FND FrieNDs
@FNDFrieNDsUK
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Registered charity 1176608. Supporting adults & children affected by Functional Neurological Disorder (FND) in the South West of England.
Bradley Stoke, England
Joined July 2021
Someone's been in touch with us that needs people for a research study. Check the ad out here: https://t.co/0HcS0GdjZ8
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We're at @The_Charcot Therapy centre each 1st Fri of a month now for an #FND drop-in. Next 1 on 2nd June & also celebrating our 7 Yr birthday! #Gloucester #Gloucestershire
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FND Info can take a bit of poking around so we give all our members some really useful publicly available info that we've now popped on our website so do have a look: https://t.co/J18VMiVLVX
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Month ago, few orgs organised presentations for Awareness Day. There were some wonderful talks from specialist doctors. We've popped some on our website: https://t.co/Q8vAeF104u
@DrNickTwit @FNDAction @FNDDimensions @FNDAus #DrKasiaKowlowska #YoungVoices4FND #Voices4FND
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We're running a drop in session on Fri 14th April for any FND patients, carers, friends or family. It's at @The_Charcot from 10am - 12pm. We'd love it if you can make it. :) #FND #Gloucester #Gloucestershire
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Recently with the help of a few paediatric specialists we created a story to explain FND a lot better to kids. The story is at https://t.co/LrRBiDOEnG Really hope it helps. :D
Me evaluating a kid w/ FND: “how did rehab explain FND to you” Kid: “a PT said there’s nothing physically wrong with you, you can stop the tics” Kid at end of eval: “I’m going to write a letter to that hospital that they need to change their ways” #PTtwitter #MedTwitter
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FND is in the media again! Yay! :) There's a nice aticle where our Chair (@mandydr04) is interviewed raising the profile of #FND. It's in Take a Break magazine. Grab a copy today! @takeabreakmag
#Voices4FND #Devon #NewtonAbbot
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This is such a gift to our FND community and beyond. A huge thank you to all the authors 🙏 @IngridHoeritza1 @SelmaAybek @JanBakerVoice @janealty1 @fatal_sms @DrBurness @MallamElizabeth @CNicholsonOT @susannah_pick @BibaStanton @lauramcw et al...
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Recently a sports photographer was at #StratfordUponAvon's Boat Club to see the Adaptive (disabled) Squad. 1 member has FND. The sport accepts/includes any & all members without dispute (as long as safety is considered). @BritishRowing @SuabcAdaptive @DisSportsNet #Warwickshire
Guess where I have been today, Stratford upon Avon and photographing a few disabled rowers #adaptive #rowing #river #disabled #differently #able #team #sport #fun #all #abilities #NoLimit
#exercise @SuabcAdaptive
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Thanks so much to @DisSportsNet for visiting the squad this morning at @SuabcAdaptive . Club where 1 of our FNDers is at. Can't wait to see what else you have to come! @BritishRowing #FND #FNDUK #Parasport #StratfordUponAvon #Warickshire
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Thanks to Falcon Digital sponsoring us we are able to introduce you to Brian the Robot. Launched him on Saturday! Already his story seems to explain FND so well to kids (& adults). His story: https://t.co/LrRBiDOEnG
#FND #Voices4FND #Robot #Story
https://t.co/cHVaJ5n4ZQ
falcondigital.co.uk
Falcon Digital are a trusted website design and digital marketing agency in Newton Abbot, Devon. They serve all of Devon and Cornwall.
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1 podcast we've recently been advising everyone to listen to is 1 from the @FNDSociety Really interesting. It interviews so many top specialists & is great at updating on cutting edge current research. @MallamElizabeth @LeoISTDP #FND #FNDUK #Podcast
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Join today to ensure that you stay constantly updated. From April we're starting our email newletter again! :) Go to:
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There's another @FNDFrieNDs account but just so we know, this FNDFrieNDsUK is our real & current 1. Feel free to drop us a line on our official website if you wish to verify. https://t.co/j4lRryENe0
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Welcome Brian helping children understand the effects of #FND Check out the story on https://t.co/LrRBiDOEnG
@NorthBristolNHS @MallamElizabeth @LeoISTDP #FNDAwarenessDay #YoungVoices4FND #Voices4FND
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Happy FND Awareness Day! Hard to believe it's come around again. @FNDAction @FNDDimensions @FNDAus @FNDSociety @FNDPortal @MallamElizabeth @LeoISTDP @NorthBristolNHS #YoungerFNDFighters #Voices4FND #YoungVoices4FND
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It's FND Awareness Day UK today!! Check out the online event today - first session starts at 9am! For further information on how to get involved please visit https://t.co/9eCbfD5civ Please add & RT the hashtags #Voices4FND #YoungVoices4FND
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Good to meet the team from FND Friends. We discussed the issues faced by those diagnosed with this condition & how we can work together to secure access to treatment services for #Torbay residents. #BoostTorbay #TorbayHour
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Here's the interview I did on the GB news morning show with Angela Rippon. I discuss my #FND journey and the current desperate situation for FND patients. https://t.co/pmBs5XfcSN
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