CRPS talk & support
@CRPSTalkSupport
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CRPS talk & support UK is a friendly place for those living with (or caring for someone with) CRPS to chat to others about the condition and exchange advice.
UK
Joined August 2017
Thought of the day With CRPS you are constantly having to factor in how many rest days you will need to be able to go out next week and how many recovery days you will need afterwards. • • • #BNightsCRPS #CRPS #crpsawareness #crpswarrior #crpssupport #chronicpain #CRPSisReal
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Good. People who don’t need PIP have no idea what it’s like to need PIP - or to fear that lifeline being removed. Disability benefits are vital and benefit us all. Disabled people don’t store it up - we spend it, often locally. Fingers crossed that sanity and decency prevail.
🚨Disability benefit cuts impossible to support, 42 Labour MPs tell Starmer MPs from across the party call for a pause and rethink. Full list of names here
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Agree with this. And would like to say that I’m pretty sure both government, DWP etc know it. Life with disability if any kind isn’t easy. Fraudulent PIP claims are basically zero. So why are we being targeted?
Employers aren't allowed to discriminate against disabled people. But they do it, all the time. They just do it in ways where they can't be held accountable, and skirt around regulations etc... so it can't be obviously associated with discrimination.
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Spot on
If you are Disabled, you should not apologise for: • claiming benefits • putting your health first • self-care • using mobility aids • needing help • bad days • setting boundaries • not attending social events • not working • not immediately replying to texts, calls,
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Sadly, this is true In my opinion
Force sick and disabled people into work—and you don’t save money. You fuel suicide. Worsen illness. Deepen stigma. Break lives. This isn’t reform. It’s cruelty and it will kill time and time again. #DisabilityBenefits
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So so true… Chronic illnesses - esp. ‘invisible’ ones like CRPS are so misunderstood. Having a chronic illness isn’t like how you feel when you are sick for a week or two off work We’re exhausted, in 24/7 pain, worried, it’s affected our whole life & relationships & who we are
Sometimes I think that non-disabled/healthy people believe that chronically ill people who are unable to work are basically having a nice long stay-at-home holiday, doing lots of lovely resting and maybe feeling a bit unwell from time to time. It’s not. 1/3 #PwME #ChronicIllness
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Please do this. Wear a mask. It’s such a small thing but could literally save a life - including yours. Thank you
COVID is still here & wearing a high-quality, well-fitted mask protects our most vulnerable community members. A simple act of care can prevent serious health complications. Mask up in high-risk settings & reduce the spread ➡️ https://t.co/co7IJydkaj More tips below 1/2🧵
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About time. The DWP has been awful to the sick and disabled for many years…and the ‘Fitness for Work’ test is so flawed it’s almost laughable…except it’s not funny. We always hope for better but keep being disappointed - but at least they’re asking the question now. IMO
The boss of the health and safety watchdog has been asked by a disabled MP why her organisation has never investigated the government’s “fitness for work” test, even though it was linked to nearly 600 suicides in less than three years. https://t.co/LRKODeUJtz
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This. THIS. I don’t know about you, but I DREAM of being able to scrub the floors, trawl round the supermarket or dig my garden myself in January. Even scrubbing round the u-bend without snapping in half would be welcome right now. People in fairly good health, we envy you.
“You don’t work? Lucky! I wish I could stay home all day” Switch with me then. You take my illness, and I’ll take your health. We’ll see how long it takes you to ask for it back.
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This 👇
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Chronic illness is not always visible. You don’t see the brain fog. You don’t see the tachycardia so bad you can’t get up, the crushing fatigue. You don’t see the debilitating pain taken with each step. The dizziness we experience when we stand. What else don’t people see?
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Absolutely this 👇. Go easy on yourself. You cannot do everything - so pick your battles wisely and don’t try to please everyone. Take care of you and those you love, ask for help, and expect others to pitch in. Don’t cause yourself more pain 🎄 Remember - you need to rest too!
Do the #holidays make you feel stressed & exhausted? It's a universal problem, especially for people living with #ChronicPain. Make things easier on yourself by only doing things that you want to do or need to do. Skip the stuff that you “should” do. #cpp
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This is one of the truest things I’ve ever read. And it hits home hard for all of us with CRPS. Because this is exactly how the world works… You’re not alone out there. We get it. Keep going 🤗
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SPOT ON
The DWP released statistics showing that fraud in the disability benefits system is a 'non-issue', so why the plans to spy on Disabled people’s bank accounts? Because the wealthy tax avoiders have political influence, while we do not. https://t.co/gewBmSYp5k
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No surprise to those of us with CRPS. Ice is the absolute worst thing we can use on our skin. For many of us, the instructions to use ice to reduce swelling made our undiagnosed CRPS far worse than it would have been. It’s time medicine caught up with time. Rethink it all. IMO
apparently doctors figured out you’re actually not supposed to use ice to keep the swelling down. so what the fuck.
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A really interesting thread. What else would you add?
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Thought of the day I can be really irritable when my pain levels are high. I'm not angry at you, I am angry at my CRPS. #BNightsCRPS
#CRPS #crpsawareness #crpswarrior #crpslife #crpssupport
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Truth. We get a kickback from when we exert ourselves to do that bit too much more than our bodies can take… The consequences are a pain flare and the physical effects of whatever we did. Acting ‘normal’ for a while is never without a nasty sting in the tail. Be kind to yourself
Thought of the day But you did it yesterday... And that's why today I'm in agony and unable to get out of bed. #BNightsCRPS
#CRPS #crpsawareness #crpswarrior #crpslife #crpssupport
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Thought of the day My pain is still there when I'm smiling, when I'm laughing, when I'm not talking about it and when I'm socialising. #CRPS #chronicpain #chronicillness.
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“Healthy people will assume that the #fatigue felt by #chronicillness sufferers is like their own – tiredness... they are able to carry on when they are tired – so why cant you?” I’m not Lazy, I’m Fatigued https://t.co/cX0OXbLVQX
@me_illness #spoonie #chronicpain
memysefandchronicillness.home.blog
Without a shadow of a doubt one of the worst symptoms of chronic illness is fatigue. Fatigue is an almost indescribable feeling that only people who experience it can truly understand. A lot of peo…
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