CureGRIN
@CureGrin
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CureGRIN is a parent-run foundation committed to improving the lives of people living with GRI disorder. #RareAsOne #GRIdisorder #raredisease
Joined June 2019
World Brain Day 2024. This year’s theme of Brain Health and Prevention emphasizes the importance of early detection and effective management in neurological disorders, like GRI disorders. Join us in spreading awareness for GRI disorders. #worldbrainday #brainhealth #awareness
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Take your mind off fb and insta outage with a cool podcast!
curegrin.org
This eight-part series tells the story of Bryson, GRIN Disorder, and Keith's family’s search for a cure.
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Austin's Purpose is matching up to $12,000 over the next 12 hours left in Giving Tuesday. There's still time to double your impact. Donate at
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Double your IMPACT! 'Tis the season for goodwill and gift giving. Give to CureGRIN Foundation today and unlock a matching gift of up to $10,000 from the Coleman Family!. Give our kids the gift of a CURE! #givingtuesday
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The most common cause of permanent visual impairment in children is Cortical Vision Impairment or #CVI. Did you know that CVI is also a leading symptom in #GRIdisoder patients? #WorldSightDay. Check out this resource from #littlebearsees to learn more!.
littlebearsees.org
Cortical visual impairment (CVI) is a term used to describe visual impairment that occurs due to brain injury. CVI differs from other types of visual impairment which are due to physical problems...
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#GRIcon2023 was AMAZING! . Check out one of our Keynote Presentations, The Path to Drug Approval, with speakers Dr. Michelle Campbell (FDA), Dr. Michael Panzara (Neurvati Neurosciences) and Dr. Michael Tranfaglia (FRAXA).
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On this #FeelgoodFriday, check out James Welton and his new wheels! Simple things like riding a bike did not seem like a reality for James Welton but guess what?? It is now! #welovesomeonerare #griawareness #gridisorder
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Patients with GRIK2 variants have symptoms including intellectual disability, developmental delay, seizures, visual, or sensory abnormalities. #GRIK2 #GRIawareness #GRIdisorder
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Meet Oliver!. Read about Oliver at . #GRIN1, #GRIN2A, #GRIN2B, #GRIN2D #GRIawareness #GRIdisorder #GRIA1 #GRIA2 #GRIA3 #GRIA4 #GRIK2.
curegrin.org
Our road to parenthood was challenging and we were thrilled to finally welcome our first child, Oliver, on March 24, 2013.
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Thanks to YOU, our donors and supporters, CureGRIN is excited to announce that we are funding 5 research projects for a total investment of $652,500. The announcement was made by CureGRIN CEO Keith McArthur last week at GRI Conference 2023.
curegrin.org
CureGRIN Foundation is excited to announce that we are funding five research projects for a total investment of $652,500. The announcement was made by CureGRIN CEO Keith McArthur last week at GRI...
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GRIA4 is expressed at high levels in several brain regions including the cerebellum and hypothalamus. #GRIA4 #GRIawareness #GRIdisorder
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The GRIA3 A653T mouse was found to show changes in sleep patterns. #GRIA3 #GRIawareness #GRIdisorder
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Meet Jersey!. Read about Jersey at . #GRIN1, #GRIN2A, #GRIN2B, #GRIN2D #GRIawareness #GRIdisorder #GRIA1 #GRIA2 #GRIA3 #GRIA4 #GRIK2.
curegrin.org
At 18, I never thought in a million years to be pregnant by my 16-year-old boyfriend. But there we were. October 3, 2001, a baby girl, who we named Jersey, was placed in our arms after an emergency...
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