Anne Carr
@57Duchess
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Anne Marie Carr, Founder and CEO of Hereditary Amyloidosis Canada, and I live with Hereditary Transthyretin Amyloidosis (hATTR) https://t.co/xhNQ5MqhrL
Hagersville, Ontario Canada
Joined January 2018
You’re wrong about Meghan not caring. The Royals finally put their foot down and are not allowing her to run all over them with her stupid, disrespectful demands and she knows she’ll be booed. She’s saving face. That’s why she’s not coming. Stop the nonsense
How empowering for Meghan Markle to say No to Britain’s most powerful family. A family that held her in contempt & constantly fed her to vultures. Any wife with bad in-laws knows she just took back control. 👏🏽I’m here for Meghan not giving a damn what anyone thinks #Coronation
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Find out more about Amyloidosis with these infographics ⬇️ ✅ 4 types of Amyloidosis 🩺 4 years before diagnosis 👨🏼⚕️ 4 specialists consulted in average Let's continue to share as much information as possible🌎🗣️🙏🏻 #infographics #diseaseinfographics #raredisease #amyloidosis
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"Canada has the opportunity to implement the world's best program for rare disease patients" -- Durhane Wong-Rieger
newswire.ca
A significant investment of federal funding will boost health system capacity to deliver screening, diagnostics and rare disease medicines and to incentivize...
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#amyloidosis
#attr
#hattr
#madhattr I'm a senior with the attitude enjoy life every day. What makes me special is that I have a rare disease Amyloidosis. We want to raise awareness, educate & elevate this monster. Quicker diagnosis leads to a much better prognosis
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#attr #amyloidosis *JOIN US The First-Ever ATTR Patient Summit Hyatt Regency Hotel Toronto April 28 -30th 2023* Bringing together patients, caregivers and loved ones ❤️❤️ Register early to avoid disappointment. Agenda available soon https://t.co/au9fyilaPu
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Canadian Amyloidosis Registry https://t.co/5TMeoNg45h
#amyloidosis
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Exciting Things Ahead! Update from HAC/TAC Founder and CEO Anne Marie Carr #amyloidosis
#wildtypeamyloidosis
#hereditarytypeamyloidosis
https://t.co/0I5KOZMa0d via @sharonmarks
madhattr.ca
Its been some time since I provided an update – and there are a lot of exciting things coming our way in 2023 ATTR Patient Summit – April 28– 30, 2023 I’m excited to share that in 2023, we will be...
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Canadian Amyloidosis Registry https://t.co/5TMeoNg45h
#amyloidosis
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A #cannabis retailer is the first of its kind in the country to offer a farm-to-consumer option for its customers. The operation is on a 180-acre farm near Jarvis. @AdamCHCH reports. #weed WATCH: https://t.co/pO7XZQRLr3
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If your doctor suspects #hATTR #amyloidosis with polyneuropathy, genetic testing is available through the #hATTRCompass Program. Visit our website to learn more. https://t.co/FssXtDy5zm
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France announces it has killed leader of al-Qaeda in north Africa, Abdelmalek Droukdel, in an operation in Mali
bbc.co.uk
Veteran jihadist Abdelmalek Droukdel was killed in an operation in Mali, the defence minister says.
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Fabulous webinar from Mary Reilly, she is tops in my opinion. TTR Amyloidosis explained in an easy to understand format.. https://t.co/eengvNEdZv
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Join us on May 20 at 8:00PM EDT for the second in a series of three webinars focused on advocacy. You will learn about the drug approvals/reimbursement processes and HAC’s work to can help prompt swift access to new therapies. Details 👉
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Our complimentary advocacy webinar on May 13 at 8:00PM – 9:00 pm EDT will equip the hATTR community to effectively advocate on key issues of importance. Help us support publicly funded access to new treatments for all hATTR amyloidosis patients. Details 👉
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Join us on May 13 at 8:00PM EDT for the first in a series of three webinars focused on advocacy. Learn effective advocacy strategies to support publicly funded access to new treatments for all hATTR amyloidosis patients. Details 👉
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Today our teams celebrated #RareDiseaseDay including those in Boston, Carlsbad and the UK! We were honored to hear from brave members of our familial #chylomicronemia syndrome and #hATTR amyloidosis patient communities and will continue to share their stories. #raredisease
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Retweet to create more awareness. There are over 7000 rare diseases. What are you going to do to make a difference?
#RareDiseaseDay is this month – and on the RAREST day of the year, February 29th, but living with a rare disease affects MANY people worldwide. We are so proud to support this community! How will you be celebrating #RDD2020?
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This should be an absolutely awesome event. 500 plus participants, including doctors, patients and caregivers from many international countries. This can only enhance awareness, education and advocacy for rare diseases, which Hereditary Amyloidosis TTR is one.
The 2nd European Meeting for #ATTR #amyloidosis is taking place on 9/2-9/3! We’ll be in Berlin with the European #raredisease community to discuss how we can improve diagnosis, treatment, and care for patients living with #hATTR #amyloidosis: https://t.co/PQavLsezRT
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