for quantifying menstrual blood loss. https://t.co/MRz7jBwUqW Supported through advertising by Sanofi. #clinicalresearch #hematology #GHRpod #bloodstreammedia

“It must be in my head.” In this episode of the GHR we explore, with @nbd_foundation's Dawn Rotellini, how clinicians can validate all bleeding symptoms—not just the severe ones. https://t.co/MRz7jBwUqW Supported by @SanofiUS #clinicalresearch #hematology #GHRpod

In this episode, we take a deep dive into the state of the treatment pipeline for bleeding disorders recorded live at the @nbd_foundation Bleeding Disorders Conference. https://t.co/MRz7jBwUqW Supported through advertising by @SanofiUS #clinicalresearch #hematology #GHRpod

This episode of GHR explores the long-overdue conversation about women with hemophilia. Listen, Rate, Review, and Subscribe! Supported through advertising by @SanofiUS #hemophilia #haemophilia #bleedingdisorders #clinicalresearch #hematology #GHRpod #bloodstreammedia

Dr. Donna DiMichele describes how the clinical trial process can provide deeper insights into treatment outcomes, challenges, and lived experiences on the latest episode of the GHR. https://t.co/MRz7jBwUqW Supported by @SanofiUS #clinicalresearch #hematology #GHRpod

Maria Santaella gives insight on @nbd_foundation 's initiative, Community Voices in Research, a tool to collect the lived experience of those living with bleeding disorders. https://t.co/MRz7jBwUqW Supported by @SanofiUS #clinicalresearch #hematology #GHRpod #bloodstreammedia

Dr. Michael Recht shares his thoughts on the importance of real world data collection and patient engagement in hemophilia care on the latest episode of GHR. https://t.co/MRz7jBwUqW Supported by @SanofiUS #clinicalresearch #hematology #GHRpod #bloodstreammedia

The latest episode of the GHR focuses on the psychological aspects of living with bleeding disorders and how this affects care, delivery, and research. https://t.co/MRz7jBwUqW Supported through advertising by @SanofiUS #bleedingdisorders #clinicalresearch #hematology #GHRpod

Kate Bazinsky discusses the psychological aspects of living with bleeding disorders, and how factors like stigma and adaptation, can hinder progress. https://t.co/MRz7jBwUqW Supported through advertising by @SanofiUS #bleedingdisorders #clinicalresearch #hematology #GHRpod

Randy Curtis on advocacy needs for the bleeding disorder community, who can be considered "medically complex". https://t.co/MRz7jBwUqW Supported by @SanofiUS #bleedingdisorders #clinicalresearch #hematology #GHRpod

Social worker Jackie Bottacari speaks about barriers to care for substance abuse as our expert panel discusses treatment burden from a patient to provider perspective. https://t.co/MRz7jBwUqW Supported by @SanofiUS #bleedingdisorders #clinicalresearch #hematology #GHRpod

Featuring: Kate Bazinsky (@KBazinsky), @bdsumhac Randy Curtis, Patient Reported Outcomes, Burdens, and Experiences (PROBE) Study Debbie de la Riva (@DebbiedelaRiva1), LCSW Jackie Bottacari, LCSW